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survivors of Terminal Stage 4 lung cancer

Stardust1
Posts: 44
Joined: Jul 2008

Dear Members,
Please let me know if there are ANY survivors out there with Stage 4 Lung Cancer, (Terminal)taking radiation.

God Bless All

Stardust

sirwmscott
Posts: 12
Joined: Sep 2011

Dear Realiti,

Thank you for your updated post. It is very encouraging. I too believe eating healthy is a very important part of a "successful" treatment program. My Mother was diagnosed with Stage IV NSCLC July 2011 at just 79 years old. She went through 4 treatments of carboplatin and Alimta and has been on Alimta every 3 or 4 weeks since (7 or 8 treatments). Got the results yesterday from latest CT that all is stable (2 lymph nodes decreased just 1mm each - we'll take any reduction we can get). On the way home yesterday Mom said "maybe the doctors are wrong and I can beat this cancer". Great attitude helps!! She has mets to 3 ribs, pluerel and 4 or 5 lymph nodes in addition to right lung.

Mom flew to Portland this morning (before the chemo takes hold tomorrow and she is down for a few days). The doctor asked me a lot of questions about how I analyze the blood work and test results yesterday - thought I kept an excel spreadsheet (lol). Mom thinks it is because he does think it is helping her stay stable.

Your Father is lucky to have you around to help him with this fight - it does make a difference. May your Father continue to have few, if any, symptoms and stable disease!

River view
Posts: 7
Joined: May 2012

I have only just joined this site but I was diagnosed with Stage IV lung cancer in March 2007. I was inoperable and had masses in both lungs. I endorsed 2 years of core chemo before it spread to my neck and then 6 months of a trial. My neck cleared but it reared it's ugly head in my right Adrenal Gland. At that time, I started Alimpta which at the time was a 2nd line drug. That along with (as my doctor puts it) my determination found me with only one tumor which had shrunk to a very small one, in August of 2011. At that point, I had been on chemo for over 4 years. My doctor along with 3 other doctors decided to give me the option of a fairly new type of Radiation for lung cancer which had only been used with Stage I . It was 5 doses of extreme radiation over a 10 day period. Four months later, scans showed no new signs of cancer and the charred remains of what they had zapped. I am going for the scheduled 3 month scan in a couple of weeks. I feel fine, a little short breath sometimes, but that's nothing! I haven't had chemo since July 2011 and celebrated 5 years and still fighting this past March. So my message is to keep fighting the fight as science is getting better and better. Believe in tomorrow as I was not expected to have too many of them.

Sincerely. ....

MarchiSiahaan
Posts: 1
Joined: Jul 2012

Hi.. My father was diagnosed non small cell carcinoma stage 4. My father is doing radiation now. The doctor said that he'll start the chemo next week, but it's only paliative. May I know where was you go for the treatment? And is there any slecial diet for you? Could you share what treatment you get in detail? You're story has give us hope. I really appreciate for the sharing. I'm sorry for my bad english. Thank you so much.

Happyjack50
Posts: 2
Joined: Feb 2011

Can you please give a contact and phone number. The name of the treatment. I am almost3 years but the doctors have run out of options and say I have 3 or 4 months. after 5 types of chemo And I am a fighter under God's protection. Thanks so much,,,

Jack O'Hara

Lindseyc5038
Posts: 3
Joined: Apr 2012

River View,

Your post caught my attention. My 60 year old father was Dx with Lung Cancer in January, 2012. They considered it to be stage III due to the size of the mass. His oncologist said he would not be a candidate for surgery, though he DID end up having a lobectomy in June, 2012. He finished up with Chemo in August, 2012 and went for his first 4-month check up in November. They said everything looked fine. He just went for his second 4-month check-up last Friday, March. 29, 2013. They saw "inflammation" on the adrenal gland and set him up for a Petscan a few days later (yesterday). The Petscan confirmed lung cancer metastasis to the right Adrenal gland. So far, they do not see it any place else (knock on wood). His oncologist is a "debbie downer" and leaves us not even the slightest bit of hope whatsoever, but we are appreciative of the straight facts anyway. She has already said that it would require "pallative treatment" (chemo) and would not be curable. She quoted us statistics of the average of those with Metasticized cancers living one year from time of dx. We are horrified by this news. I also know that my father has a lot of fight in him. He beat Leukemia 15 years ago and he did well with the lobectomy, showing still 100% breathing, despite the oncologist originally saying he couldnt have surgery. I am not sure what to think. I am hoping it isn't any place else, and just in the adrenal gland so we can treat it. They will treat the whole body of course, but I don't know why his oncologist wont discuss removing the gland if it ends up just there. It almost seems as if she is expecting it to be elsewhere. It seems that you've gone through similar, so any info/advice you can provide is most helpful. I truly hope you are doing well and have continued to beat this cancer. If you see my post, please update me on your situation. I need as much help as I can get rigth now. By the way, I am 28 and about to be married in 6 months. As much as I want my dad to walk me down the aisle, I want him here with us for much longer. I feel like my heart has been strangled.

