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survivors of Terminal Stage 4 lung cancer

Stardust1
Posts: 44
Joined: Jun 2008

Dear Members,
Please let me know if there are ANY survivors out there with Stage 4 Lung Cancer, (Terminal)taking radiation.

God Bless All

Stardust

cobra1122's picture
cobra1122
Posts: 245
Joined: Jul 2009

There is no one who can say how long, Docs have said I have out lived their longest expectations. What you can do is look to each other with strength and love. Enjoy the time that is not what might be. I realize it is hard, if you have read my bio you may notice that I know what pain is, and hate to see anyone suffer, but if he can enjoy what he has left isn't that better than trying to count days, months or whatever. You have time now, enjoy it as best you can, no one knows when our time is up, but we do know we're alive now.
Our prayers are with your husband and you and your family.

Dan and Margi Harmon

Allycat21
Posts: 1
Joined: Jan 2010

My father, a 55 year old smoker of 40 years has just been diagnosed (not suprisingly) with Lung Cancer this past week. He had no idea he had cancer. Infact, 2 years ago he underwent back surgery to replace his L2,3 and 4 with a bone graft. They had herniated and ruptured, and were setting off a chain reaction. Therefore the graft was necessary. He had that surgery Thanksgiving week of 2008. For the past 2 years he has undergone much therapy, checkups and scans of various sorts. He has been X-rayed and checked multiple times and there were never any indications of cancer. This surgery and the subsequent months of pain medications led to a addiction to pain medication. Early in 2009 he was able to finally kick his addiction to the percocet. Around mid-2009 he started experiencing new pains in his legs and other parts of his body. Of course, as most, he just took tylenol or whatever he could and assumed that it was somehow related to the major surgery and the pains that he hadnt noticed before because of the high volume of pain medications he was taking. He ignored the pains. Around September of 2009 his ribs began to hurt. He went to the doctor and was told to just take it easy, there was a fracture. Nothing more was done at that time and no cancer was discovered. Thanksgiving of 2009 he began experiencing an increase in the pains in his lower right leg, ankle and shoulder area. Again, assumed it was wear and tear. He already has screws in his ankle since a injury he sustained as an athlete in his mid-20's. He just assumed the pain was a part of growing older and all the rough and tumble activities of his youth. I started to notice a tremendous decrease in his energy, outlook, and color around that time along with what appeared to be rapid aging. He just suddenly started to look frail and older and not the brave, strong (sometimes scary) man I remember!! Very strict, disiplined parent who taught me many things, stubborness among those :) The week before Christmas he woke up with excruciating pains in his shoulder area. He went to the doctor who took an X-ray and said that he had hurt his rotator cup. They put him in a sling and sent him home. He also took a full body scan to see if there was a common denominator between the pains he had been experiencing, which other doctors just dismissed. Wednesday of last week we recieved the news that 17 spots showed up on his body scan. His ribs (which had been hurting in September) had broken and his alleged rotator cup was actually a fracture to his humerous, collarbone and clavicle. The reason: Lung cancer that had metastatized to the bones. Less than a week later, yesterday, he underwent surgery. Because his bones are already so severly deteriorated where the cancer has spread, they surgically implanted metal in his right Tibia and Left Femur. They told us after surgery that they found (just prior to operating) that his shoulders/clavicle will need to be stabalized as well as both his arms. His bones are already so weakened that they have instructed him not to use his arms to pick himself up, sit up or anything. They are saying that even the slightest pressure will cause fractures/breaks. This is completely blindsiding the family as he was fine until last Wed (as far as we knew). All of the sudden he is this very fragile man who is being told he will not be able to utilize his extremities until surgically stabalized. In just the past week I have watched his front porch become handicap accessible with a ramp, a power chair has been brought to his home, he has undergone surgery, he his frail and in a bad way right now. We are being told the cancer originated in the Lung (and there is a mass present) but beyond that we are not being told ANYTHING about the odds/treatments etc. My research has concluded that simply based on the fact that it is Lung Cancer with Mets to the bone that it is staged as IV and that the prognosis is very very grim. But he is not being told anything other than that he will be wheelchair bound for a tremendous length of time. The paperwork has already been filed to retire him disabled from Civil Service. It's just all happening at once. In everything that I'm reading my own mood and mindset is getting worse. Of course I was shocked by the initial news, depressed, angry, denial, all 5 stages of grief were pretty much covered over a short 2 day period. The rest of the week has been filled with prepping for surgery, surgery itself and preparing for the aftermath and what might lie in the near future. It is reassuring to read your story. I hope my father has as much fight in him as you do. He's always been a strong man, but he already seems so defeated. His brother just died in November from the exact same thing and his father died from the same thing several years ago. The same exact trend with both of them, fine one day, diagnosed the next, dead within a very short period of time. For my grandfather it was a few months, for my uncle, a few weeks. My father appears to be dwelling on those familiar odds. And in my reading I've learned that this appears to be a likely outcome, but your story, gives me that little ray of hope in an otherwise dark and dreary world (atleast at the moment). It does appear that my entire world is falling apart in front of me. In June my father gave me away at my wedding, he appeared fine! And now, there is the possibility that he won't be around on my first wedding anniversary. I think that is the initial mindset when you recieve this type of news. Some moments I'm positive in my outlook and other moments I can't help but think about the other possibility. I know that's my brains way of "wrapping my head around" something my heart just can't comprehend. Thank you for inspring me, hopefully, sharing these types of positive stories will inspire my father as well. Best of luck with your continued treatment!!!!

cobra1122's picture
cobra1122
Posts: 245
Joined: Jul 2009

My family history is full of heart disease and cancer, so I can related to your Father think of the odds some times, but it doesnt mean the same for him. I hope that he can grasp a positive attitude and hang on to it, it will help him and everyone else.
I am presently on Hospice, was given on Jan 09 4-6 months left, well its been over a year on Hospice (2+yrs since cancer diagnosis) and I am still going, I think it is becasue I have a Positive attitude and a great support system that has helped greatly.

