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DFSP

kmw1115
Posts: 2
Joined: Feb 2009

I've just been diagnosed with DFSP through a resection of a tumor located on my right hip. I'm 19 years old and a cancer survivor of a rare brain tumor which is now in remission. My next step is to have the MOHS surgery in about 1-2 months to let the initial surgery heal. Can anyone give me any information about their treatment and what questions I should ask my doctor.

Christofer

diosel
Posts: 2
Joined: Apr 2009

WELL I HAD THE SAME THING DFSP BUT WE WENT WITH SURGICAL SURGERY AFTER THE THIRD SURGERY WE GOT NEGATIVE MARGINS AND THEN I HAD A SKIN GRAPH DONE THE SKIN GRAPH IS THE MOST PAINFUL THING IN THE WORLD THERE IS ALSO MEDICINE CALLED GLEEVEC I WAS TOLD IF YOU HAVE ANY OTHER QUESTIONS EMAIL ME AT DIOSELRODRIGUEZ@GMAIL.COM ALSO THEY HAVE TO SEE IF IT HAS NOT SPREAD CT SCAN, BONE SCAN AND A PET SCAN GOOD LUCK

she150
Posts: 3
Joined: May 2009

I have just been diagnosed with this growth on my shoulder. I go on 06/02 for mohs surgery. This growth was biopsied in 2000 and was listed as a dermafibroma but changed to cancer and I do not know for how long.

It appears from some other posts that I will need to get a oncologist. I currently have a dermatologist who is very experienced in mohs.

Please let me know your experiences and anything that I should ask or be aware of.

Thank you for your time.

Sheila

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