Feb 22, 2009 - 10:08 pm
I just signed up and it is really great that I finally have a place where I can talk about my diagnoses without having to go into a ten minute explanation. Cancer is a very alienating experience as it is, having a rare diagnoses is even more so, I feel. I have not only never met another person with my diagnoses (Mixed-Cell Mediastinal Germ Cell Tumor), I have never met another doctor who has treated it. I know everyone going through cancer is in the same boat on some level but it would have helpful to feel like I wasn't such an anomaly.
I hope I don't come across wrong but there isn't going to be a "Mixed-Cell Mediastinal Germ Cell Tumors Walk-A-Thon" any time soon. Has anyone else felt this way? I don't mean to belittle anyone else's story and I certainly don't wish there were more people with this diagnoses (just typing that gives me the willies), I just feel this could be something that other people have felt.