I wish your Father, You and You family a peace to accept what we cant change and the hope to cherish the time you do have, cherish it, no one has a forsure thing, anything can happen to anyone, even those with out this disease. Just hold strong to each other and cherish the day you have, and life for the moment, you cant change or live in the future, it will be here soon enough.

Our Prayers and Best Wishes to Your Father,You and Your Family,
Dan cobra1122) and Margi Harmon

DONCARLOS
Posts: 66
Joined: Jun 2009

i jusat had my surgery 33 days ago. I ws also told that they took all of it and I need no further treatment. HOWEVER, CANCER IS CANCER and we must gete used to it. I am happy with the news but that does not mean that I am cancer free for ever. When I went in I had all the confidence in the world and I made it. I still have that confidence, and I have been back to almost normal for the last 15 of the 33 days since my surgery...JUST DO NOT OVER DO IT, JUST TAKE IT EASY AND KEEP ON ROLLING. I am 77 and I am moving on at my own pace.

I don't know what it is with this monster but it attacks us in many differene ways.

I WILL FIGHT IT AS LONG AS I CAN.

Saludos

don Carlos

tbnurse's picture
tbnurse
Posts: 2
Joined: Aug 2009

At age 51,I was diagnosed with stage 4 adenocarcinoma with bone and lymph node mets in April 2008. I went to MD Anderson in May 2008 to determine my treatment. I started 10 rounds of radiation June 2008. I started chemo at St. Francis medical center (MD Anderson management center) in August 2008. My first line was Carbo and Gemzar for 4 rounds. After that I started Alimta as a maintenance. The Alimta worked until March 2009 when I had progression to the adrenal glands. I took Tarceva for 2 months, but the mets grew and I started coughing up blood. On July 13th, I started Carbo and Taxol, Avastin was added on August 3rd. I have increased risk of bleeding with the Avastin due to coughing up blood. But my oncologist believes it is a risk I have to take. During this time I have continued to work one full time and 2 part time jobs. I gave up one part time job in January. I have a lot of fatigue as my hemoglobin is usually below 9. I do not get much work done at home other than dishes and laundry. I used to do a lot of construction work on my house, as well as the mowing and housework. Now my husband mows the lawn. We still take a vacation every 6 months. Granted, I usually just want to lay around when we go. I did not loose any weight, instead I have gained 30#. I have lost the hair on my head, but not the hair on my legs. I feel that God has blessed me, as I should not be doing as well as I am. I hope this helps those of you facing this same problem. I try not to let the cancer control me, but that is not always easy to do.
God Bless You All,
Donna

Diana Updike
Posts: 3
Joined: Aug 2009

I was diagnosed on Dec 18 2003 with a pancoast tumor. It was inoperable and they really didn't know what to do with me. THey didn't think I could survive it because the tumor was sitting on the top of my right lung, not inside and pushing my esphogus over in the frontand growing into my spine in the back. I underwent chemo and radiation for a total of 6 months with radiation twice a day for the last couple weeks. I have now started my 6th year of remmission when no hope of surviving existed. As a result of this i have also developed horners syndrome which they say should have put the nail in my coffin.I am going to be 54 years this month and no matter what I wake up each day and live it the best way I know how becauseI don't know what tommorrow will bring. Pancoast tumor patients are not supposed to survive more than 5 years. I am truly blessed. If anyone else has this type of cancer I would love to hear from you.

God bless everyone
Diana

nrn33's picture
nrn33
Posts: 2
Joined: Jun 2009

Diana,

Hi, I was told last Febuary 2009 that I was stage 3b cancer with spread into the lymph nodes in several areas , with Horner's , I was told 6 months to 2 years . I am 41 years old. Doing carboplatin and taxol chemo every 3 weeks .Just did a Pet scan last week and go tomorrow for the results. So far the chemo has not been too bad , mainly tired alot and have various bone pains. I am like you and I try not to dwell on time lines as no one knows when your time will come or if even the cancer will be what kills you. The hardest part of this whole ordeal has been being strong for my family and trying to prepare them for the possible times ahead.Also not taking everything out on my husband ....he catches the worst of my crazy emotions.
What are you doing treatment wise or did do ?What kind of chemo did you take?

