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Taxotere and Cytoxan sde effects

celinelvr
Posts: 30
Joined: Mar 2009

Anyone who has had Taxotere and Cytoxan chemotherapy - what were your
side effects??? Mine is feeling mostly like having a bad flu, headache,
tiredness, stomach ache, muscle aches and my heart pounding. I would like
to know how severe to expect. I have had only one dose a week ago - no hair
loss yet.

jakeca
Posts: 92
Joined: Dec 2008

I had four treatments. The first treatment, I had virtually no side effects, except I felt funny from the steroids--kind of "out of body." With each subsequent treatment, the side effects became a little bit more noticeable: nasty taste buds, achy for a few days, no energy, some minor neuropathy in my toes. Hair loss happened at the end of three weeks--right before my second treatment. I also received a Neulasta injection the day after each treatment and I really think that's what caused the aches. Usually about a week after my infusion, I felt better. The worst session was the third treatment. I think the fourth treatment was better because I was in a better place mentally--I was DONE with treatments and looking forward to feeling better permanently. I am convinced that the mind is a powerful thing.

I think you should ask your doctor about your heart pounding. I did experience some shortness of breath with the least bit of exertion, but not really a heart pounding thing.

Good luck. You'll make it and when it is all over, you will know that you have done everything possible to prevent a recurrence.

sweeetheart
Posts: 1
Joined: Feb 2010

Hi. I am new to this website and am looking for anyone that has been experiencing long term side effects from Taxotere and Cytoxin.....I had stage 1 cancer with no node involvement...However, I have the Her 2 Neu type of breast cancer which is extremely aggressive and chemo was highly recommended...I don't want to scare anyone but my chemo has been done for a year and my radiation finished last April.....During the treatments, my scalp felt tight.....That has gone away but there have been some visual changes that have remained....such as blackness over the head and appearing in the brain....sounds strange but it is true....Everything appears darker than it used to....Artificial light is not as bright and when it is extremely bright and sunny outside, I will see it as bright but extremely....It is particularly frustrating to have this....Also my eyesight changed from 20/10 to 20/50 and for the first time in my life I will have to wear glasses to correct the eyesight and blurriness....I also see some strange things on TV...in other words, the tv does not appear as it used to....I really don't know what is going on but all of these effects were never present in m;y life before chemo.....

I also have had some concern with my short term memory.....and i also feel that certain levels of cognition are not present any longer.....Very very frustrating....

I have sunk into depression over all of this.....

I am wondering if ANYONE has had any of these side effects and if so please comment as I would really like to speak with you....

Thanks.....
Sweeetheart

yakkydoodle
Posts: 1
Joined: Mar 2010

Hello,
I was looking up side effects for a friend and saw your post. I was treated for Stage III breast cancer in 2008. I first had two treatments of Adriamycin with Cytoxin, only two because my oncologist was worried about my reaction to that chemo and decided to go on to the Cytoxin and Taxotere (4 treatments, 3 weeks apart). He said I would probably have an easier time with those treatments than with the first two of Adriamyacin and Cytoxin. Anyway, long term effects, I was still having nausea and dizziness even a year later. I had 35 radiation treatments after the chemo, which sort of confuses the issue of side effects because the radiation has it's own, like extreme fatigue. I did manage to work throughout the treatments. I was able to take off 7 days for each chemo treatment but went to work every day during radiation. I was very tired and nauseous but I managed.
The side effects you describe are like none I've heard before, but I can tell you that I did hallucinate during my treatments with both adriamyacin and taxotere. I wonder if the effects you are feeling are some kind of hallucination. My heart goes out to you and I hope you will feel better soon. Believe it or not there will come a day when you will be finished with treatment. God Bless You! let me know if you have any questions. P.S. I recommend a strong pain reliever during chemo, my doctor had me on Vicodin, and then he put me on Oxycontin. I did not get addicted to it and it really helped me get through the nausea and discomfort of bone pain and nerve pain. After chemo was finished I was off the Oxycontin with no problem at all.