Lindsey 

Lindseyc5038
Posts: 3
Joined: Apr 2012

River View,

Your post caught my attention. My 60 year old father was Dx with Lung Cancer in January, 2012. They considered it to be stage III due to the size of the mass. His oncologist said he would not be a candidate for surgery, though he DID end up having a lobectomy in June, 2012. He finished up with Chemo in August, 2012 and went for his first 4-month check up in November. They said everything looked fine. He just went for his second 4-month check-up last Friday, March. 29, 2013. They saw "inflammation" on the adrenal gland and set him up for a Petscan a few days later (yesterday). The Petscan confirmed lung cancer metastasis to the right Adrenal gland. So far, they do not see it any place else (knock on wood). His oncologist is a "debbie downer" and leaves us not even the slightest bit of hope whatsoever, but we are appreciative of the straight facts anyway. She has already said that it would require "pallative treatment" (chemo) and would not be curable. She quoted us statistics of the average of those with Metasticized cancers living one year from time of dx. We are horrified by this news. I also know that my father has a lot of fight in him. He beat Leukemia 15 years ago and he did well with the lobectomy, showing still 100% breathing, despite the oncologist originally saying he couldnt have surgery. I am not sure what to think. I am hoping it isn't any place else, and just in the adrenal gland so we can treat it. They will treat the whole body of course, but I don't know why his oncologist wont discuss removing the gland if it ends up just there. It almost seems as if she is expecting it to be elsewhere. It seems that you've gone through similar, so any info/advice you can provide is most helpful. I truly hope you are doing well and have continued to beat this cancer. If you see my post, please update me on your situation. I need as much help as I can get rigth now. By the way, I am 28 and about to be married in 6 months. As much as I want my dad to walk me down the aisle, I want him here with us for much longer. I feel like my heart has been strangled.

Lindsey 

Kiki..'s picture
Kiki..
Posts: 2
Joined: Apr 2013

I am still unclear on a lot of cancer topics.  I didn't know that after my surgery & now getting chemo & radiation that the cancer could come back and it could be terminal.???

 

I had surgery on the left lung to remove the lower lobe on Feb. 18th 2013.  I am to have 6 weeks of Chemo & Rad.  I started Chemo on Monday & that is once a week and the Rad is every day.

 

I'm a bit lost on this one.  I forgot what stage I began at.  Either it was 3 or 4.  I'll find out for sure this Monday when I go in for 2nd dose of Chemo.

 

charlespiercey
Posts: 3
Joined: Sep 2010

Check these two supplements. They are inexpensive supplements
available over the counter (I order mine by mail):

IP6 (Inositol Hexaphosphate)

http://www.mskcc.org/mskcc/html/69264.cfm

Inositol:

http://clinicaltrials.gov/ct2/show/NCT00783705

http://www.vitamins-supplements.org/inositol.php

reddar7's picture
reddar7
Posts: 4
Joined: Oct 2012

quite frankly after the first half of chemo and good results, I was doing the IP-6 and 2 other immunne system supplements. another was 3 kinds of mushrooms also a pill.
The 2nd half of my chemo went south in a bad way to my brain and lots more on bones.
A question came up to wonder if any supplements conficted or caused the first best chemo to not work as well. I'll never know the answer, but am currently looking at the Cancer Treatment Centers of America, that seem to be claiming that they can "metabolically" see what works for you. The marketing lady there talks of her own mothers cancer and how green tea she was using is great for most all cancer patients, EXCEPT her mother after their testing

zhou999999
Posts: 1
Joined: Oct 2010

Hi Peter,

We are very happy for your father.

