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survivors of Terminal Stage 4 lung cancer

Stardust1
Posts: 44
Joined: Jul 2008

Dear Members,
Please let me know if there are ANY survivors out there with Stage 4 Lung Cancer, (Terminal)taking radiation.

God Bless All

Stardust

fish49flea53
Posts: 2
Joined: Sep 2010

The prognosis is not good at all. My husband had the same stage 4 small cell cancer. It's devastating news. My husband only lasted 4 months because he did not have the fight in him to live anymore. He wanted to die so he got his wish. If you have a good attitude and a fight to live attitude you will live longer. How much longer i dont know. Keep up the good fight and don't let the doctors tell you any different.

btill48162's picture
btill48162
Posts: 5
Joined: Oct 2010

My step-dad, who was diagnosed with stage IV NSCLC, is going on 5 years. He was diagnosed in February of 2006 and has been fighting this disease since. During his on-going battle, he has amazed the doctors and showed them that as long as you have the will to live then you can. The doctor he was seeing found out that he too had cancer so he is gone doing treatments himself now. So, my step-dad was transferred to a new doctor, which is terrible. He basically saw him once or twice and then after finding numerous, very small, brain tumors, referred him to ho****e. My mom and step-dad were sooo very confused and accepted ho****e care. Our family refuses to give up and so does my step-dad. We believe that the God has let him stay with us this long because He sees that him nor our family are ready for him to leave us. When he went on ho****e care they basically gave him 6 months to live. We don't listen to that considering that when he was first diagnosed the doctor gave him up to 2 years. Now look at us, we are going on 5 years with hopes of many more. Just pray to God for every day that he gives you and show him that you are not ready to give up. Start living life as if today is your last. Something most people take for granted!

DBST67's picture
DBST67
Posts: 5
Joined: Jun 2010

I am in 4th stge now, originally dx in 09/2004 stage 2, had surgery of top left lung, recurrence October 2007 stge 4, was told had only 18 mos , still going strong today. was stable with the use of Alimita chemo drug and God. Went off chemo in 02/09, cells were stable...went back on chem in 04/30/2010 for 6 cycles..quality of life is good, able to travel with cancer in both lungs. will do cat scan in June 2010 to see status. You must stay positive and not give up hope, trust God that is the key. DO NOT LET NEGATIVE THInKING OR NEGATIVE PEOPLE CONTROL YOUR MIND, BECAUSE THE MIND IS A BATTLEFIElD OF WHAT IF'S AND WHEN, GIVE THAT TO GOD TO RESOLVE.

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

This is just what I needed to hear today. I am starting chemo on Friday and find fear is trying to overcome my faith... I pray for the best for you, AND me!

DBST67's picture
DBST67
Posts: 5
Joined: Jun 2010

TRUST GOD, YOU AND YOUR FAMILY WILL GET THRU IT, IF YOU THINK POSITIVE AND NOT LET NEGATIVE THOUGHTS CONTROL YOUR MIND. GOOD DAYS AND SOME BAD DAYS, BUT THE SUPPORT OF YOUR FRIENDS, FAMILY WILL GET YOU THRU IT WITH PRAYER. MY HUSAND WILL NOT ALLOW ME TO THINK NEGATIVE. HE IS AN EXCELLENT CAREGIVER. I THINK HIS FAITH IS STRONGER THAN MINES, HE PLANS FOR THINGS YEARS AHEAD. REMEMBER GOOD DAYS AND SOME BAD DAYS NOT FEELING WELL, BUT IT WILL PASS. EVERYONE IS IN OUR DAILY PRAYERS WHO HAS BEEN TOUCH MY CANCER AND OTHER DISEASES.

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

I found this scripture today: Matthew 9:22. We have to remind ourselves those same blessings are available to us in our day too. I think you are one sweet lady, and lucky (like me) to have the support of a wonderful husband.

BrendaRae
Posts: 20
Joined: May 2011

The words you wrote are the most important words/thoughts to keep in mind during a time like this. My husband has lung cancer and 1 small spot on his liver and a few even smaller spots on his brain-they are spots not lesions, etc. He has begun radiation and will be also receiving chemotherapy. As you could imagine all I got from the doctor was a hurried more than unsympathetic and rude "well we found this-it looks bad- yadda yadda -you knows what that means and you need to do this and so forth." Yes I cried; I am human who would not of and it was even worse because of the way it was presented to me and it was over the phone. My poor husband wasn't even told anything and had to hear the upsetting news of what I had to hear from me and boy was he POed! I said "he said you are not going to make it!" He replied "oh he said I'm not going to make it?" And with the vagueness and rudeness involved he was even more hot under the collar. I mean it seemed like they have already put the nails in a coffin for him and was going to simply toss out at their earliest convenience.