jonahrex98's picture
jonahrex98
Posts: 23
Joined: Jul 2012

I am a ten-year survivor and had this toxin for treatment. I can't remember the regimen (one of the side effects). I just remember that mine was real aggressive too. I hate to be discouraging, but this drug really messed me up. I now believe I have Chemobrain and chemo-induced peripheral neuropathy. I am glad to have survived though, but I say these drugs caused my nerve damage. Google says this drug family is one of the main culprits, and that there are many complaints now since so many more people are surviving. It is all very depressing after ten years when you are trying to live a normal life again. If you have any answers, let us know please.

sister.08
Posts: 1
Joined: Mar 2013

I am new to this website...even though I was diagnosed with breast cancer back in 2008.  I had Stage 1, grade III, Her 2 neu, Infultrating Ductal Carcinoma. They found the wirey, aggressive cancer spreading outside of the tumor into the healthy tissue.  I opted to have a mastectomy followed up with the Taxotere and Cytoxin chemo cocktail, every 3 weeks, 4x. My oncologist had first recommended the Adriamycin/Taxol I, but due to heart disease in our family, we decided on the Taxotere/Cytoxin route. only had one Neulasta shot, when hospitalized.  Had reconstructive surgery a year later.  I worked during treatments, with the exception of taking a day or two off when I lost my hair, or when I was running a fever & the time recommended for the surgeries.  I had all of the chemo side effects, but chalked it all being "temporary"... Here it is almost 5 years later and my eyesight has worsened dramatically, I still experience fatigue with aches, short term memory loss, and my ability to organize, make decisions and such, has really deteriorated!  I mean, to the point where I feel like an idiot. I am unemployed and have no ins... I look back at my journal when this journey first started, during chemo, and I am NOT the person I used to be. Is it from the chemo???

 I thank God for all he's given me and I'm in hopes that maybe one of you can shed some light, or give me some hope. I can relate to Sweeetheart's post!

God bless you sisters!

 

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

I have completed 3 treatments w/ cytoxin and taxotere and have experienced the same side effects jakeca describes. (I think,too, that the flu-like symptoms are from the Nulasta shot.) My hair started coming out about Day 21 of the first treatment. I have not experienced my heart pounding and would also recommend that you report it to your doctor.

My best wishes to you.

Derbygirl's picture
Derbygirl
Posts: 198
Joined: Jul 2008

Finished 4 rounds of C/T on Halloween 2008. Fatigue was my worst enemy and it did get worse with each treatment because of the cumulative effect. I also had change of taste, irritation of mouth lining and stomach disturbances that happended like clockwork during each treatment but resolved at the end of the week. Hair loss started on day 15. Other than fatigue my side effects didn't get worse with each treatment. I looked forward to week #3 because I felt "normal" once again. As you'll see we all react differently to chemo. Don't forget to drink lots of water, eat small frequent meals and rest often.

rjjj's picture
rjjj
Posts: 1826
Joined: Jan 2009

Hi! i also lv celine, and am on cytoxin and taxatere and herceptin. Jakeka said mostly what i experience. I do have some pounding of heart but ususally it is when i have exerted myself and then i just sit down and rest and it will go away..it also happens sometimes with anxiety..are you on any anti-anxiety meds such as ativan? That really helps but puts me to sleep. I also have a low-grade headache. At first I thought it was from losing my hair (and it was worse then.) but it keeps up. I take tylenol 3 for that. I am also really tired and all the other symptoms for about day 2-10 after tx but start feeling better and better until the next one. I have 3 more treatments left out of 6 and the herceptin will last a year. I do believe your mind plays an important part in all of this..I am really depressed also the first week after infusions but that also gets a little better. I lost my hair at about 3 wks. also.

I am wishing you all the best. Keep us posted on how you are doing. This board has been a lifesaver for me. You will be glad to have such support from all these amazing and courageous women and men.

