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Leiomysarcoma
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Feb 07, 2009 - 6:51 pm
Hi, I'm a new member, 52 year old man from Oklahoma. I recently received a diagnosis of Leiomysarcoma, which is rare enough in and of itself. To make matters worse, rather than the arm or leg where it would normally be found, mine is on my neck, just below the back of my jawbone. So far, there has been no treatment. It was found sort of by accident. I had a bump on my neck, and, since I develop cysts on my back, I thought that was what it was. Both my wife and my father encouraged me to have it taken out, so I did. The Internist thought it was a Lipoma, but had it biopsied, just to be sure. It came back as Leiomysarcoma. Fortunately, stage one. I have an appointment with a surgeon on Monday, Feb 9th. He is a professor at the University of Oklahoma Medical school, specializing in cancers of the head and neck. |
Joined: Jan 2009
well, I'm set for surgery next Thursday, Feb 19. They expect 8 hours, because the tumor site is resting on the salivary gland, and is very close to the nerves which control the left side of my jaw and my left shoulder. They're going to try to do this without doing anything crippling. I thank them for that.
Joined: Nov 2008
Dear Rich,
I hope that all goes well with your surgery and you are free from this beast as soon as they take out that tumor.
I know how scary this can be; I've been battling melanoma for 15 months and had 4 surgeries and 2 chemos already, and it sure does take it's toll. I hope and pray that you can get through this nightmare as quickly and gracefully as possible.
I will keep you in my prayers.
Hollyberry