God bless and keep up the good fight,
Nan

mfm
Posts: 2
Joined: Aug 2009

HI STARDUST, MY SISTER DX W/STAGE 4 SMALL CELL LUNG CA
SHE IS 54, DID CHEMO, RAD BUT ITS BACK AFTER JUST 6 WEEKS AND HAS SPREAD. NOT SURE WHATSNEXT

Diana Updike
Posts: 3
Joined: Aug 2009

Stardust: Iam a survivor of stage IV lung cancer. I was diagnosed in Dec 2003 and had both chemo and radiation for 6 months.with my last month of radiation twice a day. I was also told there wasn't much hope as mine is a pancoast tumor that sits on the outside of my right lung and was inoperable. The tumor was so large that it was pushing my esophogus to the side in the front and growing into my spine in the back. My Doctors saved my life, treatment was very aggressive and painful at times, but you get through it and wait for the next treatment. Ihave started my 6th year of remmission on june 30, unheard of with this type of cancer.I plan on making the medical books, so remember theres no place like HOPE. Don't give up and don't believe it when they say terminal, I here and I'm supposed to be terminal. Hsope I helped alittle, will be checking on you. Diana

nrn33's picture
nrn33
Posts: 2
Joined: Jun 2009

Hi,

I was diagnosed in Feb.2009 with stage 3b Pancaost tumors with Horners Syndrome. Surgery wasn't an option. Been doing chemo(carboplatin & taxol)for the last couple of months,no bad side effects.Mine is also on the right side and has invaded the lymph nodes of arm , neck and heart. So what has life been like for you ? are you still doing treatments ?
I would love to talk with you more and compare treatments and what goes through our brains with this crazy disease.
Thanks for the posts of HOPE !!!!!

DONCARLOS
Posts: 66
Joined: Jun 2009

Hi you all: I read and I become more concerned every day. I DO NOT KNOW WHAT I AM. I amn still alive six weeks after surgery when 1/3 of my right lung was taken out and some lymph nodes. At this moment I am going through a series of Nuclear test after I was told that every thing was taken out. My life continues as if nothing happend and like JOE, I have many people expressing doubts and even claiming exageration in my part, however, that 12" scar on my back abd tghe one on my neck do the talking for me. AS I have said many times, at 77 years of age, 14 months in combat in Korea and so many other challenges in life, I feel lucky just to be alive. AS someone said...WE ARE ALL SURVIVORS, and should live out lives as itr if was the first day of it....BECAUSE IT IS......

Be well and enjoy the sun. I AM ON MY WAY TO MY THIRD STAGE OF "OSTREOSCAN" at 1:30PM today.

Don Carlos

nodramamama's picture
nodramamama
Posts: 2
Joined: Aug 2009

My mom was diagnosed in 2006 with stage IV lung cancer that spread to her brain. No breathing problems, no lung problems at all, just small specks in the lungs.. One brain tumor. She's had a surgery to remove the tumor in her brain. Chemo, and radtiation on brain and lungs.
I will tell you that she is doing awesome concidering all shes been going through. Although the tumors are back in the brain as of 2009, with the radiation they treated her with on her brain and the fact that shes been doing Creative VISUALIZATION the tumors finally shrunk in her brain AGAIN!
Lung cancer is sneaky so keeping on top of it is key. PET scans are key.
Focus on the positive and get rid of worries. Sometimes stepping outside of the box and using inner strength can work miracles. Not saying my moms a miracle, but the attitude is what will keep anyone going in the proper direction.

PreciousFox15's picture
PreciousFox15
Posts: 3
Joined: Aug 2009

I'm a bit lost here. My husband (45) was diagnosed on Aug.27,2009 with Small Cell Lung Cancer stage IV(SCLC)......NOT Non Small Lung Cancer(NSCLC).

I read here of people that have small cell lung cancer, but when you read there post they are talking about NSCLC.

I need to know if there is anyone out there that is a survivor of Small Cell Lung Cancer stage IV and if so how long since you were diagnosed, and what is the treatment you are getting and why.

He had fluid removed from the lining around his right lung (the tumor is in the right lung)and was told that they are almost sure there is cancer cells in it(sometimes cancer cells are so small they can't see them). They have also said there is a spot on his liver that is cancer.

He has had one cycle of chemo, Carboplatin and Etoposide. He said that he could breath better and his cough got better just after the first day of chemo.

He goes again for chemo on the 16th,17th and 18th of this month. He has been feeling fine, You would never know he has cancer. I'm the one that is a wreak.

I have been reading and reading and reading everything I can find on the internet about this. But so far I can't find anyone that has had SCLC :-(

I'm not going to give up or let him give up. I don't care what the doctors say about how long he might have. I just keep doing my research.

I know this is an agressive cancer and that is why time is of the essence. We meet with the doctor tomorrow and I am going to tell her I want a scan done before his next round of chemo.

I don't want to find out later that something else could have been done or his chemo changed because of what they find after the second cycle.

He has taken all his records,lab slides and scans to the Northwestern University of Robert H. Lurie Comprehensive Cancer Center, where they have an oncologist that specializes in the lungs.

I'm going to call the number they have here for help with finding clinical trials, after I find out more from the doctor tomorrow or after his next chemo.

If anyone can suggest anything else that I should be doing or know of a doctor or trial we can try, let me know, or if you think that a PET scan and or radiation of the brain should be done now.

God bless everyone on this site, you and my husband are all in my prayers.