Hugs and God Bless
Jackie

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

I also take those two drugs along with a third. Yes to most of the symptoms you describe plus others. I have found that my cycle of symptoms changes somewhat with each treatment. The fatigue has gotten progressively worse for me, but not intolerable so far. I have had 4 out of 6 treatments. Celine, the worst thing for me is the feeling of helplessness one sometimes gets when feeling so bad. I always have to remind myself that recovery is on the way. As these ladies say, symptoms do abate after about a week for most people. Hard to remember when you feel awful, but remember that you are doing everything you can to beat breast cancer for life. Good luck! We're all in the same boat.

ohilly
Posts: 446
Joined: Jan 2008

I don't know if your experience will be like mine, but I had 4 treatments of Cytoxan/Taxotere and experienced very little side effects other than a terrible taste in my mouth (which went away when I was done with chemo) and hair loss, which occurred around the 17th day if I recall. Before I lost my hair, my head felt sore and painful, which is a sign you are about to lose it.

I'll keep you in my thoughts. Let me know if you have other questions.

Ohilly

celinelvr
Posts: 30
Joined: Mar 2009

Thank you guys for all your symptoms. I appreciate the time you took to get back to me.
Everything seemed good on my last onc appointment. Blood work was good -CT and bone scan was normal - except for my arthritis... My next chemo is set for March 17. Anyone have a itchy rash over the vein the chemo was given?? I am in a really bad place right now. I just brought my mother home under hospice care. She has endstage alzheimers. She has difficulty swallowing. She doesn't want tubes, etc.. She can't eat or drink anything and is mostly "out of it." She may have less than 10 days.

mmontero38's picture
mmontero38
Posts: 1523
Joined: Dec 2007

So sorry you are having a bad time. There is enough stress battling cancer and must be very tough watching a loved one whither. Sending you many cyber hugs and prayers your way. Hugs, Lili

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

I am so sorry that you are going through both of these awful experiences at once. I cannot imagine being faced with both and admire your courage and strength. My mother died of emphysema last year. Being with her in her last days was so incredibly painful. Yet I was grateful to be there for her and to help make her passing as peaceful and pain-free as possible. I hope that knowing you are easing her transition and surrounding her with your love will give you some comfort in these days. Please keep in touch and let us know how you are doing. We are here for you.

rjjj's picture
rjjj
Posts: 1826
Joined: Jan 2009

Celinelvr, I am glad that your blood work and scans were good. I know how emotionally hard it is to watch your mom go through this. I also took care of my mom for years she was stricken with cancer and they sent her home in the end. Your presence even if she doesn't know it she will feel it and be comforted by just having you near. I also work with several alzheimers patients and i love them all. I know how hard this must be for you. Life just isn't fair sometimes..but you know that your mom would be more concerned with you fighting. Your mom would want all of the best for you. and so do we. So please keep posting us. We will be with you every step of the way. Your mom i believe will be in a much better place in the comforting arms of the angels. I am praying for you both.
God Bless
Jackie

mgm42
Posts: 494
Joined: Nov 2007

My heart goes out to you because I experienced the sudden loss of my father in between my chemo with cytoxan/taxotere plus neulasta shots and my radiation treatments. My dad was in hospice care for only 24 hours after six weeks of suffering with a brain injury from a fall. I know your plate is extremely full and your heart is breaking. I'm so sorry for your situaion with your mom. As for side effects, I had everyone in the book - but I'm here to tell you I finished my last chemo treatment on April 19, 2008 and I'm feeling GREAT and back to normal, whatever my normal is. You'll cope with everything - you WILL get through it. This site will help - the people here are wonderful. Hang in there. Hugs and prayers, Marilynn

Chrispea's picture
Chrispea
Posts: 123
Joined: Oct 2009

I had an itchy rash when I received Taxotere. It appears about 5 days later on me as a red mark, then looks more like a burn. I put Hydrocortizone cream on it.

This last time, I told the nurse about it, that it didn't happen the first time, but the second and third... the difference being that the first time, they let the regular saline drip along with the chemo so it diluted it a bit on going in, which I think prevented the injection site burn.

So, on my last taxotere treatment (last Wed) the nurse ran the chemo with the saline, and so far, I'm not noticing anything.

