Feb 19, 2009 - 7:38 pm
I'm trying to connect with other people who have Nodular Lymphocyte Predominant Hodgkin's. We have a rare sub-variant of Hodgkin's that has things in common with Hodgkin's (but no Reed Sternberg cells) and characteristics of Non-Hodgkin's that I'm beginning to believe can pose unique challenges to proper treatment. I'm also finding that even the best of doctor's may not be aware of the uniquness of our variant and are content to lump us in with the classical Hodgkin's variants and treat us according to the same protocols. I'd like to compare our cases. We are our own best advocates.