But, even after hearing that news I absolutely refused to accept it and not because of being in denial but because I am a firm believer that you never say die nor is anything impossible with the hands of the Lord. What I think is hard for people to comprehend is the influence that God plays in our lives, and it an influence we cannot see with our eyes and often we will have to wait periods of time before anything of divine power is revealed to us, and that is excruciating, but God works in his own time-not when we would like him to.

What was uplifting is that after all of the above had transpired and we were left sitting feeling "well I guess that is then" I was numb because during this whole time and even know I am having to deal with this on my end entirely on my own. Me and my husband talk by phone he calls from his room and I no his heart is tearing out for me. I have tried to hide my anguish from him because I don't want anything to upset him. When all this started I did go the Jesus and ask for the healing of my husband, and I made a pact with Jesus to fully put aside my needs (as far as being with my husband or emotional ties where is concerned were relevant); in others words I stepped aside so he could get what he needed.

But to go on....as I sitting here at the lowest possible point in my life the telephone rang-it was my husband-he said "I have some news for you that I know will make you feel better." He said that all of a sudden and plan of action was developed to begin treating his illness and it was one that included all possible options. Now less than ten minutes ago it was utter doom. It is my belief that Jesus stepped in and said "Hold it there just one minute-who are you to take it upon yourself to discard one of my children in such a manner" and it was at that instant that the medical teams were "inclined" to change their outlook and get into motion. It has been a non stop effort ever since.

For someone who is having to endure what my husband is enduring he sounds remarkably well. I hate to say it he is better shape than me because I go from waves to utter positivity and then will have moments when old Lucifer will try to grab a hold of me and use my weakness against me. But I know even so God is not mad at me for feeling any such way and he does not want me to over tax myself. It is still hard though, I mean you have all these being said buzzing around you and you can't help but to swoon from it all-you wouldn't be human if it didn't.

And my husband has told me that under no cir***stances is he giving up and I asked him not to-and he said he is not. On the first day or two he was in the hospital I had found out by chance my younger sister passed away earlier last year. What a whammy. I hesitated sharing it with my husband on the phone because as I said I didn't want to do anything to upset him and take away his focus from where it needed to be. But a voice said to me-tell him and I blurted it out. Then I said "everyone is leaving me!" He popped right back and said "What? I'm not leaving you baby!" Of course I bawled like a baby.

I am still going through my motions as I expect I will until he gets back home but even still and under all of this strain I just "can't help" but to feel I am panicking prematurely and that I am allowing human weakness topple me. All I know is that everything is possible when you hand something to God and ask for it in Jesus Name-it is written _If ye shall ask it in my name it will be done and I have believed that throughout and still do. Maybe I need to crawl into the tub and chill; I don't think I am having a full fledge nervous breakdown but I am having at least some degree of emotional upheavel. Just pray for my husband and for me to be able to get myself together.

mfarner
Posts: 6
Joined: Jun 2004

The fear is the worst part of cancer in my opinion. It can drag you to a crawl. Fear and Faith cannot reside in the same person. Do what I did. Tell every single doctor and nurse that God is going to heal you. Not might heal you but WILL heal you. (I have TONS of scripture to back that up too). And believe it or not I had an Oncologist laugh right to my face when I told him God will heal me. After he laughed he got a straight face and said, "you will not survive the next six months Mark). My wife went off like a nuclear bomb ( another story ) Its almost ten years of survival for me since they told me to go home and spend time with my two boys. God is good. You can beat this too.

Mark
rush@yahoo.com
farnerm@gmail.com

Dapsterd's picture
Dapsterd
Posts: 291
Joined: Jun 2010

Hello!......I am 47 yrs young, was diagnosed with 3b adenocarcinoma this June 1st, no brain/bone/liver mets, but 1/2 dozen lympnodes in chest areaboth sides and tennis ball size tumor in upper right lobe. Started chemo and rads same week, this week is my 5th week.

I Panicked at first diagnosis !! Looked at all web sites for prognosis and yes they were grim at best

BUT ----- Here is what I have discovered.

I HAVE NOT seen published from a reputable site, like ACS, NCI, etc..stats that are Later than 2006 OR 2007. I am told alot has changed since then, with drugs themselves, and how they are applied, when they are applied, frequency of treatments, radiation technology, etc....now curious to see how your individual treatment center figure their own stat because they can/may filter them prior to reporting to be more like your moms characteristic?...I dont know..technology should be there.