My friend is fighting the stage 4 lung cancer. We greatly appreciate your sharing with us the diet of cancer fighting foods that was used by your father. Thank you very much on behalf of our friend.

David

Suchap54
Posts: 1
Joined: Nov 2010

Hi PeterJr,

I am trying to help my brother who was diagnosed with NSCLC inoperable in May 2009. He found out a couple of weeks ago that it had metastisized to his brain. He is currently undergoing radiation. I was reading about your father's fight against cancer. Can you tell me what foods he is eating to fight this terrible cancer? I would appreciate any information you can give me.

MDKG
Posts: 1
Joined: Mar 2011

Hi. Can you tell me what kind of chimo he had? Thanks.

SamanthaBrophy
Posts: 24
Joined: May 2011

My mother in law is sick with cancer and we want her to fight, I was wondering what type of food your dad was on. I know you havent posted in a long time but please i would greatly appreciate the help. we love her so much we just want to give her the best chance possible

Sincerely Samantha

simon62
Posts: 1
Joined: Jun 2011

i have been diagnosed with stage 3 small cell lung cancer and also been given 6 months to live am having chemo and i am also a insulin dependant diabetic can you please advise me of the type of cancer fighting foods please

Kindest Regards
Simon

lekkerone
Posts: 199
Joined: Jan 2011

I can't help you Simon but just wanted to say I am so sorry about your diagnosis but I have read on here where others have had a time line and are living way past that line and doing well. So please don't give up. Perhaps you might get some ideas if you googled your question. Hopefully someone on here can help you. Fight Simon,,,,don't give up. Diane

medi_2's picture
medi_2
Posts: 506
Joined: Aug 2009

don't let anyone give you a time limit! Stay positive, none of us knows how long we have. As for cancer fighting foods? Any food that tastes good to you that you will eat so you can keep up your strength.
I wish you the best!
Medi

eltigremax
Posts: 1
Joined: Jul 2011

Hi, I am glad your dad is doing better. My mom was diagnosed with stage 4 lung cancer ;adeno carcinoma;. Is there any suggestions on a diet? We are gradually starting to give her juices and hopefully will start her on a gerson diet. What was your dad on?Please contact me when you can. I would really appreciate it.

-Juan
719-671-6130
eltigre496@hotmail.com

Full of Hope
Posts: 1
Joined: Feb 2012

Good Morning.

I read your post above and was so inspired that I printed it out to show my Dad in the hospital later today.

4 days ago my 79 year old Dad was diagnosed with stage 4 non small cell lung cancer and given between 2months and 1 year to live (without treatment) . When I read you put your Dad on a diet of cancer fighting foods I called my Mom and she wanted me to contact you to ask you about the diet you fed your Dad. Also how does carbonized sodas and sugar play a factor?

If you could help us we would be so grateful.

Thank you.

Full of Hope

frajuma5
Posts: 2
Joined: Apr 2012

Hello PeterJr,

I wanted to thank you for sharing your dad's story. It is certainly inspiring, and believe it or not lifted my dad and my family's spirit.

My dad was diagnosed about a week ago with stage IV lung cancer, which we did not expect at all, as my dad has not been displaying any symptoms other than his chronic cough (which he has had for years, way before they found something in his xrays, and scans).

I came across your story after googling stage iv survivors and I am happy to have stumbled on your dad's story. I showed it to my dad, and it gave him even more of a fighting spirit. I guess that's what we all need with all of our cases, examples of hope. You and your father are such an example of hope and optimism, that after reading this, my dad has asked me to print your post and to put it on the refrigerator to look at daily. I see it as a token of survival, so God Bless you!

The doctor said that his cancer at this point is incurable, but I adamantly feel that it should not be hopeless. Since his diagnosis, we also have heard of survival stories, one which came from our home country (Philippines) of a famous newscaster who was diagnosed in 2008 and was given only three months to live. He miraculously lived for almost 5 years past his prognosis when he succumbed to the cancer just this month.

We are faithful that our dad will live through several more years and we are faithful that he manage a normal life even with this cancer. Thank you to stories like yours, there is much hope for those in despair. Just because this cancer and the stage that it is in is incurable, it does not need to be a stamp of a death sentence.

