Feb 09, 2009 - 4:12 am
Hi all! My name if Jeff , I am new here today. I am 46 years old and live in Montana. I don't have a final prognosis or final stage yet but my oncologist has told me so far it's likely to be Diffuse Large B-Cell Lymphoma and it is all over the place, Thymus, Stomach, pancreas, Kidneys, Colon and more, but he said it is treatable. It has spread very rapidly in a short period of time 4-5 weeks. My prelimanary Biopsy was done on my thymus where a grapefruit size tumor has grown and they also took a node that was next to it. The local Pathologist said it was 99% to be Lymphoma but had to send it off to Mayo clinic to get a final. So far I have in the last two weeks received two CT scans, A biopsy of my thymus, a Bone marrow biopsy, and was also given prednisone 60 mg daily, morphine 15mg every 4 hours amongst a few others drugs. Tomorrow I have a PET scan, Tuesday a Port installed and Wed. Chemo therapy R-CHOP. This has all happened so fast and I have been in so much pain I haven't really had time to think about. I am hoping that the Final pathogy shows up before Wed but if not the onc says we have to go anyways because of the above reasons. I have a tendency to agree, I did call Fred Hutchinson in Seattle for a second opinion but that could be 10 days out and I may not have that much time. I haven't had time to read any of your stories or many posts yet but will as soon as I can. Best wished to you all and hopefully I will be chatting with you soon.