SO my Docs only said if I did "nothing", I may have 6 months or so, if I take to treatment, I have a year +++++++++++++++++++++++ !!!!! They said they are going for a cure on this one...so I am with them .....but.....always in the back of my mind I have a sense of something bad impending, but I push it out as quick as I can.

Also....Stats DO NOT tell a persons physical condition, life style (some still smoke, eat terrible, etc), age, other medical issues, etc.....so I and YOU...WILL MAKE A PACT NOT TO REVIEW THEM AGAIN !! DEAL ? LOL

Thanx, love ya all
Dave

shutt
Posts: 3
Joined: Dec 2011

OUR JOURNEY IS JUST BEGINNING ALSO. MY HUSBAND WAS DIAGNOSED WITH ADENOCARCINOMA ON NOV.23,2011. THE 'LOST' FEELING YOU GET WHEN YOU HEAR THE 'C' WORD IS SO OVERWHELMING! LIKE YOU STATED....THE STATS REALLY SUCK!! WE ARE GOING TO BE WITHIN THE 25% AS WELL. SOMEBODY HAS TO BE THERE...MIGHT AS WELL BE US!! WE WILL HAVE THE PET SCAN ON DEC.8. GAMEPLAN TO BE DETERMINED AT THAT POINT. HAS ANYONE EVER HEARD OF TAKING -CIMETIDINE? DAVE....I HAVE AGREED TO NOT EVER LOOK AT STATS OR BELIEVE A TIME FRAME THAT MAY BE PLACED ON A LIFE....... GOD DETERMINES OUR DESTINY!! BEST TO YOU

Dapsterd's picture
Dapsterd
Posts: 291
Joined: Jun 2010

I got up and out of bed at 5:00 am (est) this morning.

So for today, I have survived today longer than any person who got up after that time. !!!!

gkbruzik
Posts: 7
Joined: Jul 2010

I love what u just wrote, very simple but it has so much meaning. thank you for posting that

Boo76
Posts: 1
Joined: Aug 2010

I just joined this site and after reading all the comments I have some hope. My story: My former husband has been an alcoholic for 38 of of 58 years of life. After more than 20+ yrs of marriage, I called it quits. He continued on a downhill spiral and ended up incarcerated for so many DUI's (thank GOD none of them caused any personal or property damage). He is due to be released in January 2011. Unfortunately, he was diagnosed with stage IV nsclc - inoperable (spread through out his entire body). His family is in the dark about treatment since he is in a facility located in a different state. We do know that he did start chemo last week. A counselor from the facility contacted a family member advising that the prognosis was 6 - 12 mos. I am aware that no one really knows the timing. The counselor is also trying to get an early release due to medical reasons. I should also note that he has been a smoker since his early teens. Before reading all the information and hope that everyone on this website has shared, I was pretty grim about the outcome. I now have a lot more encouragement and will share this with his daughters. I pray that he gets out early so we can get him some quality healthcare. In hopes that being with his family and better care will give him the desire to be on this glorious earth. We are trying to obtain medical records so we are aware of the chemo treatment he is under going.

Blessings to all!

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

Boo, you really are a trouper to allow him back into your life and to be willing to care for him. I wish you all the luck in the world!
Be well, stay well,
stayingcalm

1976hdn
Posts: 4
Joined: Sep 2010

How is he doing with his treatments? I have a friend that was diagnosed with small cell stage 4 with no hopes of operation. Just wondering what to expect when the treatments start next week.

Thanks

GaryMCooper
Posts: 1
Joined: Sep 2010

Hello,
I am 51 and a Stage IV-A non small cell lung cancer survivor. I was diagnosed 12/8/2002 at age 43 as having Stage III non small cell lung cancer.

They began a thoracotomy the day after Christmas 2002 on my right lung and pulled out without removing any of the lung having found it was spread to lymph nodes and on trachea/esophagus and re-staged it as Stage 4A. I began combined aggressive chemo and radiation the beginning of January 2003 and after about 1 1/2 - 2 years of three separate rounds of combined radiation and chemo, I have now been in remission almost 6 years.

Due to the aggressive nature of the treatment and damage from a new chemo drug, I have been on oxygen 24 hours/day for about 6 1/2 years. The new drug also damaged my good left lung. By no means am I complaining about this, I thank God for putting the right medical professionals on my care and realize that without this aggressive treatment I would not be here today.