God Bless you, your family and especially your father.

frajuma5

le_sarah
Posts: 2
Joined: May 2013

Hi. My uncle was diagnosed with the same stage and was also given the 6 months time frame, he's just on his late 50's. What happened to your father being stage 4 to stage 2 and now gone is really amazing. I hope what he did can work with my uncle. Can i know what are those cancer fighting foods he had? Please. Thank you.

Ginerz
Posts: 4
Joined: Nov 2013

Hi... Wow your story gives me hope for my father who is 64 and diagnosed with stage 4 lung cancer, also in ribs, lymph nodes and lower back....she had 2 chemo treatments so far and dr said his tumors strank 3/4 so far...what cancer fighting foods did u use???

Ginerz
Posts: 4
Joined: Nov 2013

Hi... Wow your story gives me hope for my father who is 64 and diagnosed with stage 4 lung cancer, also in ribs, lymph nodes and lower back....she had 2 chemo treatments so far and dr said his tumors strank 3/4 so far...what cancer fighting foods did u use???

Ginerz
Posts: 4
Joined: Nov 2013

Hi... Wow your story gives me hope for my father who is 64 and diagnosed with stage 4 lung cancer, also in ribs, lymph nodes and lower back....she had 2 chemo treatments so far and dr said his tumors strank 3/4 so far...what cancer fighting foods did u use???

Ginerz
Posts: 4
Joined: Nov 2013

Hi... Wow your story gives me hope for my father who is 64 and diagnosed with stage 4 lung cancer, also in ribs, lymph nodes and lower back....she had 2 chemo treatments so far and dr said his tumors strank 3/4 so far...what cancer fighting foods did u use???

mfillippo
Posts: 1
Joined: Dec 2013

All the posts on this site have been very helpful to me.  My grandpa, 83 was just Dx with stage 4 lung cancer.  I sit here watching my family fall apart, but I have a sense of calm and hope.  He is a fight and I KNOW he can fight this.  Your stories is inspirational, thank you for sharing. 

starrfilled
Posts: 5
Joined: Jul 2010

Hi Greg,

I was wondering how large your nodules were and if there were more then one? My mother is 74 and I would like to know from survivors.. what treatments you chose and why.. so that I have a guide and options that actually have worked with the survivors. So far.. my mother has no primary site location. She just had her biopsy . We go on the 23rd to see what options she has. She has one 3 cm nodule on the right and two the same on the left. Hers has not grown in size in months. Hope you can help.. Leah

River view
Posts: 7
Joined: May 2012

Just celebrated 5 years so keep believing in your own strength to fight along with the science.

River view
Posts: 7
Joined: May 2012

Just celebrated 5 years so keep believing in your own strength to fight along with the science.

nubis's picture
nubis
Posts: 99
Joined: Mar 2008

My husband is facing small cell lung cancer. He is only 33 years old. He is stage IV. I don't know if this is terminal, some days my husband looks healthy, somedays he is very sick, future is uncertain. Present is to fight. Of course you think in death, for me is very difficult, when my husband is on pain I think the worst, but then next day he feels better and you just know you need to keep fighting.
We do what we need to do. Rigth now, I just call for clinical trials, to see if my husband can be a candidate. We are trying all the options we have. Of course sometimes I feel sad, very very sad. I cry in the shower, so my husband doesn't see me, because I need to let my feeling get out. I need to be healthy for him. But after that, I keeping searching, keep praying, keep doing what we need to do.

Good luck.

wstexgirl's picture
wstexgirl
Posts: 7
Joined: Mar 2009

My dad and I were told dec 3 that he had stage 4 non small cell..he said 2 months without chemo 10 to 12 months with chemo he has has 6 treatments and now he has what they call chemobrain its so horrible..For the 1st time Im not happy about being the only child..so its just me and my daddy e-o doing the best we can...I love him so very much... nubis how long has your husband had cancer...and I will add you in my prayers

green50
Posts: 318
Joined: Feb 2008

I read a story on csn I believe, been a year. Anyway she was talking about she did everything and moved into stage 4 lung cancer, she was put on a different chemo and guess what? She beat the cancer. So nothing is short of a miracle. Everything can effect people differently and you never know and never never give up hope. I am an ovarian stage 3. Been off and on chemo seven years. Anything can happen- miracles do.
Prayers and Hugs to all
Sandy