Sherry :-)

freddyfox
Posts: 10
Joined: Sep 2009

WE ARE ALL TERMINAL. MY MOMMY MADE HER TRANSITION JULY 10 from lung cancer. I am 22. I have seen my brother murdered and the only good thing left in this world left me. SHE IS STILL HERE THOUGH!!!!! GOD BLESS EVERYONE....CANCER IS HARD LIFE ISNT. WE ARE BORN 2 DIE. MY ONLY WISH?PRAYER is that when i leave this hellhole i will see my mommy again. APPRECIATION IS THE KEY. LIVE ONE DAY AT A TIME. MOMENT TO MOMENT. WE WERE ALREADY BLESSED.

charlespiercey
Posts: 3
Joined: Sep 2010

Sherry,

Sclc is more greatly associated with smokers. I lost my Dad in 1986 to Lung Cancer.
He had both Small Cell and Non Small Cell. Of course a great deal has changed
with treatment in the last quarter of a century. I wish the best for your husband.
Take a look at IP6 and Inositol supplements. They are inexpensive. But rather than
I tell you what little I know, since you are a researcher, probably best you look
it up for yourself. The information is readily available on the internet. I do not
have LUNG Cancer, but started taking inositol about 3 months ago on the advise of
a Psychologist friend of mine. (I smoked for 35 years and finally quit 8 years ago).
After some research, I just ordered a bottle of IP6 to take along with the inositol
(inositol hexaphosphate) http://www.mskcc.org/mskcc/html/69264.cfm

WingnPrayer's picture
WingnPrayer
Posts: 27
Joined: Nov 2009

Thank you for your post. I think finally I found someone with my specifics. As of November.... 11th (?), I've had Stage 4, Lung, with (2) Metz-to-brain. The lung tumour is at the upper left of lung & metz are at (1) at brain stem (they've told me it'll be a "Maintainance" site) & (2) at back of brain ( either operable or handled with Whole Brain RADs which I have just come off of a 2 week treatment). I am about to start a "chemo class" tomorrow or soon afterwards. Then start a schedule something like a dose every 3 weeks(?). By the way, I was told that the effects of my RADs will coninue for a few more weeks, even though I may have stopped taking them. They are still reducing the spots as well as reducing the pressure itself.

"Creative Visualation?" Sounds interesting. See, NoDramaMama, I'm finding out that is how we find out about our particular kind of cancer. Example: I awoke in November with Double-Vision (Brain stem tumour) and with a dizziness issue (Back of brain tumour). Like a typical guy, I then decide to wait a week before Wifey says to go to Family Practioner just to make sure it isn't Blood Pressure Meds related. That's when Family Practioner did an X-Ray, then sent me to a Neurologist for another scan that confirmed cancer. I woke up and I was already in Stage 4 non-small, with squamous cell carcenoma (spelling?). We find out only after considerable damage is done, but there is hope. I am reading about more and more survivors (like in this discussion board thread) as I roam around the internet gathering information.

I am happy to report progress on the Double-Vision insomuch that it has now become intermittant. It is continuing to improve, so maybe the Whole Brain RADs are doing the trick. Hopefully with the I.V.-type chemo planned the brain and lung tumour will be dealt with satisfactorily. Maybe I can even get driving privalidges back! Please keep in touch. And, you can call me "Rog", Okay

nancy shaw
Posts: 1
Joined: Nov 2009

i was told in june my lung cancer was at stage four, it is small cell, i had 12 doses of chemo i got back this month for more test...there is some days i need to talk my husband has just retired ,but i dont bother him...

mcbriz
Posts: 14
Joined: Jun 2009

Please find someone you can share your struggles with. You'd be amazed at how your friends and family are willing to listen. Your husband probably would be too if you let him know how much you need the support. As family/caregivers we all want to do something, and if being a sounding board is what the patient needs, then I guarantee you we're happy to be there. Sometimes a listening ear is all we can do...

From another Nancy

1976hdn
Posts: 4
Joined: Sep 2010

How are you doing? wondering how your journey has been, my dad was told he also has stage 4 small cell lung cancer. Large tumor on the lungs with small spot on the brain, just wondering what should be expected from someone who has gone through this. Thanks for your time and info.

Blessings to all!

pbr
Posts: 1
Joined: Nov 2009

My husband has stage 4 lung cancer. The first three treatments of chemo have given mixed results. They are going to do a second phase treatment next time.
They said that he is not a candidate for radiation of the lungs. (He had a brain tumor the took out and used radiation for that). He has two tumors on each side of his lungs and in his lymph nodes.
He had a cold and got bronchitis and is now on breathing treatments.
What can I expect?
Do other places have different treatments?
We went to MGH and the prognosis was grim.
I don't even know what to ask.
Help.

Laura88
Posts: 47
Joined: Oct 2009

Dear Confused -- I am sorry you are having such a hard time. I am surprised that MGH did not give you a whole list of options. I believe they are known especially for their drug trials. Have you asked about a trial for your husband? There are amazing things I have seen done at MGH (I get my treatment there, also). There are so many different chemo drugs and drug trials that your head will spin if you do not have an oncologist you feel comfortable asking questions of. Please ask about trials or different chemo treatments. Please, please do not give up. There are many things out there. Best wishes to you -- let us know how your husband is doing. Laura

CaringRN
Posts: 1
Joined: Nov 2009

I have been working with Lung cancer patients for quite a while now and I am sorry about your confusion. Let's just say you are not alone. They normally do not radiate multiple areas, which it sounds like your husband has. (Unless they become bothersome - painful, etc.) So it sounds like they are treating things the way they should - with multiple chemos. The first treatment didn't work, so they will try another one and should continue to do so. If they decide to stop, seek another opinion. There are trials out there and I can not tell you if there is one out there your husband is appropriate for. Everyone is different so just hang in there! Let me know if you have any other questions! I am here to help! I have a passion for what I do and I want to help people through this difficult time in their lives.........the last thing a patient or family should have to do is wonder if what they are doing is the right thing.

