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prior symptom - polycythemia vera



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tbado

				          
            Posts: 12

          
          
            Joined: May 2008

          
        					
				
		
									

        			    February 21, 2009 - 5:12am			  			

			
			
Prior to being diagnosed with RCC by the rupture of a primary tumor, I was

diagnosed with idiopathic polycythemia vera. It turns out that my primary

tumor was making an erythropoietin loke substance that functioned in the same

manner but was not specific enough to be picked up on the lab assay. I was wondering

if anyone else had a similar experience.


‹ 35 year old recovering from nephreureterectomy have questions new cancer pt ›

						
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smurfin57

				      
	        Posts: 22

	      
	      
	        Joined: Sep 2009

	      
	    				
		
			
October 10, 2009 - 9:31am

			
polycythemia
			
Yes it's not just you. I had an episode about four years ago with what they thought was Polycythemia. The doctors were unable to pinpoint the cause. Now I have recently been diagnosed with Kidney cancer. I also had numerous small symptoms that resolved themselves. I just thought I was getting old!!



			
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Von55's picture
						
Von55

				      
	        Posts: 56

	      
	      
	        Joined: Aug 2010

	      
	    				
		
			
August 14, 2010 - 6:20pm

			
RCC & Polycythemia
			
Hi! Not sure if you're still on the forum, but I have some real concerns about polycythemia and whether it will impact on my upcoming surgery (and after). I am newly diagnosed with a 5.5cm RCC on my left kidney, and am scheduled for radical nephrectomy in 2 weeks time. I'm wondering now if my high red cell count is due to the tumour- I've had untreated Polyc for over 2yrs(damn doctor!), and have heard that the most effective treatment is phlebotomy, which is now out of the question. I'm so worried that with the increased risk of blood clots etc that the operation may be more dangerous. Any info would be really appreciated!!

Yvonne



			
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