pattig1968
Posts: 2
Joined: Apr 2009

hi my name is Patti....my husband was first diagnosed with nasophargeal cancer in 2005 and received treatment for about 7 wk of radiation and then returned again in 2007 once again he received radiation with a shot of chemo 1x a week..Here we are in 2009 and he has once again been diagnosed with this dreadful disease....this time it has spread to his lungs..about 2cm....we will be going away for the Easter Holiday....and then he will start chemo again....no radiation.....I also cry each and every day ....but out of his vision...Dont't know how I will control this one when we are away.....He has been depressed ...but not admitting to it.....Today I told him to get out of bed or we will cancel our reservations.....I love him deeply ...and been married for 40 years...and can not stand to lose him...But told him that he also has to fight and not give up....He's a Marine....And as we know they are the "Best"....so I told him once again to get out of bed and let's fight....We were told that this time no cure....hello there never was...but only that they can "control" it.....I truly believe that this time it will do the job....I have so much faith...that God will carry us through this...thanks for letting me vent...feel free to do the same

MadelynJoe's picture
MadelynJoe
Posts: 96
Joined: Sep 2003

Dear Patti:

I can well understand your distress. My husband is a six year prostate cancer survivor and I am a 4 year nonsmall cell lung cancer survivor. When your husband's Doctors say they can "control" it - they mean it. I know quite a few people that are very long term cancer survivors through my cancer support group. One lady has been treated for metastatic ovarian cancer for 12 years now and she and her husband live active and full lives! I know breast cancer survivors of 20 to 30 years! Our group has long term survivors from every type of cancer imaginable. Metastatic disease can be controlled, you better believe it!

I have been on both ends of cancer; I've been a caregiver for a loved one and I've been a patient. If I had to pick, I would say it was harder going through my husband's diagnosis that mine (because I love him so much). You sound as if you two are very much in love. If you allow yourself give in to the "doom and gloom" thing; you're going to be miserable and so will he.

You are a Marine's wife - you can do ANYTHING! You are accustomed to sacrifice (when he has been on deployment) and you are TOUGH! This does not mean you cannot feel the pain or cry the tears. I have a friend that set a timer for 5 minutes every time she wanted to cry and sometimes had to set it the second time but, she did not give into the doom thing; she stayed positive. Today she is a 10 year breast cancer, double mastectomy survivor!

Put your arms around your husband and tell him something like ... "Our love is strong and we can do anything. We've gone through bad times before and we will do it again. Let's get out there and fight!"

Arm yourself with information. Learn everything you can about this type of cancer and the latest treatments. Don't be afraid to question your doctors or suggest things. You have to be your own advocate in the medical community today. A good doctor will not mind your questions/suggestions. Go to the MD Anderson and Sloane Kettering web sites and get some good information from the experts.

By the way, in case you do not know, when you are searching for information, nasophargeal cancer will apply, NOT lung cancer - even though the small tumor is in the lung. You will still need to search info regarding nasophargeal cancer - the original site.

Sorry this "Pep Talk to the Troops" went too long but, you two sound like fighters and I think you can win this "War".

Best regards,

Madelyn

lisamariec
Posts: 3
Joined: Apr 2009

I wish you and your husband the best - he is so young!! Keep praying and loving and him to pieces. I'm also a strong believer in natropaths. Google ESSIAC Tea - see what you think. My mom is on it and I swear it in conjunction with radiation, it is shrinking her tumor. Ya never know - if anything - it is a good body cleanse.
Take care!

rosewood62
Posts: 2
Joined: May 2009

He is just 43 and has terminal lung cancer. It has spread over the last year to other parts of the body. It is so hard when they are so young. He too has his good days and then bad. Keep praying,try to stay strong, That isn"t always possable. And yes we do have to cry and let our feelings out. Our body can't hold everything in. My daughter-in-law also has to find time for self to just let things out. It is so hard kowing they are in pain and not being able to help. Never stop fitting and trying new resources. Our prayers are with you.rosewood62