Ra12
Posts: 1
Joined: Dec 2009

Thank you for posting here! I was diagnosed October 4, 2009, and am still in shock. It met. to my brain (very small lesions), and so I had to go through 14 days of whole brain radiation before I could start the chemo for my lungs. I had my first chemo Nov 25th - went pretty well as far a side effects - mostly just tired, yucky feeling, with NO appetite. I've done very well since then, though my cough hasn't gotten any better, and I found out yesterday that my annual pap smear showed lung cancer cells in my uterus. I also found out yesterday that a couple of drug trials I was hoping to qualify for are not an option for me (bad day, yesterday was...). Sooo, in a search for "Plan B", in case subsequent chemo sessions don't work, I've been on-line looking at all the big cancer centers around the country. I wanted to avoid traveling, as I have 3 kids at home, who need their mother, but now I think it's time to consider how much they need me now vs. the future (I vote future). I've gotten some encouraging news and ideas from this blog, but remain confused as to how I will know the best course to take and right cancer center to try. The one in Seattle (BioScience Research Institute) sounds great, but it's a long way for me to travel. I am in Western NY, so I'm thinking Sloane Kettering or Dana Farber - but again, I want to get the best treatment, so I'll go where I have to. Please help!

God bless all on this site,

Laura

sknowlton
Posts: 1
Joined: Jan 2010

I was diagnosed with small cell lung cancer in June of 2009. It was Stage 4 with mets to the liver and another part of my lung. I had smoked all my life, quit 4 years ago and hoped the cancer would skip me. It didn't. It was found with a CT scan - my lung had liquid and I had to have 2 thoracentesis to get rid of it. The first month I felt pretty bad, but after my second chemo I started feeling better. The chemo gave me no side effects except for the Neulasta shot at the end to raise my white cell count. All my bones ached for about 4 days after the shot. CT scans showed the tumors getting smaller and a pet scan (after my 6th chemo) at the end showed no evidence of cancer. My oncologist followed the MD Anderson protocol (vincristine, cisplatin and carboplatin - I think those are right.

Anyway, I am 74 years old, cancer free at the moment and have been told that SCLC definitely will come back at some point, so they will now be testing me often (CT scans and Pet scans every couple months. I found out that if it does come back, that they can't use the same chemo drug because it doesn't work twice in a row, but that there are others that work as well, and that the cancer may come back somewhere else. Even so, my doctor promised my some quality time and I'm having it now! I fixed Thanksgiving and Christmas dinner by myself, did the tree and took it down, sent stuff to my 4 kids, 11 grandkids and 2 great grands. I'm not ready to give up and I have a very positive attitude. I live with my husband - he has been shattered by all this after 47 years of marriage, but we are doing very well, considering this last year.

One thing that absolutely every doctor and caregiver I met told me that a positive attitude can work wonders and I believe it.

chalaan
Posts: 1
Joined: Jun 2010

HI,

I was reading though the blogs and hoping to find someone who had some chemo that worked.
My friend is being treated in California at a local hospital. I am encouraging him to
go to MD Anderson... Can you post the name of the oncologist that you are seeing there?

Any advice would be so appreciated, and thanks so much for your info. It raised my spirits.

marijune
Posts: 45
Joined: Jan 2010

caringrn,
Can you tell me why my treatment has been changed. I have nsclc & 2 lymph nodes. I did 7 days of radiation and 1 day of carbo and taxol and 1 day of taxol. I was susposed to get 8 days of radiation but dr says they changed it to 7 days of rads for week , 2nd week will be 8 days of rads then a ct scan, third phase will be 7 days of rad instead of the original 8 days. Just dont understand why they cut my radiation treatments in week 1 and week 3 down to 7 times instead of 8 times.

DONCARLOS
Posts: 66
Joined: Jun 2009

Someone said "WE ARE ALL SURVIVORS" I am convinced of that. However, I cannot get my head straight and had to go from Xanax to Prozac (taking both) and am doing a little better. I had my surgery back in June 30, 2009 and I have not idea what level I was but except for my stupid head I am feeling well and breathing OK. I have lost interest in everything but I must do something about that. However, take every day as a new day and yu will go on as long as God wants you to.

God Bless you

Don Carlos

phampleman
Posts: 16
Joined: Nov 2009

hi,i would like to share with you my story..my mother was told in april this year she had stage 4 primary lung cancer.she never smoked ever never even took a drink so of course i didn't belive this her dr had said that it had spread to her abd. and pelvic and she was very sick he asked if i would like to bring her home for easter of course i said yes. he looked me in my eyes and said just know this isn't going to change anything.then after easter she will start chemo as a comfort measure,not understanding what he was saying i said ok..i am very scared at this point and totally confused.i have been in the medical field for a very long time and have takin care of alot of sick people but always understood the medical terms for everyone one i took care of, well i still am confused with all this cancer talk,after 3 months of chemo we seen a big improvement with my mom her dr. ordered a ct scan at this point when my mom came out from taking the test she looked at me as we where walking out the door and said they are not going to find anything all i could say is i hope and pray you are right, i come from a family that belives and always have faith and hope .i never could belive she had cancer but it was time to get the results i asked if the dr. could call my baby brother in tenn.and give him the results i was so wore down and scared even though i have faith sometimes it does get weak, her dr wanted to see us ...my mom looked at him with a smile and said you didn't find anything did you?he said no sign or even a trace of the cancer my mom had told him she knew there wasn't any cancer he asked her how she knew ..as she was getting the scan done she was praying and i had been praying but a black ball had left her body and went away from her,he looked at her and just gave her a big hug.she has had a pet scan and another ct scan still no sign of the devil that tried to take my mom.....have alot of faith and you will find a spirtal part of life that is beautiful and kind people .god bless you and never give up our god is more powerful than kind of demon that ..god bless and i hope my mom's story helps you .........patty