It goes away and doesn't seem to scar.

kb020
Posts: 1
Joined: Mar 2009

Hi there, hope your feeling better. I am also taking taxotere and cytoxan every 21 days. I had my first tx 14 days ago. I too had the pounding heart which I called my dr about and she said it was from the steroids. As soon as I finished those the symptoms went away. The only other problem I had was joint pain, terrible pain. That also was short lived and she said caused by the taxotere. I hit my low point at around the 10th day with very low wbc counts and chills and fever. That too has past and they said I will need the Nuelasta injection b4 the next tx. Keep a positive attitude! Take Care.

Joycelouise's picture
Joycelouise
Posts: 493
Joined: Nov 2007

I am convinced that, for me, chemo like Taxotere affected my moods. Big time. I became pretty depressed and dispairing. I tell you this not to scare you, but support you. If you feel like you "can't handle" things emotionally, blame the chemo drugs and not yourself. You are indeed doing the best you can and the drugs are just wiping out some of the feel good chemicals in our brains (along with all the true stresses of TX). Love yourself through it, forgive yourself your crying spells. Laugh when you can at the troubles...don't take them to heart. My husband came up with the knickname kimosabe, (chemo-sobby) for me and we used to laugh at that a little when I got down. Always remember, you are feeling the effects of chemo in your body, not cancer. The brain has a way of panicking when it combines fear of DX and symptoms of chemo, even thought they are symptoms of the cure!
I wish you the best through these days. Love, Joyce

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

I can attest to this, too. During my "bad days," I really despair, thinking that the cancer has come to take my life, even though I know it is the chemo. Those are the days when the dark thoughts are all prevalent and you can hardly believe that this ordeal will end. But then, days pass and you feel better and, lo and behold, become optimistic again. Once you get used to your cycle and how you will feel physically and emotionally, it is somewhat easier to handle.

So sorry to hear about your mom. It must be so difficult to go through cancer while also taking care of a loved one who is in the final stages of life. You must be a very strong person. Hang in there. We are here to lend an ear at any time.

Mimi

Ltalcott's picture
Ltalcott
Posts: 119
Joined: Mar 2009

I love it!

Like most of you have reported, I cry at totally unexpected things or at nothing. My husband keeps asking me what's wrong, what's wrong. He so wants to be able to fix everything for me. If only he could.

And so far, I haven't had any treatment except for the initial surgery--no drugs to mess up my psyche at all! It's all in my head (and I don't mean imaginary!)

Hugs,
Lisa

EveningStar2's picture
EveningStar2
Posts: 494
Joined: Jan 2009

I think what starts the cycle in your head is the words "you have cancer". That is enough. I have had a lumpectomy and 27 of 33 radiation treatments. I'm getting better about crying at the drop of a hat but it doesn't take much to set me off. Hubby is realizing that he can't fix it and that I'm not going to be magically "OK" at the end of radiation. But given time, I am getting better. This nasty beast is now part of our lives and can't be evicted so we have to come to some sort of peace with it.

Maureen

jojo elizapest's picture
jojo elizapest
Posts: 122
Joined: Mar 2009

Started chemo on Feb. 17th also with Taxotere and Cytoxan...day later Neulasta. Also taking an oral medication Tomox... Anyway, it is day nine and finally no nausea during the night. Woke up and discovered this board...feeling like I have a whole new bank of support behind me. I love the kimosabe reference! I'll be back..

rjjj's picture
rjjj
Posts: 1826
Joined: Jan 2009

I am so glad you found us. You will have much support and answers here. This board has been so good for me. Are you also going to have radiation? That is my next step after i am done with Chemo. I am going in for my 4th treatment March 11, my hubbies birthday. One more down and 2 to go. It gets better because you kinda know what to expect and how to deal with the side effects. It is not a picnic but you will do it!! and survive! My best to you and welcome to the group (as Lili says) that none of us wanted to join. Keep in close touch with us and you will be amazed at the courage and compassion that our sisters in pink have.
God Bless
Jackie

libmama
Posts: 5
Joined: Apr 2009

Hi. My dr. was going to put me on taxotere and cytoxin, as well as herceptin. She changed her mind and we used taxotere, carboplatin and herceptin. I had no side effects at all except hair loss.Last treatment in Feb, have quite a bit of hair now. I think this combination may just be a little easier on one, from what I got from other patients in chemo with me. No neulasta, either. I was very blessed, my treatment was easy on me. Now, I'm scared to death about what to do next. Seems like I can't get a straight answer from the drs., and side effects are so different from person to person that I don't know what to do. By the way, this is my first post, you guys are GREAT.

