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Dr. Axel Rolle for lung mets

sarcomasister
Posts: 7
Joined: Feb 2009

I've been hearing lots about Dr. Axel Rolle in Germany who has resected many lung mets. Has anyone had any experience going there?

ChrisRu
Posts: 1
Joined: May 2009

HI, I am from Germany and I have multiple mets in the lung... around 30 each side (Parotis). I have surgery by Prof. Rolle on Wednesday 27th May. His method looks very promising. Hit me up if you are looking for further info (will be responding in 2 weeks when I am back..)

Chris

Iwona
Posts: 1
Joined: Jul 2009

Hallo Chris!~

meine Mama hat lungenkrebs (adenocarcinoma), eine bekannte von uns aus deutschland sagte es mir uber prof. Rolle... alle arzte sagten, dass dieses krebs man nicht operieren lassen kann... wir kommen aus Polen und wollen versuchen etwas mehr als nur Chemotherapie. wie lange muss man warten auf solche operation? wie kann man es tun- privat? du hast bestimmt telefon numer?
hilf mir BITTE...
hoffe Dir geht es gut. Grusse!
Iwona
e-mail: onka_onka@wp.pl

jess phillips
Posts: 2
Joined: Dec 2009

HI Chris, can you tell me how your operation went and what the outcomes were. My mother is travelling to Dresden tomorrow and I want some info, don't be shy any information will do.

Thanks

JEss

Jayne2
Posts: 3
Joined: Dec 2009

Hi. I would appreciate any information on Dr Rolle and/or treatment for multiple lung mets. I have done extensive research on the internet but would be very interested in personal views and accounts. My sister is currently awaiting confirmation from Dr Rolle on whether she is eligible for treatment. If so, she will then need to decide whether she proceeds with the laser resection or a clinical drugs trial. Does anyone have any costings of the treatment in Germany? Any help or advice would be gratefully received.

jess phillips
Posts: 2
Joined: Dec 2009

hi Jayne my mom is due hopefully to have the operation with Dr Roll eon monday she is in the hospital in dresden at the moment, so I will let you know how it goes. I believe it 11,000 euros per lung.

Hope this helps my moms blog is http://famouslastwordsjt.blogspot.com/

Thanks

Jess

Jayne2
Posts: 3
Joined: Dec 2009

Thank you Jess. My sister Alexis is flying out on Monday to have operation by Dr Rolle on Weds. Hopefully she'll be able to see you and your Mum. We don't live far from your Mum here in the UK so maybe they had the same type of NHS 'treatment' here!?
Hope your Mum's op goes well.
Jayne

CTONKS
Posts: 2
Joined: May 2010

Hi My name is Christine. I live in the U K. I have lung mets which at the moment are being treated with Radio Frequency Ablation in the U K but R F A has its limitations. I am looking for a different way of being treated if more appear.I am wondering how your sister got on with her operation with Doctor Rolle? What sort of treatment is it? Any information would be appreciated.I do hope your sister is well. Christine.

LdG
Posts: 3
Joined: Feb 2010

Hi Chris
My brother is in Brazil and has sarcoma synovial. He has mets in the lungs and the docs just asked him to wait a few months to see if the tumor does not return to his arm (primary).
They will only operate him if the tumor does not come back.
I had heard about a doc in Germany who I now believe is the one your mentioned.
Could you please share your experience and let me have the tel/address of the doc?
Many thanks for your help and trust you are doing well.
Bets wishes

Lucile

tom-in-ojai
Posts: 1
Joined: Dec 2009

I have a rare sarcoma (hemangiopericytoma) that has metastacized. In spring 2007 I went to Germany twice for two thorocotomies with Dr. Rolle and team - 30-40 mets on each side removed. A truly wonderful experience - his technical brilliance as well as genuine human kindness. Plus the whole German after-care experience, 3 weeks rehabilitation, excellent food (they packed a picnic basket for an outing to the lake) and caring staff. A high point in my journey with this disease. Hopefully FDA approval for his technology in the US soon, on solid organ tumors too.
Tom

LdG
Posts: 3
Joined: Feb 2010

Hi Tom
My brother is in Brazil and has sarcoma synovial. He has mets in the lungs and the docs just asked him to wait a few months to see if the tumor does not return to his arm (primary).
They will only operate him if the tumor does not come back.
I had heard about a doc in Germany who I now believe is the one your mentioned.
Could you please share your experience and let me have the tel/address of the doc?
Many thanks for your help and trust you are doing well.
Bets wishes

Lucile

lesslie's picture
lesslie
Posts: 6
Joined: Feb 2010

hey Lucile, please tell your brother that he does not have to wait so many monthes! these doctors are crazy or they do not know anything ! please send your brother somewhere else, if there are no right hospitals in Brazil, go in the USA or Europe, if you can! and there your brother will be really good cared.

suefromva
Posts: 2
Joined: Apr 2010

I read on another site that Dr Rolle wouldnt treat until the primary is gone...yet the surgeons seem to want to delay surgery on the Primary until the mets are gone. cart and horse problem. Do you know Rolle's position on that?

yacov
Posts: 1
Joined: Oct 2013

To tom-in-ojai

Hi:

i read your comment of Dec. 30 2009 and would like to hear from you further details on yourself since that date, did any of the nodules recur, etc, my wife has the same medical condition of hemangiopericytoma which now metastasized to lungs, and we are thinking about Dr. Rolle for surgery.