I can't believe that I am just now discovering this site - of course I didn't really search as much as I could have. I am searching now primarily because I am in the process of being evaluated for Lung Transplant. The hospital I am with does more lung transplants than any other in the country along with many of the more difficult ones. Having said that, they have not done one on a stage 4 cancer survivor.

So I am asking you all - are you or do you know of any lung cancer survivors who have later had a lung transplant - I'm curious of any stage but most curious of stage 4.

Thank you, and I wish you all continued improving health.
God Bless,
Gary

PinkyCorbett
Posts: 4
Joined: Apr 2011

Does anyone has a cooking guid for cancer patients. AS well as you, my brother was diagnosed on March 17 with lung cancer that spread to his brain. They did radiotherapy, then chemoteraphy with pills and he is doing all kind of natural diet. He changed his life radically to help himself. I am sure there is good days as well as bad, my sister in law is running out of ideas to cook for him, plus the nausea that he feels. He was taken back to the hospital today, because of not feeling good. We all pray, and be confident about. I will appreciate if someone has an idea of food to cook.

Thanks,
Maria

marianlee
Posts: 1
Joined: Sep 2011

Hi Gary,

I am so happy to hear that you have been in remission for over 6 years. This is awesome news.

My mother who is 55 years old was recently diagnosed with Stage IV non small cell lung cancer, specifically squamous cell carcinoma. She never smoked a day in her life and needless to say this news was devastating to her and to our family. It was discovered when my mother starting losing her voice and was coughing in June of this year and the cough became progressively worse. It wasn't until she was sent to the ER for difficulty breathing was when it was discovered that she had lung cancer and it had spread to her trachea which blocked majority of her airway. Her left lung had collapsed and she also had pnemonia. We've been told by our oncologists that it's inoperable given it's fairly extensive in her trachea, left bronchus and left lung and that it originated from the lung. She's had 5 days of palliative radiotherapy (very small dose to say the least) and was told to wait at least 4 weeks before they can assess whether or not chemo is an option for her and that's if the tumour has responded to radiotherapy. I just hate the fact that we're being put in a holding pattern for now. It seems they've already given up on my mom =( but of course we haven't!!

Recent CT, MRI and bone scans show as normal (so far) so it doesn't look like it has spread to other areas other than a small lesion on her right lung which is being monitored during her next CT scan in a few weeks. In reading your post, I understand the lung cancer had also spread into your trachea and was wondering what treatments you were given and where did you receive the treatments, since my mom's condition sounds fairly close to yours. Our oncologists have said that it's fairly rare to see it grow into the trachea. Were you also diagnosed with NSCLC squamous cell carcinoma? I would really appreciate your response and can be reached directly at marianng@rogers.com.

Keep fighting the good fight. My thoughts and prayers are with everyone here. You've all been truly inspirational to me and my family.

TO ALL: I've been reading all the posts in this forum and didn't find any others diagnosed with non small cell lung cancer, in particular squamous cell carcinoma. If I missed it, my apologies, but I was wondering what treatments and where you/your loved one had undertaken? Appreciate you getting back to me. Thanks.

God Bless,
Marian

UNBEARABLE's picture
UNBEARABLE
Posts: 23
Joined: Aug 2010

Has anyone been to Sloan Kettering? Have you had success?

HeartofSoul's picture
HeartofSoul
Posts: 732
Joined: Dec 2009

Sloan Kettering highly regarded and on same level as MDA. Try Vanderbilt

Vanderbilt-Ingram Cancer Center brings together the clinical oncology programs and the cancer research, education, and outreach activities of Vanderbilt University. It is a leading oncology treatment center that serves patients in Tennessee, Kentucky, across the Southeast and beyond

http://www.vicc.org/cancers/disease.php?name=lung-cancer---non-small-cell

Rosie22
Posts: 1
Joined: Sep 2010

Dear Members: Dad has been diagnosed with Stage 4 lung cancer. Looks like cancer is contained to one lung but due to his lung health, surgery and chemo are not an option. Radiologist gave option to start radiation just about every day for 6 weeks, or wait 3 months to take another PET and start Radiation then, if necessary. They opted for the latter. He is an 8 year survivor of Bladder Cancer and does not want to change his relatively normal way of life for now. Any thoughts on my parents decision?

