Never felt so alone...

MollysGma
MollysGma Member Posts: 13
edited March 2014 in Breast Cancer #1
Hi, I'm another Joyce and although I've replied to a few posts I haven't introduced myself. I'm currently going through radiation after a lumpectomy for Stage I breast cancer. My best friend has vanished since my diagnosis and my only real support besides my husband, who has his own health concerns, is my youngest daughter. I hope to make some friends here. I've taken the liberty of adding a few of you to my friends list, hope that's OK? I've learned so much already in just a few days! Thanks so much for a wonderful place to visit.

MollysGrandma Joyce
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Comments

  • mimivac
    mimivac Member Posts: 2,143
    Welcome, Joyce
    You are not alone here. This is the place to come where you can say anything you want, cry, rant, laugh, or just listen. We will not disappear on you. Cancer and its treatments can be life-changing, stressful, and mind-boggling events. Getting through them is a process, but, as RE likes to say, doable. Friends who have not been through this sometimes do not know what to do or say -- so they do and say nothing. Many of us have had this experience. You need to concentrate on your care right now. Be good to yourself, take it a day at a time, and know that radiation will end, and slowly the fear will lessen. Ask any questions here. Whatever it is, someone has been through it. Welcome to the club.

    Mimi
  • tasha_111
    tasha_111 Member Posts: 2,072
    MollysGma
    Hi and welcome, a lot of best friends don't know how to deal with a cancer diagnosis (I found this out the hard way). My husband was less than useless.. But I found a few new friends who were not scared of me and my DX, also hung onto a few old ones. My friends list changes every year; People who I would have expected to stick by me Bogged off and people who I didn't really have that much affinity with, supported me. Hey, you never can tell, just don't take it personally, It is their problem, Not yours. HUGE HUGS Jxxxxxxxxxxxxxxxxxxxxxx
  • chenheart
    chenheart Member Posts: 5,159
    (((((((hugs))))))
    Welcome Aboard~ you will never find a more supportive, informed and encouraging group of warrior-survivors anywhere! Nothing I can add to the whole friends thing~ except to echo what Tasha said, it is their problem, not yours.

    The great thing about this place is, we are here 24 hours a day! There is always something to read, or post about, as you have seen. My mom used to say I would never be lonely if I had something to read! I'm sure she never meant this place ( books is what she had in mind!) but she was correct, nonetheless!

    Welcome to the family!

    Hugs,
    Claudia
  • phoenixrising
    phoenixrising Member Posts: 1,508
    Welcome Joyce, so sorry you
    Welcome Joyce, so sorry you have to join our club, but I hope you find all that you need here.
    The women are intelligent, courageous and wise and will support you all the way. It's a shame about your friend, but you know, you'll probably make better friends along the way. Hope all goes well with your tx.
    love
    jan
  • Marcia527
    Marcia527 Member Posts: 2,729
    Hi Joyce. I was diagnosed in
    Hi Joyce. I was diagnosed in Aug. 2003. I didn't find this site until after treatment. Glad you found us before yours is finished.
  • Ltalcott
    Ltalcott Member Posts: 119
    Welcome to the club
    Lots of experience to benefit from here. My guess is that every question or problem you have, someone here has had the same question or problem, and someone (MANY someones!) will be able to offer advice, commiserate, listen, or sympathize.

    Lisa
  • chriss26
    chriss26 Member Posts: 18
    Welcome
    Cancer is a scarey thing for us and those around us. You friend probably is so afraid of losing you that she is doing just that. Well, even though we are afraid, we must face it head on. A cancer survivor is the best friend a cancer survivor can have!!! Welcome
    Chris
  • Jadie
    Jadie Member Posts: 723
    Hi Molly and welcome. I had
    Hi Molly and welcome. I had two best friends to dissappear when I was dx. One of them came back long after I had finished treatment acting like nothing had ever happened. Not even asking me about dx, treatment or anything. Guess she found out that I wasn't contageous. I guess I scared the other one completely off.

    Take care of your skin while doing rads. Get lots of rest so you can play with Molly.

    Hugs
    Jadie
  • Jadie
    Jadie Member Posts: 723
    chriss26 said:

    Welcome
    Cancer is a scarey thing for us and those around us. You friend probably is so afraid of losing you that she is doing just that. Well, even though we are afraid, we must face it head on. A cancer survivor is the best friend a cancer survivor can have!!! Welcome
    Chris

    Chris what a cute dog!
    Chris what a cute dog! Almost as cute as her master.LOL
  • hustleNbustle
    hustleNbustle Member Posts: 9
    good
    It is good that you are reaching out.