WingnPrayer's picture
WingnPrayer
Posts: 27
Joined: Nov 2009

Thank you for starting this thread, Stardust1. I'm meeting some people with our particular situation. I'm meeting even those like mine who have "Metz-to-brain".

diegogon74's picture
diegogon74
Posts: 3
Joined: Jun 2010

I just got diagnosed with lung cancer stage 4, i'm 36 and i would love to know more about this, everything is completely new for me, so so far i think i'm a survivor, if there is anyone else out there with the same type of cancer i would love to hear form you but i don'tknow if this is the right channel, my e mail is diegogon74@yahoo.com.mx thanks a lot!

diegogon74's picture
diegogon74
Posts: 3
Joined: Jun 2010

I just got diagnosed with lung cancer stage 4, i'm 36 and i would love to know more about this, everything is completely new for me, so so far i think i'm a survivor, if there is anyone else out there with the same type of cancer i would love to hear form you but i don'tknow if this is the right channel, my e mail is diegogon74@yahoo.com.mx thanks a lot!

LULLA
Posts: 7
Joined: Apr 2010

HI
DO YOU KNOW WHAT TYPE OF LUNG CANCER YOU HAVE? WHAT IS YOUR TREATMENT GOING TO BE? BE POSITIVE THEIR ARE SO MANY SURVIVORS ON THIS WEB SITE IT IS SO ENCOURAGING TO READ ABOUT THEIR TREATMENTS AND RECOVERY.

GOOD LUCK

LULLA

diegogon74's picture
diegogon74
Posts: 3
Joined: Jun 2010

the doctors told me it was non small cell lung cancer stage 4, thats all i know, but the doctors weren't very optimistic about the prognosis they told me the average was 1 to 2 years and that they would be very surprised if they see someone reach 5 years, so i want to know if that is true or if there is more people out there with the same type of cancer and now is cured or has lived more that 5 years, i just want to know what are my options, thanks a lot for answering my questions, bye!

cobra1122's picture
cobra1122
Posts: 245
Joined: Jul 2009

There are many survivors with over 5 yrs under their belt, if you read my bio you will see that I have a complicated health status, but I am 2+ yrs and still going strong. No one can say forsure how long anyone has. We are all heading in the same direction, sick or not, and I for one have out lived many of my non-cancer friends and I just turned 50 in May.
Research your prognosis from your Doc, find out what the tests say. If your Doc doesnt want to talk, make him/her til you understand. It is your life, and you have rights. If your still unhappy get a second opinion.
There are many people who have rang the 5 year bell and are still going so dont give up, just palnt your feet frim and get ready to rumble. Kick some Cancer butt, You have a lot more to do with your treatment and your staying alive than anyone else.

Our Prayers and Best Wishes to You, Your Family, and Everyone,

Dan(cobra1122) and Margi Harmon

BillieBruce
Posts: 3
Joined: Jun 2010

Thank you this is very encourgaing for me to read.
Billie the Wife

DBST67's picture
DBST67
Posts: 5
Joined: Jun 2010

I am stage 4, going into my sixth year non small cell both lungs. quality of life is very good. Have had 2 recurrences. Has not spread. my advice is to trust God,not to give up hope, live each day to the fullest. God is the only one who has power of life of death. I met a lady about two years back, who had lung cancer for 20 year. Remember it is not over, until God says it is over. Love, enjoy life. Try to eat the right thing, I have never smoke, Doctors can only tell you based on stats, but there are doctors that will tell you to trust God for the outcome. Our strength, health and peace comes from him only.

medi_2's picture
medi_2
Posts: 511
Joined: Aug 2009

don't listen to the time limits, people beat the odds all the time.
fight like he!!.
cheers
medi

Gelly
Posts: 5
Joined: May 2011

You said it sister!

daughter82
Posts: 1
Joined: Jun 2010

My father was diagnosed with Stage IV NSLC in April 2004. He had mets to his femur, spine and scalp. He started chemo and radiation in May 2004. He is in his seventh year since diagnosis and we keep praying for more. The lessons I have learned from being his advocate all these years is pray, treat everything and never give up!! What I mean is the minute he starts running a fever we treat agressively, it's the little things that make a difference! I have spent too much time on the oncology floor listening to doctors talk about hospice. We feel our life span is in G-d's hands and we are required to do everything in our power. At the moment he is too weak from infections to do chemo right now, but I tell every doctor we wish to treat what is treatable. It's our hope he will get strong enough to resume treatment. In the meantime we are planning a father's day BBQ which will include his great grandson whom he would have never known had we given up when they started pushing hospice in 2005. I wish you the best of luck and much success in your battle.

frajuma5
Posts: 2
Joined: Apr 2012

hi daughter82:

thank you for your post, as you share in the same outlook as I have. our journey with my dad's cancer is just beginning and I am very thankful for stories of inspiration and hope like yours and your dad's. my dad just got diagnosed last week with stage IV and we just met with his oncologist yesterday, which was surprisingly more devastating on that part, since the first thing that came out of his mouth was hospice. my dad is in great shape even with the diagnosis and even says he does not feel anything. he is still maintaining his daily 2 mile walks without breathing problems.

