Feb 04, 2009 - 8:48 pm
Though they removed pretty much all they could in surgery, there was and still are cancerous lymph nodes left in her chest and abdomen. All last year, she has been in and out of the hospital dealing with several side effects of treatment that she’s been taking to try to reduce the cancer in her lymph nodes. She's tried pill forms of treatment such as Nexavar and Sutent, which didn’t work and has already tried 2 different kinds of chemo treatments, which also haven't worked. She's experienced everything you can imagine when it comes to side effects. As her daughter and in my early 20's, I never imagined that I would have to see my mom suffer so much.
Mom found out last week that the fluid drained off of her recently came back positive for cancer cells, which we’ve been told is not a good sign. She's also recently gone off her latest chemo treatment and her next chemo option was denied last week by her insurance, because it wasn’t specifically a kidney cancer treatment. They’ve basically been experimenting on her, as she says, with different treatments that are out there.
Papillary Renal Cell Carcinoma is rare, as we’ve been told many times and Mom's been saying for a while now, how she'd like to find out if there's someone else out there who has been through this or anything close to it. Has anyone experienced the same kind of cancer or had any similar experiences? Had any treatments that show some sign of success?
Thanks to anyone willing to reply.