Thank you

The_Rose
Posts: 1
Joined: Oct 2010

glad you are doing well bless u

dmunrohchs
Posts: 2
Joined: Nov 2010

On Friday my dad was diagnosed with lung to brain cancer (many spots one larger tumor). No biopsy yet, that's Monday. The oncologist came in and asked a bunch of questions, looked him over a bit and said "two weeks without treatment." He'd been falling progressively for a few weeks (loss of balance) and had been treated fro Pneumonia a few months ago, which I guess kept the docs from seeing the cancer in his lungs. He had colon cancer 5 years ago and was supposedly cancer free, though the docs think maybe they were mistaken. They talk like they might do OT with him and wait for radiation... doesn't that sound dumb? It does to me. If radiation will help with the pressure on his brain and might slow things a bit, shouldn't we do that first.

I'm really ready for some kind of straight talk. But every time a doctor comes in, I just get worse and worse news.

Thanks for the hopeful stories. We all are trying to be positive, but really, my dad is the most positive person in the room.

If you have a similar story, can you give me advice on things to ask for or about.

sanji123
Posts: 1
Joined: Jan 2011

God bless you. I will keep you in prayer. I think your post is brave and you should do all the things you want to do before it's to late. Sounds like you are being realistic, but stay positive.
Lung Cancer

dutifulldaughter
Posts: 1
Joined: Oct 2012

hello, newbie here.
Just wanted to recount my experience. My 86 yr old mum was diagnised with terminal small cell lung cancer Nov 2011. Chemo was offered as a pallitive measure only. She was told she had about 6 WEEKS 12-18 with chemo.
She has never smoked although must have been a passive smoker like so many of her age and has always been fit and healthy. Drs only discovered cancer due to routine chest x-ray.
She declined chemo and we all prepared ourselves........
It is now October and she is still going strong with only the normal aging symptoms!!!!
She seams to have put it out of her mind and dissmisses it when we talk about it. She refuses to go back to the oncologist.
We are all baffled...did the drs get it wrong? Has she cured herself?
Its a good thing, of course but also it was a terrible time...My brother pooled his savings to bring himself and 3 children over last christmas from new zealand,and everyone was told of mums iminent death etc etc.
Can anyone tell me this isnt unheard of....

lorisoto
Posts: 14
Joined: Aug 2010

Hello everyone - Just want to send out some encouraging words - I'm 39 diagnosed with Inoperable, Incurable, Termainal Stage IV Small Cell Lung Cancer in April 2010. I've had brain surgery to remove tumor in April 10, Radiation to my whole brain in May 2010, 1 chemo treatment from June to Aug 2010 tumors resolved both in my brain, lungs lymphnodes in left lung. Off from treatement from Aug to Dec 2010. Re-scanned MRI, PET and CT beginning of Dec. all the tumors came back worse then before. 1 in left upper lymphnode, 2 in lower left lung and nodules in middle chest followed by 3 new small tumors in brain. Started immediately with new drug Topotecan received new scans in Feb 2011 to see if Topotecan is working it's not. Was refered to Gamma Knife for brain Mets and the Gamma Knife doctors found 12 tumors on Feb. 24th, 2011. 6 on right side and 6 on left side of brain. 3 large mets over 1.5 cm. They were able to target 6 on the right and I'll go back in a couple of weeks for the other 6 on left side of brain. Very blessed that I was referred to Gamma Knife doctors I believe they have saved my life for now! My local oncologist and radiologist/pathologist were VERY WRONG on my brain tumors and MRI Scans. They said 3 and I find out I have 12?? I was not a happy camper when I found out. Gave the Oncologist a piece of my mind. Will no longer return to that Oncologist and or Radiologist place for my scans. This has taught me that I need to take responsiblitly and stay on top of everything. My LIFE is precious to me and unfortuntaley not to some of the medical professionals. I've learned some oncologists don't look at the bigger picture and just tell you what you want to hear or just follow the basic medical protcol. I'm not allowing this any longer. I'm checking into experienced Oncologists that handle my specific cancer. Looking at going to Stanford or Loma Linda where I will be a top priority and be with medical professionals that are interested in finding a cure or helping my survival rate. If you have any information I'm very interested. I'm 39 and I'm not having any complications, my weight is good, my health other then the cancer is fairly good, I still go to work, I'm fairly active need to walk more. My diet is excellent no problem eating. No symptons of all the side effects of chemo or radiation. Very strong willed person I thank God everyday for another day. I'm truly blessed. Interested in talking to all Small Cell Lung Cancer people to see how you are doing and your stories and survival times. Have a blessed day.

Tricia10
Posts: 4
Joined: May 2011

Hi Lori,
My story is similar to yours. I,ve recently gone off maintain. Chemotherapy. Getting a second opinion (after surg to brain, gamma knife, radiation to lung, And 6 wks of first chemotherapy) at UCSF. It along with Stanford r rated tops in No. Calif.