beesharpe's picture
beesharpe
Posts: 9
Joined: Apr 2009

I have had both chemo drugs I will be receiving my 5th treatment on April 9th.My side effects are some tiredness,heartburn,legcramps and I lost my hair right before the 2nd treatment.One good thing was that i still have my eyebrows.

celinelvr
Posts: 30
Joined: Mar 2009

Hello sisters. I have been though only half of my chemo but I feel as though I have been on it longer. I have been very emotional. I don't know if it is because of the chemo or all the things I have to deal with right now,(My Mom's death, hair loss, general UUGGHH!) My husband is happily ignorant of my emotional/chemo spells. I think he doesn't know what to do so he lets me cry it out myself. Sometimes I just go bed and "take a nap" to get it out so he doesn't see me.
In addition to all my above side effects I now have leg cramps this time as well. I ended up with sinus, a sore throat, hoarseness, and what felt like bronchitis. I have a really hard cough that hurts my chest and throat. My wbc was up (?) anyway, Onc gave me a strong antibiotic 5 days ago. I think it is all going away. Just in time for my next chemo 4/7.
Milly

rjjj's picture
rjjj
Posts: 1826
Joined: Jan 2009

You have had so much to deal with..your moms death and all the emotions that come with this plus the emotions of losing your hair. I have been keeping you in my prayers. There will be a time when things start to get better, and you will go on to find joy in life again. We will be at the end of the tunnel shining our flashlights for you!

My throat gets sore after treatments and I gargle with baking soda and salt..also i drink lots and lots of water and this seems to help. I hope the antibiotics work and that you are feeling better. Best wishes on the 7th. let us know how everything goes.

God Bless
Jackie

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

I know these posts were done a year ago so I don't know if all of you are still reading these. I am hoping I do not have some of the side effects that you all describe here. I start on 3/15/10 with my first chemo. I wonder how you all are doing now about a year later? Do you still have any side effects from the chemo? How well do you think it really worked? I was given an extra 9% less chance of recurrence with the 4 rounds of taxotere and cytozan and everyone I talk to from my doctors to my support group tells me to do it without hesitation so I am hoping it is worth doing taking the chances on the side effects.

Lorrie Balentine

mary s
Posts: 10
Joined: Feb 2010

I just finished my first chemo infusion on friday, feb . 25th. No nausea or vomiting but felt a little giddy during the infusion. I did get high from the steroids given during the infusion and it lasted at least 24 hours....the worst for me was the muscle aches and joint pains today and last night. I looked this up and this is a side effect of the chemo on the 3rd-5th day. God! I hope it doesn't last any longer than this! I tried ibuprofen to relieve them but it wasn't as good as I thought it would be---these pains kept me up most of the night. I had Percocet from the surgery (didn't have to use it) and that has helped. I think the Neulasta shot that I got on Monday made some of these pains worse. Is anyone out there getting prophylactic antibiotic meds while on the chemo? I am on Cipro 500 mgm twice a day for the first ten days of each treatment cycle. I really appreciate all of the comments on this blog site---helped me so much to know that others had gotten through this. One down, three to go!

Chrispea's picture
Chrispea
Posts: 123
Joined: Oct 2009

Ask for more steroids. I had severe bone and joint pain, and they gave me steroids to last 8 days, and it helped me a lot.

mary s
Posts: 10
Joined: Feb 2010

Hi Balentine---I have been having second thoughts about all of this with the chemotherapy----my biopsy was grade I tumor, no ducts involved, PER + and no HER---about as good as you can get. However, my oncologist sent the tissues off to a california lab, OncoDX, and more tests showed it was mildly proliferative. I have a 14% chance of recurrence without the chemo within ten years....I am 67 years old and wonder if I really expect to live 10 years or have something else get me??? Without the chemo, chance or recurrence is 5% and that pretty well answers the question.....who wants to deal with bone or brain cancer chemo when they are in their 70's? He said when it came back, he would not be dealing with breast cancer---it would be systemic. I, too, did not want to be worrying about recurrence every time I went for tests. I am a retired nurse and I remember the way chemo used to be ----pretty awful. Things have come a long way and for 4 treatments, we can get through this (wonder if I'll be saying this when my hair falls out! :>) I am glad I am not working anymore---don't know how the working women handle this. Be careful of the infections!