    My friend who is nearly finished with treatments went through many months where I was her only support, on the phone. I live in another city. I kept encouraging her to reach out where she was, not to replace me but to find a friend who'd been through bc.

    I think this forum will be helpful for you.
  • mmontero38
    mmontero38 Member Posts: 1,510
    Welcome Joyce
    Welcome Joyce, so glad you found us. I was diagnosed with invasive ductal carcinoma in June 2007. Had a mastectomy, lymph nodes were clean but still had to go through 8 rounds of chemo because they found some cancer cells in the blood vessels in the breast. I found this site right after I finished my treatment and would have loved to have found it before because I learned so much from my fellow warriors. We hope we can give you support and you are not alone in this journey. We are walking with you every step of the way. It's hard for some people to accept a cancer diagnosis. It almost feels like it will happen to someone else and not to us or someone close to us, so I can imagine your friend is having a hard time coming to grips because it hit closer to home than she is comfortable with. We are all here for you so post often and thanks for making us your friend. Hugs, Lili
  • Eil4186
    Eil4186 Member Posts: 949
    Hi Joyce, So glad that that
    Hi Joyce, So glad that that you have found this site. Like some of the others, I did not find it till after my treatment. Treatment would have been a lot less scarier if I had been able to chat with evetyone here.

    Please feel comfortable to voice your fears and concerns here. Everyone is very kind and supportive. I feel lucky to have such wonderful friends here. You now have a huge support system here and can come here day and night. Welcome and God bless. Eil
  • rjjj
    rjjj Member Posts: 1,822 Member
    Dear Joyce
    I would love to be added to your friends list! I'm sorry your friend has vanished, friends and loved ones can each act so differently. Some can handle it and some can't. It is their own fear. It doesn't take long to find out who will be there for you and who wont..and some of the ones you never expected to be will, and the ones you expected to be wont.

    I am so glad you joined our group. You will never be alone. You find support through your fears, anger, sadness or joy (yes we do still find joy in our lives and lotsa laughter too!

    welcome and God bless,
    jackie
  • ladybug22
    ladybug22 Member Posts: 646
    sorry you feal so along.
    sorry you feal so along. hug to you just letting you no you will be in a circle of love in here. we all care about you and your hugs and love coming to u.
  • RE
    RE Member Posts: 4,591 Member
    Welcome Aboard
    Glad you found us Joyce, I am quite sure you will find many new supportive, caring and informative friends here, I sure have! Keep your chin up it will be over and done before you know it. We are here for you and more than happy to be your friends.

    HUGS to you,

    RE
  • tgf
    tgf Member Posts: 950 Member
    Hi from another Grandma
    Hi Joyce. I just read your "about me" page and it was almost like reading MY "about me" page. Your age is given between 60-69 ... and I just turned 65 two weeks ago. I had my lumpectomy on 1/21 and thought all I'd need was radiation ... but one of the lab results came back HER2+ so my oncologist told me I really needed to have chemo. I honestly couldn't believe what he was telling me. I have always considered myself to be the BIGGEST chicken on earth and totally terrified of ALL needles! The word "chemo" was the last word I ever wanted to hear because I was positive I could NEVER in a million years do "it."

    Then ... I found this website and it's been a blessing. Somehow by reading the questions/answers/comments ... and asking questions of my own ... I realized somehow ... that if these women can go through what they've gone through ... I CAN do "it." After all ... I am one of the "lucky" ones ... no mastectomy. I just had a small lump removed and needed some medicine to keep "it" from coming back. Once I made the decision I could do chemo ... I really fought the idea of having a port "installed" ... but again ... after reading what's on the website about ports ... I realized I could do THAT too. And ... I did. I had my port installed on March 6th and had my first chemo on the 13th. The folks at the oncologist's office couldn't figure out why I was so insistant that I start my chemo on Friday the 13th ... but when I told them it was my BIRTHday totally understood.

    The port "installation" was much easier than I thought and the first week it just felt "strange" but now ... I don't even notice it being there. My first chemo was not bad at all. I wasn't sure what to expect ... but a few people on this website suggested EMLA cream to numb the port area so I wouldn't feel the needle go in and that has helped a LOT. I also take a xanax before my appointment. And I have had zero side effects. Zero. When I get home from chemo I take an anti-nausea pill (just in case) ... then I take 2 the next day just to be sure. No nausea! In fact ... last week was a breeze. I slept through 99% of the treatment. :-) Between the benedryl drip (and my xanax) and the relaxation CD I had going through my earphones ... I just pulled the blankets up ... and I was snoozing away in no time... and woke up very rested. :-)

    You say you feel alone and I do understand that feeling. I've been divorced for 1000 years and live alone (with my 2 cats) and I wasn't sure I could make it on this "journey" alone ... but this website has given me many new friends who know what I'm thinking and feeling and they are all there for me. It's like hundreds of hugs through the computer. It's amazing. These are strong people and it is truly a gift that they share that strength with others.

