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Last treatment for me

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

I just got back from my last treatment and of course I feel great(steroids). I will have my ct scan in 3 weeks to see what has happened. The nurses at the infusion room handed me a angel coin when I left and I wore a tiara for the time I was there. Now, it's time to try and relax and work on getting my hair, eyebrows,and eyelashes back. I don't care about the rest of it. lol

I believe that Linda is due for her last one next week am I correct? I hope all goes well for everyone today. It is cold and very sunny here in Oregon but I love it.

How is everyone doing?

Living with hope,
Sharon

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

Job well done. Celebrate.. Remember.. Fight back. Heal in Jesus name. Peggy

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

Well thank you so much for your caring thoughts. I am in it for the fight now, going through 6 rounds of chemo was very doable and if I have to have any more treatments I'm going for it. I had all the side effects from the treatments but as it went along you learn how to cope with it. I didn't gain to much weight because I had bowel issue so that my food just went through fast and didn't digest well. I have always had stomach problems so I was use to that. My rb counts were low but they gave me a booster shot with the treatment today so it should come up soon. I have the Neulasta shot tomorrow afternoon (bone aches) for the wb it was low too.

I hope you have a great day tomorrow.
Thanks again.
Sharon

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

CONGRATULATIONS, Sharon!! Last chemo day is a BIG DEAL and I am so happy for you! I'm tentatively scheduled for my 6th (last!) round of chemo on Monday, but if things go as they did in the last 2 rounds, my blood counts will push my chemo back until the 23rd. I had to go over to the cancer clinic today because my feet and ankles swelled up the last 2 days. When I called in that new development to my chemo nurse, my oncologist phoned back and wanted to check me for blood clots. But I'm okay. Apparently if one leg swells more than the other, and the swelling doesn't go down when you elevate your legs, or if you have pain at the back of your calf, THAT's when you really need to get over and be checked for a blood clot. But I didn't have any of those other symptoms, just thick ankles and chubby feet at the end of the day!

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

You sound just like me and my side effects. I had the one leg swell (left) and I was told to watch it for blood clot also but it went down after a while and not to much pain. It seems to happen every time I have a treatment about 2 weeks later. I now massage my leg in one direction to keep the fluid moving. How is the feelings in your feet? I get the numbness and it last for about 3 weeks and then it goes away. My hands were not too bad.
Have you had a transfusion at all and if so did it help you? I know that the booster is the only thing that can get your marrow to produce more rb cells, at least that's what I was told. I hope your counts come up so you can get your last one too.

Have a great day

Thanks for the congrat's
Sharon

deanna14
Posts: 738
Joined: Oct 2008

Congratulations on your last treatment, I am so happy for you and look forward to the day I have my last treatment! I know you probably won't feel great the next few days, but it will surely be easier to tolerate knowing you are finished. Good luck with the Neulasta shot and wishes for no bone pain. I think the Neulasta is harder than the chemo.

Linda, I pray that your counts will be good and you will get your last treatment as scheduled. Sending positive thoughts your way...

Hugs to all,
Deanna

shortmarge
Posts: 296
Joined: Nov 2008

I'm am so glad to hear you are finished with your chemo. I know how exciting this is and what a relief. HUGS!!!!!

It will be two months for me since chemo, still having side effects and frustrated. My hands have been swollen for over a month, my neuropathy acts up when I get really physical and my bones still ache. I went to my regular doctor to get her updated to where I am and she did all kinds of blood work. She is feeling I have a B-12 defiency even though I take vitamins. Thinking I might have to have B-12 shots.

On a brighter note, I don't have to wear a hat anymore. My hair is about a 1/2 inch and is looking great, salt and pepper. My eyebrows are back, my leg hair is lighter and finer and the underarms are taking a little longer.

Linda, you're almost there and I pray you get your last treatment when scheduled.

Deanna you're day is coming quicker then you think.

Peggy, how are you and how is you husband doing?

MIND, BODY AND SOUL.

Hugs.

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

I like your picture. Salt and pepper hair just in time for the Easter dress up. It will be interesting to see if you get the curls too!! Sorry to hear about the neuropathy. The B12 is supposed to really help. Soon Linda will have that last treatment and will be sprouting for spring..... curls galore!! How are the rest of you doing?? I just have a minute here, then off to the Dr again. G is having his surgery on the 19th. Unless one more scan that the results are out on yet comes back bad. Otherwise I have hopes of seeing another Easter!! Have been given the assignment of publicity chair for the Relay and I see the 25th hour will be part of the programs this year. So glad to see all of your posts especially when they are happy or help is found. CRFB!! (Relay terms; Celebrate, Remember, Fight Back.) It fits. My prayers to all. Peggy

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Do I look Green with Envy??? HAIR! I'm really so happy for you, Marge. You, Peggy and Deanna have been with me since the very beginning of my cancer journey, and I love you, girl. The B-12 shots sound like a good thing. As soon as I get past my chemo, I'm going to look into supplements to build myself back up (like Peggy's recommended 'Z's'), and once I recover from the radiation I'm re-joining the gym to get strong again.

PEGGY: Prayers for Garth. Hugs for you.