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Dear Mary S,
To do or not to do is a decision only we can make. I am not sure what I would do if I were 67 and they told me the chemo would only give me another 9% chance that the cancer would not return. I may not decide to do it then. Most of the people on my mother's side of my family died in their 60's or 70's and I do take after that side with my high blood pressure. It is a very difficult decision because you just don't know how your body will react to the chemo. I would hate to start the chemo and then have to stop because I just could not deal with the side effects or pain but as I get closer to the start date of my first treatment which will be 3/15 all I can do is close my eyes and ask God to be with me through this as He has through my life and carry me through it....giving me His strength when mine is gone. It pretty much feels like jumping off of a dock in the dead of winter into icy waters because the dock is about to give out. You just have to pray and trust God to catch you and carry you ashore.
Lorrie

mary s
Posts: 10
Joined: Feb 2010

Hi Lorrie---thanks for the reply---I'm having a lot of joint pain and muscle aches and don 't know if these will go away as I progress after this first treatment----Keeps me up at night and I take percocet and that helps. I'm trying to stay away from the narcotics...use ibuprofen during the day. The funny thing---I never used a pain pill after the surgery but nmow this

mary s
Posts: 10
Joined: Feb 2010

Hi Lorrie---just reporting in to let you know the side effects lasted 4 days and then cleared....I've had 4 great days and feel like I did before. I hope your bad days won't last as long as mine did. At least I know what to expect. I will be thinking of you on Monday and praying for you to get through the first 'blast' of chemo. At least we don't suffer with the nausea and vomiting....load up on the pain pills so the pain doesn't take over so soon. Good luck! mary

Youcandothis
Posts: 79
Joined: Mar 2010

I had a lumpectomy, chemo, then radiation. I kept a detailed record of my reaction to chemo, would spend two days barely moving, then start to slowly improve till felt almost normal after 18 days or so. My reaction to first dose was so strong onc reduced it by 10%, which made a huge difference. Was also hyper with steroids so cut dosage, work with your dr to smooth things out they can't know what each individual body will do. A year later I'm fully recovered, although I think my reserves are not completely restored. But I'm getting there and you will too. Good luck!

mary s
Posts: 10
Joined: Feb 2010

thank you for the words of encouragement---muscle aches are gone now but now I have a couple of mouth sores and the mouth burns seriously. I used an old-fashioned remedy that I knew as a nurse but had not tried on myself----desperate, I tried it. It worked! A little baking soda in a glass of warm water---relieves the problem for awhile.

gurna
Posts: 4
Joined: Mar 2010

I am done with chemo. Had 4 rounds of Taxotier and 4 of Adromycine and Cytoxin. Your side affects sound pretty typical. I lost my hair starting on day 12. Sickness did vary from dose to dose. But overall I had way more good, and really good days than bad. Best wishes to you.

Chrispea's picture
Chrispea
Posts: 123
Joined: Oct 2009

I had 4 rounds of Adriamycin and Cytoxin for my first chemo, and my side effects weren't too bad. Achy muscles and a bit of nausea. I'd get chemo Wednesday and by Sunday evening I was OK.

Now with Taxotere, I think I got every stinkin' side effect listed, and it's like clock work.

I just had chemo yesterday the 3rd, so I know that on Saturday the 6th, my toungue and roof of my mouth will feel like I fried it with some scalding hot soup or coffee. My first time, I literally couldn't stand up and had to crawl up my steps... my joints ached so bad that first time I felt like I had been stretched out on a rack, and it lasted all day. I basically stayed in bed that entire day. Nothing helped, it was terrible... but I called the onc nurse and they increased my steroids so that I take them for 8 days now, and it hasn't happened again, thank God. That first time, too, my legs and arms felt like they were falling asleep. I think the additional steroids have helped with that, too.