Question: to anyone that knows - I hear a lot about cancer centers of America, but I think they don't accept Medicare & r primarily looking for private pay and/or top insurances. Can anyone shed lite?

dbeidler888
Posts: 1
Joined: Jun 2011

My mother had Stage IV Lung Cancer, found 4 tumors on her bones and then traced in back to to her Lungs June 2004. Spread to her brain in February. They gave her three months, but she fought. She did 3 rounds of Chemo and 3 2-week week sessions of radiation. She died 13 months later. There are 4 of us kids and even though she had a hard time with the treatments, she fought every day for more time with us. She was 41. Keep fighting. You are all heroes in my eyes. God Bless.

Dapsterd's picture
Dapsterd
Posts: 291
Joined: Jun 2010

Hello Lorisoto, sound just like me currently, how are you now? I hope all has been worked through for now. I understand.

Dave

mnjn
Posts: 1
Joined: Apr 2011

Dear Peter Jr

Did you dad have to do maintenace chemo once his CT scan came back clear?

Gelly
Posts: 5
Joined: May 2011

Hello all....I am a 39 year old mother of a 9 year old girl and a 14 year old boy. Smoke free for 10 years, healthy, eat right (almond butter, ezekial bread, chobani etc). Just did a half marathon in March.. I have been diagnosed with stage 4 small cell lung cancer and I cannot take the statistics...I am not a statistic...I am strong and I am going to fight this. I have been blessed to see my life through new eyes. I started my chemo yesterday and will start radiation to a small spot abutting on my brain. I have hope and faith. I am keeping a positive attitude and I am so glad I found this sounding board.

Rigel Lee

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

We are right here with you. We will be rooting for you all the way. Stay away from the internet stats and stick with the people who are LIVING it! Keep us posted on your progress please.

Gelly
Posts: 5
Joined: May 2011

I am currently receiving radiation on my lung. My brain tumor is gone after 15 radiation treatments and my lung tumor shrunk from the size of a grapefruit to the size of, as the Dr. put it, a cocktail weenie. I am so blessed and keeping strong!! I walked 4 miles yesterday even though I am still receiving radiation on my lung. I hope to get back to my healthy diet soon. Everyone tells me I look good. I'll take it.

tropicgirl2780's picture
tropicgirl2780
Posts: 9
Joined: Dec 2009

Hey I have a little girl, 2 and a son, 7. I was diagnosed in Nov. 2009 with stage 4 NSCLC. I immediately did a clinical trial with carboplatin, pemetrexed and avastin. After 12 weeks of that I went to pemetrexed and avastin. IN July of 2010 I started having a bad reaction to the pemetrexed. I have been on Avastin since then, every 21 days. After the first 12 weeks of chemo the tumor was almost non existent and all the lymph nodes were back to normal size. I just had CT results today and infusion. The Dr's said they have no idea how I haven't had a reoccurance AT ALL. I am going on 18 months and most typically occur at 3 months they said. They have now said they are thinking outside the box and would like me to consider letting them go in microscopically and remove the very tiny bit of tumor left in my lung to further test it and basically get it out of my body. I am leaning towards yes, why not try right? In the mean time I have divorced an abusive husband, moved into an apt with my kids and am loving and living every minute. I feel great and I am anxious to see results of PET scan next friday and brain MRI. Keep fighting, you have 2 reasons to give it your all. I really believe that attitude and being surrounded by loved ones helps.

z's picture
z
Posts: 1377
Joined: May 2009

This is great news!, I hope your pet and mri come out well, and you have continued success. Lori

sleepless in jersey
Posts: 185
Joined: Feb 2011

God Bless you...Keep that positive train going and keep us posted please!
You are an inspiration to alot of us. Give those beautiful kids a big hug :)

Gelly
Posts: 5
Joined: May 2011

I'm so happy for you! So far for me my tumor has shrunk from about the size of a grapefruit to the size of a, as the dr. put it, cocktail weenie. I am being radiated on the lung now. I am thinking of looking into clinical trials to keep the cancer from coming back. I hope all is well with you.