it eases my worries a bit and raises OUR hope a lot reading stories like yours. we will fight this like hell, and our first agenda is getting a second opinion for treatments since our meeting with the oncologist was so disappointing. he was already treating my father like a hopeless case and pushing hospice and even was talking about the financial difficulty of traceva before he discussed the aid it can offer my dad. we will definitely make an example of your story though, since it is and the fighting spirit you guys had and have kept your dad alive for so long. thank you again for sharing

fish49flea53
Posts: 2
Joined: Sep 2010

The prognosis is not good at all. My husband had the same stage 4 small cell cancer. It's devastating news. My husband only lasted 4 months because he did not have the fight in him to live anymore. He wanted to die so he got his wish. If you have a good attitude and a fight to live attitude you will live longer. How much longer i dont know. Keep up the good fight and don't let the doctors tell you any different.

btill48162's picture
btill48162
Posts: 5
Joined: Oct 2010

My step-dad, who was diagnosed with stage IV NSCLC, is going on 5 years. He was diagnosed in February of 2006 and has been fighting this disease since. During his on-going battle, he has amazed the doctors and showed them that as long as you have the will to live then you can. The doctor he was seeing found out that he too had cancer so he is gone doing treatments himself now. So, my step-dad was transferred to a new doctor, which is terrible. He basically saw him once or twice and then after finding numerous, very small, brain tumors, referred him to hospice. My mom and step-dad were sooo very confused and accepted hospice care. Our family refuses to give up and so does my step-dad. We believe that the God has let him stay with us this long because He sees that him nor our family are ready for him to leave us. When he went on hospice care they basically gave him 6 months to live. We don't listen to that considering that when he was first diagnosed the doctor gave him up to 2 years. Now look at us, we are going on 5 years with hopes of many more. Just pray to God for every day that he gives you and show him that you are not ready to give up. Start living life as if today is your last. Something most people take for granted!

DBST67's picture
DBST67
Posts: 5
Joined: Jun 2010

I am in 4th stge now, originally dx in 09/2004 stage 2, had surgery of top left lung, recurrence October 2007 stge 4, was told had only 18 mos , still going strong today. was stable with the use of Alimita chemo drug and God. Went off chemo in 02/09, cells were stable...went back on chem in 04/30/2010 for 6 cycles..quality of life is good, able to travel with cancer in both lungs. will do cat scan in June 2010 to see status. You must stay positive and not give up hope, trust God that is the key. DO NOT LET NEGATIVE THInKING OR NEGATIVE PEOPLE CONTROL YOUR MIND, BECAUSE THE MIND IS A BATTLEFIElD OF WHAT IF'S AND WHEN, GIVE THAT TO GOD TO RESOLVE.

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

This is just what I needed to hear today. I am starting chemo on Friday and find fear is trying to overcome my faith... I pray for the best for you, AND me!

DBST67's picture
DBST67
Posts: 5
Joined: Jun 2010

TRUST GOD, YOU AND YOUR FAMILY WILL GET THRU IT, IF YOU THINK POSITIVE AND NOT LET NEGATIVE THOUGHTS CONTROL YOUR MIND. GOOD DAYS AND SOME BAD DAYS, BUT THE SUPPORT OF YOUR FRIENDS, FAMILY WILL GET YOU THRU IT WITH PRAYER. MY HUSAND WILL NOT ALLOW ME TO THINK NEGATIVE. HE IS AN EXCELLENT CAREGIVER. I THINK HIS FAITH IS STRONGER THAN MINES, HE PLANS FOR THINGS YEARS AHEAD. REMEMBER GOOD DAYS AND SOME BAD DAYS NOT FEELING WELL, BUT IT WILL PASS. EVERYONE IS IN OUR DAILY PRAYERS WHO HAS BEEN TOUCH MY CANCER AND OTHER DISEASES.

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

I found this scripture today: Matthew 9:22. We have to remind ourselves those same blessings are available to us in our day too. I think you are one sweet lady, and lucky (like me) to have the support of a wonderful husband.

BrendaRae
Posts: 20
Joined: May 2011

The words you wrote are the most important words/thoughts to keep in mind during a time like this. My husband has lung cancer and 1 small spot on his liver and a few even smaller spots on his brain-they are spots not lesions, etc. He has begun radiation and will be also receiving chemotherapy. As you could imagine all I got from the doctor was a hurried more than unsympathetic and rude "well we found this-it looks bad- yadda yadda -you knows what that means and you need to do this and so forth." Yes I cried; I am human who would not of and it was even worse because of the way it was presented to me and it was over the phone. My poor husband wasn't even told anything and had to hear the upsetting news of what I had to hear from me and boy was he POed! I said "he said you are not going to make it!" He replied "oh he said I'm not going to make it?" And with the vagueness and rudeness involved he was even more hot under the collar. I mean it seemed like they have already put the nails in a coffin for him and was going to simply toss out at their earliest convenience.

But, even after hearing that news I absolutely refused to accept it and not because of being in denial but because I am a firm believer that you never say die nor is anything impossible with the hands of the Lord. What I think is hard for people to comprehend is the influence that God plays in our lives, and it an influence we cannot see with our eyes and often we will have to wait periods of time before anything of divine power is revealed to us, and that is excruciating, but God works in his own time-not when we would like him to.