I have the painful nails, and the lifting, diarriha, constipation, really bad indigestion... and like clock work, I know when they'll happen. I will get a headache on Monday the 8th ... I get the stuffy bloody nose, my sinuses will drip... oh the joys!

I also get numb lips. Chemo is cumulative, so this is making me super tired and I have to nap a lot. My taste buds will come back by Thursday the 11. Like I said, it's like clock work with me.

Everyone is different tho, and I'm in the 10-25% for the side effects I got. Most people only get one or 2. I'm just lucky I guess!

But, let me end on a happy note. My chemos seemed to go faster and faster as I neared the end, and yesterday was my last one... so hang in there... there is light at the end of the tunnel.

mary s
Posts: 10
Joined: Feb 2010

thank you, chrispea---your comments helped me a lot---I thought I was being a "pussy" about the aches and pains. they are gone today and so now I know how long they will last and what to expect and will be ready with the pain pills the next time--I already have arthritis in the knees and a rotator cuff problem in the shoulder and that seemed to set those problems off seriously. Numb lips, COLD fingers and feet, and constipation (a first for me in this lifetime) and the tongue and mouth problems like you described. I guess it gets worse, too----I pray a lot!

Aortus's picture
Aortus
Posts: 967
Joined: Jan 2009

I just randomly clicked on this thread because it looked familiar. Sure enough, there was a post from my own beloved Moopy23, dated March 4, 2009. Today - March 4, 2010, Moopy got her port removed. We're about to go out and celebrate.

You're going about this in the right way: keeping your chin up and paying attention to how the chemo affects you, so you'll have an idea of what to expect next time around. The ladies here will have lots of support to offer you, and helpful suggestions too. You *will* get through this. And the best part is that there's actually a life after chemo and rads and all that good stuff... and it's great!

Best,
Joe

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Dear Chrispea,
Just thought I would give you a tip on the mouth sores I saw somewhere else on this site. Use biotene mouthwash - you can get it at any pharmacy or you can also use salt and backing soda to gargle with before and after your treatments. I have been going through the posts and writing down tips to use for my upcoming chemo starting 3/15. I am going out this weekend and getting all the stuff I wrote down. They also say that since food will taste like metal or not taste very well, to suck on some lemons before eating and this will also help with the metal taste. I hope this helps.
Lorrie Balentine

carkris's picture
carkris
Posts: 4518
Joined: Aug 2009

i also read that chewing on ice chips during chemo helps.

Lynda53's picture
Lynda53
Posts: 210
Joined: Oct 2009

I have inflammatory BC, very rare (less5%)aggressive,invasive. FTR My rt breast was minor swollen, and 10 hours later it was 2x the sieze, red , hot and hard as a rock!)
Started chemo Oct1 20009
1-I could not have adrimycin due to discovery of a-fib, HR=130.
2-No troubles w/cytoxin.
3-Taxotere./taxol a whole other story, 1st was ok, 2nd infusion I stopped breathing, readmin ok, 3rd insfusion I stopped breathing, chemo stopped mastectomy moved up.
Well found desensitzation for allergies, I had to change chemos places, but they dilluted the tax, admin slowly, 1 on 1 nurse, ICU very expensive, BUT no reactions and my last treatment was yesterday!
At every infusion: I was given iv benadryll,nausea stuff,diarrhea stuff,steroids.
At home I also took stolll softener and post chemo pills for 4 days.
My issues, mostly being tired, minor joint pain, I take a non aspirin product for it, some stomach discomfort but I have a few hiatal hernias w/patch. Vision changes but advises to wait at least 2 months after chemo to get eyes checked esp to change scripts.
I followed all onco advice, rested, and yes I did work lots of hours, hydrate,proper food intake, lots of veggies.
I did go to Look Good Feel Good from ACS a few weeks ago,I'm not a make up girl, but for those that are GO! Nice $200 bag of makeup.
I did not shave my head, although I did cut it short, I did get a wig.
I di dgo to a social worker at my cancer center for all this crap. It was ok, got some anxiety issues to deal w/and sleeplessness, and who knows! This too shall pass!
I will go on lovinox the end of the month, have the mastectomy Apr 2 (if all the Dr's say GO) and follow up rads a6 weeks and w/aromasin for 5 years.
PEACE