thatng
Posts: 2
Joined: Jul 2012

Hi Tropicgirl,

I find your post very encouraging and inspiring. My mom was diagnosed a month ago with stage 4 NSCLC. She went to the hospital with pneumonia and discovered that she has cancer. It has been very difficult for her and all of us. She is 63 and was never a smoker. I want to share with you and everyone else here that she was given carboplatin and pemetrexed. She also received radidation to reduce the tumor in her lung since it was in her air passage and she was having a difficult time breathing. The radiation and chemo appears to shrink the tumor in her lung because she can breathe better now and on her own. There were several nodules (lumps) on her body (head, chest, waist) and one of them (1/2cm) has disappeared. We are trying to be hopeful. She does not have any mutations so the doctor is not recommending any target therapy at the moment. I brought up Avastin to the doctor but he said it was not recommended since 1 in 100 will die from internal bleeding. Especially since my mom has coughed a little blood, he doesn't want to give her avastin. She will be going in for her second dose of chemo tomorrow and a new CT and MRI of the brain in two weeks. I am hoping that it will show us some positive signs. We have noticed some of the nodules on her body is getting smaller but we can quantify the results when we get the CT.
It has been a year since your post, how are you doing? Has the cancer went into complete remission? Did you change your diet at all during chemo? Did you do anything different? I hope you are well and look forward to hearing from you.

ldoman
Posts: 9
Joined: May 2011

I was diagnosed last March 2011 with a stage 4 metastatic lung cancer. I went through a toracentesis to take 1200ml of fluid from my lungs. After evaluation of the pleural fluid, the my oncologist diagnosed me. That was 3 months ago. I started Tarceva, 150 mg, and had my ctscan last june 15 and the result was amazing. Please do not loose hope. There is a miracle out there. Just pray, eat healthy foods, rest and be happy. My doctor said I had a remarkable change and response to the pill. Take care, you will be fine.
Lorna

mfarner
Posts: 6
Joined: Jun 2004

Feb 12, 2012 will be my ten year anniversary surviving Small Cell Lung Cancer that spread to my stomach lymph nodes. Every time I would inhale I'd get a really sharp pain in my rib. I thought I cracked a rib screwing around on the floor with my son the night before. I went in to be checked because my wife (a Radiation/Oncology R.N. at the time) insisted. They told me I had muscle pain and tried to send me home. My wife insisted they give me an X-Ray. They found a mass in my right lung. I was given a CT Scan the very next day and a needle biopsy the day after that. The insensitive clods called me at work on my birthday Feb 12, 2002 to inform me over the phone that I had terminal small cell lung cancer. I was 37 with a 12 year old and a 15 year old boys at home. I was devastated.

The fear is the worse part. To make a long story short, after many chemo and radiation treatments they told me that my cancer was not responding anymore and to go home and spend time with my boys. From the beginning the fear sucker punched me. Then I started praying and the fear went away. I asked God to let me live long enough to see my sons graduate from High School so my wife wouldn't have to raise two teenage boys alone. Every single time I was asked I'd say God is going to let me live. Well he did. I have never been in remission or told NED. Every single CT Scan shows masses in my right lung and stomach nodes. They just stopped growing. They just sit there and don't spread anymore. I watched my youngest graduate from High School a long time ago. I also attended the Graduation Ceremony for my oldest graduating from Purdue University with his B.A. I haven't had a cancer treatment since Oct 2002.

Hope this give someone hope. When I was first diagnosed I had to stop reading the net about Small Cell and its horrible outcomes. I was told last month I am a two percent survivor. You can be too. You can reach me here or my email rush@yahoo.com if you need me. Mark

Gelly
Posts: 5
Joined: May 2011

Hi Mark. I was diagnosed stage 4 small cell lung cancer (mastitis to brain) in May. I have had a lot of prayers and said a lot of prayers. I believe this and a positive attitude helps. My brain tumor was gone after 15 radiation treatments and my lung tumor has shrunk from the size of a grapefruit to the size of a cocktail weenie (dr.'s words, lol). I am currently having radiation on my lung and will be re-scanned next month. Doc told me he would then determine if I needed 2 more treatments or 5 and I told him I wouldn't need any, because the tumor will be gone....and I truly believe it!

Thank You for sharing your story, it gives everyone hope.....and I hope it turns them to God too.

reddar7's picture
reddar7
Posts: 4
Joined: Oct 2012

Thats what we all want to hear. Me same as you 2 except only been on a 6 month journey so far. Am putting all efforts into research on what people like you had for treatments, and
well the idea is to run with what worked long term for others. Seems like what to do.
Faith in God to lead me and all of us in the right direction best of all.
My sclc isn't going to get me without a fight. I still got things to do.