seanslove's picture
seanslove
Posts: 71
Joined: Jul 2009

Nubis,

Our story is about the same. My husband went from perfect health to down with what seemed like the flu. That was the 1st of April. Due to not having insurance or extra pennies for doctors,he tried to fight what he thought was a really bad cold. On May 18th he could fight no more,could not breath,and finally gave in to trying the emergancy room. Of course they took him. Within a few hours he had a tube in his left pluerl sack to drain the fluid which was causing him not to be able to breath. For the next 12 days he stayed there and they did what they said they never do:sent him home with his chest tube. On May 21st they told us he may have cancer,on May 26th they told us it was mesatitic adrenocarsinmoa,stage four.
From there we have walked a path filled with PET Scans,MRI's,Ultra-sounds,enough blood work to drain a cow,EDG and Colonoscopy,which the colonoscopy had to be stoped because of the omental mestasis at the thrid sigmoid of the colon. From there,two weeks ago this Thuresday he had his medi-port,much to our displeasure placed,as we would have rather went for the IV's instead,however,the doctors refused our request.
Now we sit and wait for answers to the day when chemo will start and if it will really do anything at this point. He has lost over 40 pounds since April,is in non-stop pain. The doctors answers:take this take that,however,they do not offer a schedule which works. This brings us to today;his birthday. Today I have done more research and we are going through trail and error phase of managing pain,pain meds,all in a hope for relief and his desire to eat to return. Has anyone else faced anything like us?

maricusa420
Posts: 2
Joined: Sep 2009

my husband had no appetite at all, he was losing sooo much weight, then they gave him the strongest dose of megace, this is an appetite stimulant...it reallly works...he has his complete appetite back. he was down to 112. and now he is up to 120.thank god. i hope you know about this, if not ask your oncologist to prescribe it. god bless..also ask for a pain management doctor. cuz nobody should have to suffer like that. my husbands doctor was having my husband go thruogh the same darn pain and recentely when he was in the hospital a social worker recommended a palliative care doctor(pain management) and they switched his meds and added some...some are extended release and others are for breakthruogh pain(for when pain comes on strongly and all of a sudden) thats when you need to take something that will relieve the pain at that moment. i hope my info helps, because i really feel for people that are going thruogh that kind of pain, when it isnt necessary.

Hauslohn
Posts: 2
Joined: Nov 2009

My husband has Lung Cancer, stage 4, spread to some lymph nodes, collar bone and one adrenal gland. It is in an inoperable part of the lung.... he is finishing 6 weeks of radiation, and at the same time has also been doing Chemo ( 3 sessions done... more to go till the end of January 2010). Thank you for mentioning an Appetite Stumulant "Megace" ... he really needs that and I will ask the doctor for it. He is so exhausted, without energy and "down".. doesn't want to be around people, etc
Many Thanks for your help - Truly from the heart!

msdixie56's picture
msdixie56
Posts: 3
Joined: Nov 2009

Dear Seanslove,
I'm so sorry that you are having to watch your husband go thru this horrible ordeal. I can completly understand because my daughter was diagnosed in Aug. of '09 with stage 3b lung cancer. The doctors told her at that time she had probably had it for about 8 months which it means that while she was pregnant she had gotten this cancer. She was first mis diagnosed with pnuemonia until her 3rd visit back to the dr. when he sent her to a plumanary dr. She had 2 thorasentesis & then the news of cancer. From there she was put in the hospital to get a chest tube cause she could'nt breath cause of all the fluid she had. While in the hospital she had a lung biopsy & a few days later she had a talc prodedure done which was suppose to inflate in lung & stop the fluid from building. Well her lung inflated but she still has the fluid. Now she had a plurex catherer put in which she will always keep unless the fluid stops building on its own & we have to drain her lung every night. The dr. put her on Tarceva. She started having back pain and now has a large mass on her tailbone which she had radation for. We had to rush her back to the hospital 3 weeks ago because of severe diarreah & a stabbing pain in her bell. Well she now has a few "spots" on her liver & brain. She spent 2 1/2 weeks in the hospital cause she lost so much weight & was very week. While in the hospital she had a seizure & thats when they discovered the brain cancer. She is having radation on her brain & after she is a strong enough she will start chemo. Before she got sick again she had been excepted to Memorial Sloan Kettering in New York but that has to be put off till she is strong enough to travel. We are hoping to go soon as we feel NY might have the magic bullet.All I can tell you is keep the faith & question everything & make suggestions.If your dr. gets pissed find a new one.I kept pushing on Jennifer's dr. to put her on TPN, which is a feeding full of calories & vitamins & nutrients to help put the weight on, well he finally put her on this and she gained everything she lost plus.I also pushed them into putting a pick line in. Jennifer's veins were virtually non-exsisent so this makes it better for IV's & blood draws, she would have needed one for the chemo anyway. Her pain is being controlled with heavy doses of morphine. She is on a 12hr pill of 60mg plus she has a 30mg morphine which she takes for her break thru pain. This seems to be working well for now. I know the anguish you are going thru & also your husband. Having to stand by & watch & being helpless is very difficult. I'll include you & your huband in my prayers.Just remember you almost have to be your own health advocate. Don't be shy about asking your doctor anything or keep pushing them on his pain meds. He should'nt have to be in pain. We also had to push for the thing we thought our daughter needed. Jennifer has 2 young girls ages 5 months & 3 years. We have now moved in with her & Her husband to help take care of the house & kids. Ask for help. You'll find they are more than willing to help. GOOD LUCK!
Keeping you in our Prayers
Sharon