Please respond. Thanks

 

 

tdch
Posts: 10
Joined: May 2010

My husband has epithelioid sarcoma in his right hand and it has spread to his lymph nodes and lungs. Anyone had this terrible cancer or treatment for it? We live in the UK but i have heard a lot about Dr Rolle in Germany and am interested in the removal of lung mets with laser treatment

JNR2011
Posts: 3
Joined: Aug 2011

My husband has Epitheliod Sarcoma. It began in his upper right thigh. He was diagnosed on 11/09 and had surgery for removal of the tumor on 2/10. On his second post-surgery scan we had mets to the lungs on 11/10. He was given Doxuribicin with the hopes that the tumors would shrink by 15% to operate. It shrunk by 50%. He had surgery 2/11 (you can tell that this is a yearly thing with diagnosis and surgeries). On his 2nd post-surgery scan last week, the diseased has progressed and spread through his lungs. Nowhere else, thank God. I will find out tomorrow what the next step will be, but I am sending over my husband's scans to Dr. Rolle immediately. I hear amazing things about him.

JNR2011
Posts: 3
Joined: Aug 2011

My husband has Epitheliod Sarcoma. It began in his upper right thigh. He was diagnosed on 11/09 and had surgery for removal of the tumor on 2/10. On his second post-surgery scan we had mets to the lungs on 11/10. He was given Doxuribicin with the hopes that the tumors would shrink by 15% to operate. It shrunk by 50%. He had surgery 2/11 (you can tell that this is a yearly thing with diagnosis and surgeries). On his 2nd post-surgery scan last week, the diseased has progressed and spread through his lungs. Nowhere else, thank God. I will find out tomorrow what the next step will be, but I am sending over my husband's scans to Dr. Rolle immediately. I hear amazing things about him.

JNR2011
Posts: 3
Joined: Aug 2011

My husband has Epitheliod Sarcoma. It began in his upper right thigh. He was diagnosed on 11/09 and had surgery for removal of the tumor on 2/10. On his second post-surgery scan we had mets to the lungs on 11/10. He was given Doxuribicin with the hopes that the tumors would shrink by 15% to operate. It shrunk by 50%. He had surgery 2/11 (you can tell that this is a yearly thing with diagnosis and surgeries). On his 2nd post-surgery scan last week, the diseased has progressed and spread through his lungs. Nowhere else, thank God. I will find out tomorrow what the next step will be, but I am sending over my husband's scans to Dr. Rolle immediately. I hear amazing things about him.

BarryOz's picture
BarryOz
Posts: 3
Joined: Dec 2011

Hi there,
many thanks for your posts in August which are the most current I am able to find. As I currrently have several small lung mets only, after removal of the primary kidney cancer, I would appreciate any news of your husbands progress and outcomes of your experience with Dr Rolle towards a visit in the near future.
Many thanks, Barry in Australia.
( You may wish to check my profile for a report on my success on a current US/Australian trial )

danileaming's picture
danileaming
Posts: 1
Joined: Dec 2012

thats great about your husband, im 32 mother of very young children and silimar diagnosis, 10cm mass on gluteus muscle and several in both lungs could you update me on your husband as this is very rare and im scared, i also am stage 4

tdch
Posts: 10
Joined: May 2010

Hello did you find any information on Dr Rolle and how are you doing one year on?

CTONKS
Posts: 2
Joined: May 2010

Hi has anybody got information about Dr Rolles treatment for lung mets. I would be interested to hear from anyone that has had the treatment. Does it work? How does it work? Any information would be greatly appreciated Christine.

olgaT
Posts: 5
Joined: Jun 2004

Did you guys find the info about Dr.Rolle you've been looking for?
My son is his patient since 2005 and he had 2 rounds of the lung surgeries there in Germany - he had very multiple lung mets and our surgeons in Canada could not help him, but Dr.Rolle could and my son is surviving with the very good quality of life after he had more then 100 very small mets removed since 2005.
If you need more info, ask me.
To find dr Rolle contact him directly his info on the surgeons network is here
http://www.ctsnet.org/home/arolle
he is great and their hospital is one of its kind, they only do lungs there.

marratu
Posts: 1
Joined: Jul 2012

Hello I read your post and I hope that your son is doing well! I am in contact with Dr. Rolle and planning to have surgery with him in Germany. Any information you could give me I would greatly appreciate -- what was the procedure, how was the recovery, etc.
I also was curious if aside from the surgery your son had done any other treatments for lung mets , chemo, or immunotherapy or other alternative therapies. I think you in advance for your consideration and your time. I hope you and your family are well and happy. Sincerely, Maria

medstudent103
Posts: 1
Joined: Feb 2014

Hello Olga, was nice to hear about the success of your son's surgery with Dr. Rolle. How is he doing these days? My husband is considering Germany as an option but was wondering if you wouldn't mind sending us some info on your son's procedure, recovery and how he doing since - is he disease free so far? This is a stressful time for us so any info we can gather helps us make a wiser decision on what we should do. 

 

Hope to hear from you soon.

Selina Meyer
Posts: 3
Joined: Jan 2013

I am looking at any information I can get on Dr. Axel Rolle in Germany.  My husband had a 32 1b sarcoma tumor removed in Dec. and has spots in his lungs.  I was wondering about the procedure and any information I can get on Dr. Rolle.  I see some information from a few years ago but nothing current.  Can anyone help me??

Please feel free to email me at 1soonerfan13@gmail.com

 

Selina

 

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