What was uplifting is that after all of the above had transpired and we were left sitting feeling "well I guess that is then" I was numb because during this whole time and even know I am having to deal with this on my end entirely on my own. Me and my husband talk by phone he calls from his room and I no his heart is tearing out for me. I have tried to hide my anguish from him because I don't want anything to upset him. When all this started I did go the Jesus and ask for the healing of my husband, and I made a pact with Jesus to fully put aside my needs (as far as being with my husband or emotional ties where is concerned were relevant); in others words I stepped aside so he could get what he needed.

But to go on....as I sitting here at the lowest possible point in my life the telephone rang-it was my husband-he said "I have some news for you that I know will make you feel better." He said that all of a sudden and plan of action was developed to begin treating his illness and it was one that included all possible options. Now less than ten minutes ago it was utter doom. It is my belief that Jesus stepped in and said "Hold it there just one minute-who are you to take it upon yourself to discard one of my children in such a manner" and it was at that instant that the medical teams were "inclined" to change their outlook and get into motion. It has been a non stop effort ever since.

For someone who is having to endure what my husband is enduring he sounds remarkably well. I hate to say it he is better shape than me because I go from waves to utter positivity and then will have moments when old Lucifer will try to grab a hold of me and use my weakness against me. But I know even so God is not mad at me for feeling any such way and he does not want me to over tax myself. It is still hard though, I mean you have all these being said buzzing around you and you can't help but to swoon from it all-you wouldn't be human if it didn't.

And my husband has told me that under no circumstances is he giving up and I asked him not to-and he said he is not. On the first day or two he was in the hospital I had found out by chance my younger sister passed away earlier last year. What a whammy. I hesitated sharing it with my husband on the phone because as I said I didn't want to do anything to upset him and take away his focus from where it needed to be. But a voice said to me-tell him and I blurted it out. Then I said "everyone is leaving me!" He popped right back and said "What? I'm not leaving you baby!" Of course I bawled like a baby.

I am still going through my motions as I expect I will until he gets back home but even still and under all of this strain I just "can't help" but to feel I am panicking prematurely and that I am allowing human weakness topple me. All I know is that everything is possible when you hand something to God and ask for it in Jesus Name-it is written _If ye shall ask it in my name it will be done and I have believed that throughout and still do. Maybe I need to crawl into the tub and chill; I don't think I am having a full fledge nervous breakdown but I am having at least some degree of emotional upheavel. Just pray for my husband and for me to be able to get myself together.

mfarner
Posts: 6
Joined: Jun 2004

The fear is the worst part of cancer in my opinion. It can drag you to a crawl. Fear and Faith cannot reside in the same person. Do what I did. Tell every single doctor and nurse that God is going to heal you. Not might heal you but WILL heal you. (I have TONS of scripture to back that up too). And believe it or not I had an Oncologist laugh right to my face when I told him God will heal me. After he laughed he got a straight face and said, "you will not survive the next six months Mark). My wife went off like a nuclear bomb ( another story ) Its almost ten years of survival for me since they told me to go home and spend time with my two boys. God is good. You can beat this too.

Mark
rush@yahoo.com
farnerm@gmail.com

Dapsterd's picture
Dapsterd
Posts: 291
Joined: Jun 2010

Hello!......I am 47 yrs young, was diagnosed with 3b adenocarcinoma this June 1st, no brain/bone/liver mets, but 1/2 dozen lympnodes in chest areaboth sides and tennis ball size tumor in upper right lobe. Started chemo and rads same week, this week is my 5th week.

I Panicked at first diagnosis !! Looked at all web sites for prognosis and yes they were grim at best

BUT ----- Here is what I have discovered.

I HAVE NOT seen published from a reputable site, like ACS, NCI, etc..stats that are Later than 2006 OR 2007. I am told alot has changed since then, with drugs themselves, and how they are applied, when they are applied, frequency of treatments, radiation technology, etc....now curious to see how your individual treatment center figure their own stat because they can/may filter them prior to reporting to be more like your moms characteristic?...I dont know..technology should be there.

SO my Docs only said if I did "nothing", I may have 6 months or so, if I take to treatment, I have a year +++++++++++++++++++++++ !!!!! They said they are going for a cure on this one...so I am with them .....but.....always in the back of my mind I have a sense of something bad impending, but I push it out as quick as I can.

Also....Stats DO NOT tell a persons physical condition, life style (some still smoke, eat terrible, etc), age, other medical issues, etc.....so I and YOU...WILL MAKE A PACT NOT TO REVIEW THEM AGAIN !! DEAL ? LOL

Thanx, love ya all
Dave

shutt
Posts: 3
Joined: Dec 2011

OUR JOURNEY IS JUST BEGINNING ALSO. MY HUSBAND WAS DIAGNOSED WITH ADENOCARCINOMA ON NOV.23,2011. THE 'LOST' FEELING YOU GET WHEN YOU HEAR THE 'C' WORD IS SO OVERWHELMING! LIKE YOU STATED....THE STATS REALLY SUCK!! WE ARE GOING TO BE WITHIN THE 25% AS WELL. SOMEBODY HAS TO BE THERE...MIGHT AS WELL BE US!! WE WILL HAVE THE PET SCAN ON DEC.8. GAMEPLAN TO BE DETERMINED AT THAT POINT. HAS ANYONE EVER HEARD OF TAKING -CIMETIDINE? DAVE....I HAVE AGREED TO NOT EVER LOOK AT STATS OR BELIEVE A TIME FRAME THAT MAY BE PLACED ON A LIFE....... GOD DETERMINES OUR DESTINY!! BEST TO YOU

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