    We are all here ... and you are NOT alone. We're all here for you ... and with you on your journey.

    Hugs,
    Teena
  • divablu
    divablu Member Posts: 75
    You're Not Alone ...
    I'm finishing radiation for Stage IIIB ... mastectomy/lumptectomy ... I understand the feeling of being alone during the bc journey. My husband has been very strong, tolerant and supportive through all this. But he and I have been an island dealing with the cancer and all the other stuff life throws at you.

    Here's another web site that the cancer center social worker gave to me ... www.networkofstrength.org. Check it out if you like.

    You're not alone. But I understand that it sure feels like that sometimes. Good that you have reached out to this group, now try to reach out to other people in your area. I called a friend of mine last night and apologized for not keeping in better touch. I get depressed about all this, and I had been crying a lot, and choose not to talk with people. Well, my friend, Bev, reminded me it is OK to reach out, and that being around other people helps to take your mind off your own situation.

    I'm sure that are some people out there who would love to hear from you.
  • dbs1673
    dbs1673 Member Posts: 203
    divablu said:

    You're Not Alone ...
    I'm finishing radiation for Stage IIIB ... mastectomy/lumptectomy ... I understand the feeling of being alone during the bc journey. My husband has been very strong, tolerant and supportive through all this. But he and I have been an island dealing with the cancer and all the other stuff life throws at you.

    Here's another web site that the cancer center social worker gave to me ... www.networkofstrength.org. Check it out if you like.

    You're not alone. But I understand that it sure feels like that sometimes. Good that you have reached out to this group, now try to reach out to other people in your area. I called a friend of mine last night and apologized for not keeping in better touch. I get depressed about all this, and I had been crying a lot, and choose not to talk with people. Well, my friend, Bev, reminded me it is OK to reach out, and that being around other people helps to take your mind off your own situation.

    I'm sure that are some people out there who would love to hear from you.

    welcome
    Hi Joyce,
    This is a time where nothing yet everything is normal. How we react, how our friends react can all be "explained" yet our feelings don't change. Some people seem to know just the right thing to say (or not say) others just fade into the background. As the saying goes when one door is closed another one opens. This is the site where all the doors and windows are open!! When I started radiation I had a chain of paper clips for each day with a bright colored one at the end. Each morning when I got into work after my treatment, I removed one of those clips. Having something to visualize helped me. May rest and peace come to you soon.

    dawn
  • JoyD
    JoyD Member Posts: 81
    Support System
    MollysGMA:

    Why don't you call the American Cancer Society in your location and try to go to one of their support group. I had attended one last Tues - March 24, 2009 and it was wonderful. The people in my support group were a 14, 10, 7 year cancer survivors and they have dedicated their lives to helping new patients diagnosed with BC. We only meet 2x a month - you are not obligated to go everytime. Also, I started volunteering yesterday with my local ACS, just like you, I was so depressed, not understanding why????? So I went ahead and called the lady in charge at ACS - Dublin and told her I am ready to work.

    I was just there about 2 hours and was just preparing packets for Kaiser Patients....I am also scared about my upcoming Chemo next Wed - April 1....I don't know what to expect but with the experiences and opinions of our sisters in this Board, I have learned a lot. Don't worry, we are here to support each other.

    Joy
  • MollysGma
    MollysGma Member Posts: 13
    JoyD said:

    Support System
    MollysGMA:

    Why don't you call the American Cancer Society in your location and try to go to one of their support group. I had attended one last Tues - March 24, 2009 and it was wonderful. The people in my support group were a 14, 10, 7 year cancer survivors and they have dedicated their lives to helping new patients diagnosed with BC. We only meet 2x a month - you are not obligated to go everytime. Also, I started volunteering yesterday with my local ACS, just like you, I was so depressed, not understanding why????? So I went ahead and called the lady in charge at ACS - Dublin and told her I am ready to work.

    I was just there about 2 hours and was just preparing packets for Kaiser Patients....I am also scared about my upcoming Chemo next Wed - April 1....I don't know what to expect but with the experiences and opinions of our sisters in this Board, I have learned a lot. Don't worry, we are here to support each other.

    Joy

    I want to give a BIG THANK YOU to everyone here!
    Thank you so much for all the kind words and support. I can't believe how accepted I feel! It's a first for me and I'm sitting here crying my eyes out. Getting the computer keys all wet, too. I hope to be able to be as strong and supportive as you all are. I just don't know what to say to everyone except THANK YOU!! MollysGma Joyce