iola_s_mom_is_so_brave's picture
iola_s_mom_is_s...
Posts: 16
Joined: Jan 2012

The only thing I can say is well done, Sharon, You are a great mom!
I believe Jennifer can make it. Keep praying, god bless you :-)

nancysue47
Posts: 5
Joined: Jul 2009

I can only speak for myself but I have concluded there is no deadline. I believe that cancer can get better, you can be declared cancer free but for how long? When I was told it was back I realized that living with cancer will be my way of life. So I will resume chemo in August and once I have taken all of the rounds this time, I will sit back and enjoy life until it is time to do chemo again. So, if my cancer can be controlled this way, I will be happy.

I have down days too. But it hurts me to read that you all are crying in despair. I wish I could help make things better for all of you. Every night before I go to sleep I thank God for giving me the day. Every morning when I awake I picture myself curled up in God's hands. I have a picture I got off of the computer of Jesus walking on the beach but you can barely see Him. In the picture you can clearly see a picture of a woman He is carrying in his arms. I say to myself that if HE can bring me to it, He will bring me through it.

nancy

becmarsh
Posts: 4
Joined: Jul 2010

How is your husband now?

I ask because my brother who is 60 was diagnosed in Jan. 2010 with stage IV lung cancer.
He has had radiation and chemo and is now on a drug called tarceva.

He has the same symptoms --looks healthy some days, don't feel well others, depressed
a lot. Appetite is good sometimes and other times, not good.

costello782
Posts: 19
Joined: May 2012

Hello - I am hoping that you may check this message...my husband is also 33 and has been diagnosed with stage IV non small cell lung cancer. I understand that your husband has small cell but I was hoping that you could share any information. My husband has been accepted into a clinical trial with 3 drugs that he will receive every 3 weeks. Praying for you and your husband.

Mionie30
Posts: 1
Joined: Mar 2009

My mom was just given the news of having stage 4 non-small cell lung cancer on March 9th. We found out 2 days later that it has spread to her brain. Radiation was started the very next day. Chemo is an option, but the doctors seem not to want to. Given my moms long history of health, they are worried she will live the remainder of her life ill (they have given her 6 to 9 months at most). She has been a fighter her whole life, she was born in 1957 in Brockton, Ma. She and 1 other baby survived, a staff infection went thru the ward and killed all of the other babies. She has spent her whole life fighting odd infections and illnesses, that have left doctors stumped. She has been physically disabled most of her life and has been limited to everything. But even with her hard life at only 51 today, she still keeps smiling and getting up every morning with hope. I don't know how she does it!!! I can't sleep and I stopped wanting to eat on March 9th. I can't stop thinking of the numbers; 6 to 9 months. Those 2 numbers are forever in my mind. I just don't know how she is doing it. We are fortunate to live in Ma, with the great Boston hospitals. The radiation treatments have been spread out, as my mom is at risk for infections, more so then the average person. We are going to Dana Farber on Tuesday to see if my mom is a canidate for any clinical studies/trials. Keep your fingers crossed and pray if you can. I will pray for all those dealing with and caring for someone with Cancer. Cancer is everywhere. My father has also been fighting lung cancer since last spring, but he has been a good prognosis, lets hope in a few months that when he goes for another scan its still as positive, he has 2 small children from his second mariage and they deserve to live and grew with their dad. It's been a tough year to say the least. I really needed to get this out, thanks for listening. Take care, hope to hear from someone soon.