Today when I went to pick the grandkids up at school (something I do so rarely now!) the local RELAY for LIFE team chairwomen pulled me aside and invited me to a Survivor's Dinner, so it looks like I'll at least be taking a lap during the Relay.

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

I am so sorry to hear of your hands being swollen, I never had that happen to me. I did however get the shooting pains in my hands especially if they got cold. My feet and one leg is my problem but after 3 weeks it seems to clear up. I hope I don't have it happen forever.
I heard that our vitamin B's are very important to us and I take a super complex every day to try to keep them up. Let us know how the shots work.

Glad to hear the hair is growing back, did you have the salt and pepper before chemo?
I always had fuzzy stuff on my head and then after treatment some of it would break off, but not all of it so maybe mine will grow back faster. I always wore it short anyway.

Good luck with your shots.
Living with hope,
Sharon

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

I am with you on the shots I will feel it tomorrow but I take extra strength Tylenol 500mg to help with the pain and sometimes I need the pain meds. It takes a few days then I am o.k. again. With the red blood booster shot I seem to feel better after the treatments so when they are down I can really feel it. I hope your week is better.

What a great group we have here. I feel better when I talk to you all.

Have a great night.
Living with hope,
Sharon

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Hi, Sharon! So far I've had to have 1 blood transfusion, a week after Round 4. My platelet and Red-Blood counts really started to tank with each chemo infusion after Round 3, and for the last 2 rounds I had to take an extra week and have my chemo 4 weeks apart instead of 3. I have a few drug allergies, so my oncologist tries to use time and blood instead of the shots to get me safely through my chemo. I will be SOOOOO glad when I have the next (LAST!) chemo round in me and can move on to the radiation phase. (& be even MORE glad when that is behind me and I can take a LOOOOONG break from treatment, hopefully a 'FOREVER' break!)

My very early 'species' crocus bloomed in an especially sunny spot in my garden, with their promise of spring. It's only 20 degrees outside now, and my crocus and daffodils ALWAYS get snowed on every year. But their pastel beauty is so cheery, and I hope this 'winter of my discontent' is almost over.

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

Hi Linda, first off hooray for the crocus showing their beautiful colors for you. Here in Oregon the buds are out and we are still in the 20's at night but in the 5o's during the day. Spring is almost here.

I see now why you don't get the shots, I just had my Nulasta shot today and now the bone aches. I will pop a few extra strength Tylenol for it and if that does not work I take the pain meds. I don't like to depend on them but you gotta do to function.

My Dr. says you can't run a car on empty and that's what our blood counts have just about done to us. I seem to bounce back in around 3 weeks just in time for another treatment but this time I should be feeling so much better. I am also waiting for the break and looking for a good ct scan.

Have a great night Linda.

Living with hope,
Sharon

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Hi All,

Congrats to Sharon on last treatment. I am 3 weeks post my last treatment - it really is a good feeling to have that behind you.

I am still dealing with some neuropathy and lack of stamina (I get winded very easily). I have not had blood work or scans yet to find out how all went - Still appealing insurance company - hopefully this will be resolved soon.

Linda, I'm sending positive vibes to you that your treatment goes on schedule next week:)

Love and prayers to all.

Mary Ann (aka Daisy)

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

Daisy, I think it is so wrong for the insurance companies to deny a ct scan to make sure all is well after treatments with chemo. You can drive yourself crazy wondering if it's gone or is it still there. I would hound them until they at least gave you one. Here's hoping they come through for you.

Sharon

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I have 1 more chemo round to get still, but was told that I would have a CT-scan again 2 weeks after my last chemo. This will be my 3rd CT-scan, with the first 2: NED. Maybe I am getting this CT-scan because I still have all of my radiation to do yet, and they want to see if there is something specific they need to 'aim' at (Please, GOD, don't let there be anything there!). So my CT-scan may not be considered 'follow-up' to my chemo as much as it is a prelude to my radiation.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Hi all,

Thanks for your feedback. If this PET scan doesn't fly I will get CT scan hopefully this week, which will be 4 weeks post last chemo. I may get radiation too depending on result. When I do my visualizations, I AM NED!! It would be nice to get medical confirmation of this.

Peace, hugs and prayers. Mary Ann (Daisy)

Ro10's picture
Ro10
Posts: 1482
Joined: Jan 2009

Linda my onocologist told me the radiation therapist may do a CAT scan prior to beginning radiation therapy just to see how your anatomy is to make sure that the radiation is being directed where they need to go. I have not had any CAT scans yet. So I aksed him when my first one would be done. That is when he told me aoubt one possibly being done prior to radiation therapy. I hope you continue to have NED. I would feel good if I could get that report also.

Hope you are able to get your last chemo this week, that your blood counts are good, and you are feeling well.

