Feb 07, 2009 - 6:51 pm
Hi, I'm a new member, 52 year old man from Oklahoma. I recently received a diagnosis of Leiomysarcoma, which is rare enough in and of itself. To make matters worse, rather than the arm or leg where it would normally be found, mine is on my neck, just below the back of my jawbone.
So far, there has been no treatment. It was found sort of by accident. I had a bump on my neck, and, since I develop cysts on my back, I thought that was what it was. Both my wife and my father encouraged me to have it taken out, so I did. The Internist thought it was a Lipoma, but had it biopsied, just to be sure. It came back as Leiomysarcoma. Fortunately, stage one.
I have an appointment with a surgeon on Monday, Feb 9th. He is a professor at the University of Oklahoma Medical school, specializing in cancers of the head and neck.