mgood
Posts: 1
Joined: Jan 2012

I"m new on here. Not sure how all this works, so I thought I would just reply to your post. My husband is 37 and was just diagnosed in October with Stage 4 NSCLC. Barely any symptoms. And when we found it, it had already spread into his liver. No brain or bone mets though. He's about to have his 4th chemo treatment. Carbo, Alimta, and Avastin. His is inoperable at this time, but maybe that will change in the future. We were pretty much devastated with the news. We have 2 children ages 15 and 7. I know the survival rate is awful, but does it take in effect the nonsmokers out there? The ones who were so healthy, they didn't even have a doctor? My husband is a general surgeon in Arkansas. So he knows all the statistics. This makes him really negative about everything. I'm glad I found your post because I need to read that people do survive this awful disease.

thatng
Posts: 2
Joined: Jul 2012

Hi Mgood,

How is your husband doing? How is his progress? My mom was diagnosed with Stage 4 NSCLC last month. She is going to have a second dose of Carbo and Alimta (pemtrexed) tomorrow. I asked about the Avastin previously but the oncologist didnot recommended since it can cause internal bleeding and my mom has previously cough up some amount of blood. Has your husband seen any reduction in the tumor? My mom has noticed reduction on a few of her nodules (lumps). I hope all is well with your husband.

keepthehope
Posts: 1
Joined: Dec 2011

my mum has lung cancer stage 4 and it is already spreading to her Liver and pancreas.
I took them to China to have a treatment.
I am so lost when the Doctor said there is no more hope :((
I do not want to lose hope.

I would like her to have a chemo but my dad worry that my mum can't take it and she will be in pain.

what should I do? She is kinda weak...
I am trying to starting the cancer diet right away...

iola_s_mom_is_so_brave's picture
iola_s_mom_is_s...
Posts: 16
Joined: Jan 2012

Hi keepthehope, My mom got lung cancer stage 4 as well. We are in Shanghai.
Which city are you staying?
Maybe we can help with each other. I need hope too...
My mom is also weak, but believe me, you need to encourage her just like your ID: keep the hope!
We have not told my mom the truth yet. I am planing to tell her and I have faith in her! COME ON! If one person can make it which means it is reachable! Keep the hope, okay?
Leave msgs if you feel want to share. I will keep you posted about me and my mom. You are not alone!!!

Must live
Posts: 2
Joined: Jul 2013

Hi there,

 

I'm from Shanghai too and my family lives in Sydney of Australia. My mum was diagnosed Stage IV Non-small cell lung cancer in May 2013. She received radiation therapy for her spine which seemed work, then the doctors put her on Tarceva for 2 months (type of drug), and if it worked, it would shrink the size of the tumors and help controlling others from growing/spreading. Unfortunately, the my mum did not respond to the drug and we are looking to start chemotherapy. What's worse is that one tumor on one of her ribs grew over the 2 months and she will need to receive radiation on that too.

Overall not great news, I'm hoping/praying very very hard for my mum that chemo will work for her like a miracle ....

My mum is only turning 57 yrs old in next month, her life can't end here, I have strong belief and demand her to live long to see me being pregnant, giving birth and raising her grandchildren. She MUST LIVE.

raven79
Posts: 3
Joined: Dec 2011

Lung Cancer survivor 6 years gets carcinomatous meningitis
by raven97 on Sat Dec 24, 2011 09:30
Hi, My sister six years ago at 37 was diagnosed with stage four lung cancer. She survived by taking Tarceva/Avastin. But she had to battle 3 brain tumors with cyber knife after having seizures. A month ago she had blinding headaches, confusion and double vision which messed up her sight permanently. At the ER she was tested with spinal tap the only way to see cancer in the fluid and lining of the brain and spinal cord. The doctor said as lung cancer survivors live longer this is a progression of lung cancer. (so make sure you ask your doctor for a spinal tap if you are a long term survivor) They had to put a port in her head but she was on Avastin a long time and hemorrhaged and it paralyzed her on the left side. They have given her weeks as this cancer moves fast and attacks the nervous system. I will post a link for more on it. She is 42 now. I just wanted to address this and warn as long term lung survivors will get this more and more. http://www.ehow.com/about_5167093_carcinomatous-meningitis-t

z's picture
z
Posts: 1377
Joined: May 2009

Thank you for sharing, and I'm so sorry your sister is not doing well. I have you and your sister in my thoughts and prayers. Lori

River view
Posts: 7
Joined: May 2012

Stardust, I celebrated 5 years this past March. I contribute it to incredible doctors and they say it is my determined attitude. It might be both but after the shock and anger wore off, I decided to do my best to stay positive while waiting for science to step up. I had it in both lungs and then it spread to my neck and adrenal gland. NOTHING is showing right now and I go for scans every 3 months. So Always have faith, hope and most important, BELIEVE in your own strength to WIN.

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