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

Ro you are a nurse and Deanna you are a nurse? My daughter is 12. Friday she fell during gym class and had to go to the school nurse to call us because her foot was badly hurt. I had just gotten back to our farm from town and her dad was still in town so he went right up to the school and took her to the clinic. After an extended wait she was x rayed. The PA told my daughter and my husband (after they took the x ray) that the radiologist was not in and that they would call us Mon. My daughter left the clinic in a black boot looking brace. Now it is Mon and no call. I did call 2 times to the clinic and finally the radiolgy gal took the read report (wasn't read yet at noon but this is the 3:00 call) to the clinic and had the PA call me. Luck is finally with us ... only a sprain. But the PA wanted her back in 2 weeks to re check it. I said I don't think we will be coming back there... first we spent a lot of time this week end stressed because her foot was numb, her pain level was getting worse and we had no idea if her foot was broken. I also told the PA that I thought it would have been more professional to have told my husband and daughter before the X ray that it would not be read until Mon. ( maybe we would have taken her to a different clinic that could read it that day... but we surly would not subject our daughter to another xray and more radiation..) the PA snarled at me..."Mame if you are not happy with the situation call the director of nurses" ... them she slammed the phone down. Any comments??

deanna14
Posts: 738
Joined: Oct 2008

To say the least, the PA's behavior was unprofessional. If I were you I would call and speak with the director of nurses. I would explain exactly what you wrote above, that if you had known that the xray was not going to be read, you could have opted to go to another clinic or emergency room. Certainly let them know about the behavior of the PA and being hung up on. As far as the sprain, unfortunately, sometimes sprains are more painful than breaks and take a long time to heal. If it were me, I would take an anti inflammatory, like Ibuprofen or aleve and ice it several times a day, and just take it easy on it. Partial weight bearing until it is less painful, if she stops using it, it will just get stiff and more painful.
You all are just having some tuff luck lately. How do you keep your sanity. How is your husband feeling? Have you found out anything? I am saying extra prayers for you and your family. Take Care of yourself.
Love and Hugs,
Deanna

Ro10's picture
Ro10
Posts: 1482
Joined: Jan 2009

I am so sorry about your daughter's fall. It must still be painful for her, and you too. I am sure you would have gone elsewhere if you knew you could not get x-ray results until Monday afternoon. When your child hurts, you certainly hurt, too. Sometimes a fracture does not show up right away, but two weeks is a long time to wait for another x-ray. I am so sorry you and your family has had such a hard time with everything. I would complain to the clinic about the delay and how you were treated. I hope you got the PA's name, too. Hope they told you to give her some Ibuprofen and ice over the weekend and to keep the foot elevated. Hope you and Garth are doing better, too. I will say some extra prayers for you and your family. HUGS to all of you. Sorry I did not see this post last night.

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

Thank you Deanna and Ro. You are both so supportive. Jo's foot is much better now. She is so very sore in the arms and wrists from the crutches! I let her stay home today. She will have a long few days starting tomorrow when we have to go out of town for Garths surgery and she will be 'farmed out' again. Deanna it is almost funny to have you mention the stress here lately. It started with a tornato putting a tree in my bed, then I got cancer, then our business burned down, now G is so sick..... oh well. I saw an article yesterday that said if we were to stand in a circle and all throw our troubles in the middle we would grab ours back... I think that is about right. As much as we dread the surgery on Thursday we have a good friend going to the same hospital at the same time for heart surgery. That would be much worse than G with his umbil. hernia and gall bladder. Our concern is that the surgery may trigger the pancreas again. ...........now back to the clinic episode. I thought of calling the director of nurses, but I know the administrator (sold him his house) so I called him. First he couldn't beleive that no one read the film. He said they have 2 back up plans in place. We should have had it read that day. Then when I told him about 'her' he assured me that he would call me in a day or two and let me know that this case was followed up on. ( I told him if any of my agents EVER acted like that the door would not hit them in the backside fast enough on their way OUT.!!) Maybe a bit candid, but it is the truth. The jury is still out on IF they bother to call back. The administrator was very gracious. He was just promoted to this job, so one would hope he will step up to the plate. Once again, thank you both for all of the great advise on the foot and the moral support. I can feel it in my heart how great you both are in your professions. Hope you are enjoying the prospect of SPRING!! God bless.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I sprained my ankle really bad once when I was jogging, and I remember the doctor saying I would have been better off if it had broken because I did so much damage. (I was running and there was some long grass where someone had sythed the steep banks of their property by the road, with the long grass covering up a big pot-hole on the side of the road. My foot went right down in the hole as I was moving forward: OUCH!) Six months later that ankle would still swell up when I did any long-distance jogging. Poor little girl! Hugs to you and Garth, too, Peggy. You've had more grief lately than you deserve; that's for sure! ((((((Garth, Peggy, & Jo!))))))

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

No pain ... no gain. Thank you Linda for all your hugs and concern. I laughed so hard today at a couple... extra special friends of ours. They are trying to adjust to retirment, both having had very busy careers. He came to the conclusion that the biggest pain he could be was in HER a**. If you knew this couple you would know how hard I had to laugh. I think retirement would be good, but hard to adjust to having so much togetherness. How are you feeling now after your 'refil'? You are so close to the big "done day." I quit at 5 sessions so when I was done I didn't know it until 2 weeks later. Even then it was quite a mix of feelings. Great to be done... but sort of afraid of our 'life lines' being gone too. It is 2 years this month since my chemo was done..........CRFB!!

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