heidijez's picture
heidijez
Posts: 441
Joined: Mar 2010

i also have inflammatory breast cancer! not many people have even heard of this! i thought the whole cancer thing would be more devastating - not that this is a walk in the park by any means. i am tired all the time, my eyes water and blur constantly, and yet, i am still working full time (have no other means of support - temporary disability only pays 60% of my salary - impossible to live on than)

each step of the way, i am finding the unknown is worse than than actually dealing with it, so have become an extremely strong woman along the way.

my mantra is also, this too shall pass!

laurissa's picture
laurissa
Posts: 773
Joined: Sep 2009

I had the same for 6 rounds. Had the same effects as you. No vomiting. I didn't have the mouth sores, just the metal taste. I also had bladder infections with burning and incontinance. I went through alot of underpants. Lost taste but not appetite. It was just a strange feeling, hard to describe. Out of body is a good description. Remember-it's temporary.

carkris's picture
carkris
Posts: 4518
Joined: Aug 2009

Exactly out of body. I was one that fell off the curve. lots of digestive issues, keep on the stool softeners, because I ended up with a rectal fissure and just had surgery for it. I had diahrea and they said it was atypical but people here seem to report it. You do feel likeyou have the flu. I had 12 taxol, chemo on thurs, felt good thurs and friday, like crap on the weekend. It was better than AC. I always hate to post because it sounds so negative, but it you recognize the symptoms you can take steps to counter balance them and I did get through. and so will you!!!

mary s
Posts: 10
Joined: Feb 2010

As I said before on this post, I had my first treatment on feb. 25th and the Neulasta shot on feb. 28th. I was fine over the weekend between these two events but then side effects galloped up on me---new ones every day! First, the nasty muscle aches and joint pains---then TIRED, then mouth sores---these all added up and I felt nasty for 4-5 days. then, all of a sudden, everything left. I still have the metal taste in my mouth but I'm going out for a walk today---used to walk 2-3 miles a day but haven't in months since tagged with this diagnosis. It's time to get out and the weather is nice here in Missouri. I don't expect to get back to the former vigor yet but I'll try for a mile today. since I know the duration of these side effects, I will be ready for them next time. Next dose is mar. 17th---celebrate St. Pat's Day in a strange fashion. I still haven't lost my hair yet but my eyelashes are thinning...ugh!

New Flower
Posts: 3938
Joined: Aug 2009

it shall pass. Never forget that most side effects are temporary and will gradually disappear after completion of your treatment. Everyone has individual reaction to the Chemo drugs, often there is cumulative effect. Do what you can and listen to your body.
Wishing you the best,
New Flower

Susie1098
Posts: 1
Joined: Mar 2010

Has anyone had any permanent side effects from Taxotere? I start it on Monday (3 rounds every three weeks). I've finished 33 days of radiation and have done 11 other rounds of chemo (VP 16 and Cisplatin). I've already lost all my hair (still have my eyebrows and lashes although they seem a bit thinner--and my leg hair--wish that would've gone!). I've read a lot on the side effects of taxotere and I've seen that a lot of people have permanent hair loss, nail loss and permanent neuropathy. I just don't know if I can go through this if I'm never going to have my hair back. I'm young and I'm scared to lose everything that makes me feel like a woman. Please let me know if anyone's had any long-term side effects.

--Susie

Balentine's picture
Balentine
Posts: 393
Joined: Feb 2010

Hi Susie,
The biggest thing to remember is that the side effects are different for everyone. I had one treatment so far of cytoxan and taxotere and had no reactions and no bad side effects other than yucky mouth and a few head sores that both went away within 8 days after the first treatment. I am back to my normal self halfway through the 2nd week after first treatment. The doctors and nurses will be monitoring your reactions to the chemo and will change it if they feel it is not right for you. Stay positive, pray and trust God to get you through this.
Lorrie

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