~Mionie30, MA

nanaof7
Posts: 121
Joined: Feb 2009

I am sorry about your mother. I am a few years older than her and have been diagnosed with stage 2 lung cancer none of my dr. give prognosis they have told me they are not God and just treat my disease their best. I am wondering if anyone else's drs. are like this I myself don't believe in giving me a time I am going to die.If your mother is a fighter than she will know how to deal with this. tell her not to give up.

pattig1968
Posts: 2
Joined: Apr 2009

I too had a Mom with non-small cell lung cancer ..and took care of her. Love her, cater to her her and give her whatever she wants. If it breakfast time, give her her favorite dessert. My Mom's was ice cream or jello. It slid down without any trouble. and she really enjoyed it...Does it really matter what she eats as long as she enjoys it....All I wanted to do was to make my mother confortable and what little she could eat, she enjoyed it...Love her and make sure she knows it.....You are her little angel...so help her fly to God's arms peacefully! take one day at a time...............

lisamariec
Posts: 3
Joined: Apr 2009

Hi there - my heart broke when i read this... i can not sleep either - my mom is going through a similar diagnosis. How is your mom now?? It's hard sometimes to stay positive, eh? I'm trying but having difficulty. Miracles happen EVERY day though - that i know for certain.

Fran83
Posts: 12
Joined: May 2009

My mom is going through a similar experience. She seems to have brain metastesis and they started her treatment a week ago.

First , radiation to the head for 2 weeks (Mondays-Fridays for 10 min). Then the doctor told her to wait for 1 month before starting chemo!!! I am worried that 1 month is too much considering that it can spread even more!

I have done lots of research about the different treatments possible and i have asked a friend from Montreal whose dad has squamous cell cancer. There so much possibilities but which one is the best option?

My friend's dad did radio every week day for 30 min + chemo once every 2 weeks.... He is now in remission.... My mom's doctor said that this is too much and told her to do only 10 min of chemo (and since she is currently doing brain radiation, the doctor told her to have a rest period of 1 month before starting chemo as it could be dangerously toxic!!!)

I know that cancer is everywhere but this is the first time i see it up close.... i love my mom so much and i want and need her to survive this. I feel so frustrated and frightened.....

There's supposed to be this new drug CBLB502 from bio lab pharma in Ohio. Apparently, it puts a tag on cancer cells so as radiation can kill them easier... it has been successful with animals and they have been doing human tests.... apparently, it is supposed to come out in the market soon... but that is all the information i have.... does anyone have more info about this???

I hope to hear from you Mionie and i hope that your mom will get better....
Fran

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

Fran83 -
I'm fairly close to your Mom's age (53) and diagnosis - NSCLC with mets to the brain. It was only last December when the brain mets were discovered. I had surgery - a breeze - and then 20 or so whole-brain radiation treatments (and 5 more focused sessions), which were less than a breeze and took a couple of months to "recover" from. I say "recover" in a general way - I'm not so fatigued any more but I have some memory problems, never as much as I read about, though.

Anyway, my oncologist also had me wait before starting medication (Tarceva) - it was at least a month. They want to give your body some time to repair itself from damage done by the radiation before slamming it with more toxic drugs :)

As it turns out I was thankful for the break since I had a pretty bad reaction to the first high-dosage Tarceva (better now, slowly increasing the dose), and I can't imagine suffering through that while trying to come back from the radiation. So there are reasons for waiting.

Best of luck to your Mom!

Deb

Fran83
Posts: 12
Joined: May 2009

Dear Deb,

Thank you for your reply. My mom is set to finish her radiation set soon. She did not do any surgery but I think the doctor wants to kill of the metastises and plan to have surgery later on. I am not really sure.

When were you diagnosed and how is your treatment working? Do you do chemo (how often?)?

They are planning to put her on 1st line chemo cisplatin or carboplatin plus paclitaxel.
2nd line chemo: targeted agents or taxol or gen cisplatin....

i heard avastin is a good one but i do not know why her doctor never mentioned it.

I know that she will probably need to rest and strengthen up after the sets of radiation (wbr) but i am just a bit worried that her cancer spreads even more during those weeks that she will not be doing any treatment.

Did you have any complications while waiting for your treatment to start? Was there more spread?

Thank you again for responding. It is really good to useful to hear from people living with this illness and hear that although prognosis is not good that it seems that some people are able to fight it off.

I hope that things are looking bright for you.

All the best,
Fran

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