Feb 17, 2009 - 10:26 am
I am a 27 year old survivor of Hodgkins Disease. I was diagnosed when I was 12 and have been relatively healthy ever since. However, over the past few years I have developed some undiagnosed neurological problems, and a few people have suggested that they are long term effects of chemo/radiation. So I decided to come talk with other cancer survivors to see if they have experienced anything similar.
Eye problems-- flicking in my vision, particularly after going from a bright area to dark, or a dark area to bright. Especially bad in the morning. I also notice TVs and movies flickering in my peripheral vision.
Muscle problems-- diffuse muscle fasciculations (twitches) and muscle weakness. The weakness usually comes after exertion and is extreme (parts of my hand will stop functioning after I play sports) but it comes back. I used to be worried about ALS, but it's been over 2 years and there is no major progression. I also have mild atrophy in my thenar muscle and a scalloped tongue.
Myoclonus-- I get a lot of muscle jerks.
Parasthesia-- Intermittent tingling.
Tinnitus-- slight ringing in my ears.
This sounds like a lot of stuff, but I still function just fine. I go to work, go to school, have fun, travel, make music, perform, party, hang out, etc without this having a dramatic impact on my activities. But the uncertainty and the fact that it seems to be getting worse not better is starting to take a mental toll.
I look forward to hearing from people!