I am new here
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Welcome!
HI! SO GLAD YOU DECIDED TO JOIN US!! you will not be sorry, this is a good place to come to rant, vent, & cry ..and even a better one to be encouraged, inspired, and uplifted.. not to mention they many answers to our questions. Oh yeah and the giggles and laughs are great!!
We all share a common bond we are all survivors!!The best of luck to you and keep posting!
God bless,
Jackie0 -
MUGA scan
I had an echocardiogram instead of a MUGA scan. The echo was basically an ultrasound of my heart. But I think the idea is the same....to get a look at the current condition of your heart. Not sure what your chemo drugs will be but if it includes Adriamycin and/or Herceptin, then that is why you're getting the MUGA scan, because they can be cardiotoxic.
Once you get those drains out (if you haven't already) make sure you take a little time each day to rub the areas where the drains were (not just the the holes they came out of, but also the tunnel area they were in). That seems to be where a lot of scar tissue builds up.
I'm so sorry to hear about your husband. We will be your fellow warriors on your journey to help you stay positive and so you have a safe place to let your feelings out.
Chelle0 -
Welcome
Welcome to the most amazing circle of friends you might ever meet! First of all, I did not have the MUGA scan, but plenty of us have, and no doubt you will hear from those women!
We are thrilled that you are fighting a winning battle against The Beast~ it is good to have something and someone to fight for! We are saddened for the loss of your husband~and can most certainly see your determination to win this fight!
Come in often; our hearts are open to you. We walk each step with you~ as one of our dear posters Joycelousie once brilliantly said, "you are our past, we are your future".
Hugs,
Claudia0 -
Good News
Well, the good news is that you found us and we are a fun sisterhood. We cry, laugh, *itch, and most of all totally understand. I was the care giver for both my parents that died of cancer and when I heard I had cancer, I just the path. Well, I'm doing pretty good and the way treatments have changed and gotten better, each day is an improvement with meds and such. We are here and just don't try to be super mom for your kids. Take care, Angela0 -
MUGA scan is no big deal
My beloved Moopy reports that for her MUGA scan she just lay flat on her back for 30 minutes while some flat panel thingy overhead took some pictures. She did have to have some dye injected into her, but she says that was no big deal either. So, no worries and hope you "pass!" The fact that Moopy did so well on her MUGA scan made it possible for us to go with a more aggressive chemotherapy regimen than our oncologist here originally recommended.
Wishing you and your family all the best,
Joe0 -
Glad you are here
Hello, welcome to this wonderful community. So sorry to hear about your husband. All the ladies -- and some exceptional men -- will help you here as much as possible. I also had an echocardiogram before chemo instead of a MUGA. The MUGA sounds like no big deal and I'm sure you will be fine. It will allow you to have a more aggressive drug to fight the cancer. Many ladies here have had the battery of tests you will now embark upon. Come here with any thoughts or questions. Good luck on this journey. We are here for you.
Mimi0 -
WowAortus said:MUGA scan is no big deal
My beloved Moopy reports that for her MUGA scan she just lay flat on her back for 30 minutes while some flat panel thingy overhead took some pictures. She did have to have some dye injected into her, but she says that was no big deal either. So, no worries and hope you "pass!" The fact that Moopy did so well on her MUGA scan made it possible for us to go with a more aggressive chemotherapy regimen than our oncologist here originally recommended.
Wishing you and your family all the best,
Joe
Wow I can't believe the speedy response from all of you thanks so much for all the information . I can tell this is going to be a very supportive place for me. I don't want you to think I am all alone in this fight though. I have a wonderful Man in my life named Mike. We are planning a wedding ( or should I say were , I have been a little occupied fighting cancer for the last couple of months) but am starting to feel a bit better today so we have to get back on track soon. I will look forward to keeping in touch with my new found friends. LOve, Nancy0 -
MUGA
Hello and welcome Mikes Sunshine
If you can lay down for 30 minutes you can have a MUGA scan. I had one before starting chemo. The best I can remember (it's been 5 yrs+) the machine is a noise little rascal.
You feel absolutely nothing. You will be watched closely because they do inject a dye (or whatever).
Take care and keep us posted
Hugs
Jadie0 -
Welcome to the group!
I wish I didn't have to say that to you, it means you are fighting the beast!
It sounds like you are doing things right...YEA!
I agree with others, if Adriamycin is in your future, they want to make sure your heart is ok...they didn't with me, I had trouble, but that was more than 3 years ago....
You go ahead and plan that wedding...you will be there, no problem!
Hugs, Kathi0 -
SweetMikes Sunshine said:Wow
Wow I can't believe the speedy response from all of you thanks so much for all the information . I can tell this is going to be a very supportive place for me. I don't want you to think I am all alone in this fight though. I have a wonderful Man in my life named Mike. We are planning a wedding ( or should I say were , I have been a little occupied fighting cancer for the last couple of months) but am starting to feel a bit better today so we have to get back on track soon. I will look forward to keeping in touch with my new found friends. LOve, Nancy
Hi Nancy,
Just had to say, what a sweet name....Mikes Sunshine.
Blessings,
Chelle0 -
Welcome Nancy to the club
Welcome Nancy to the club none of us wanted to join. You will find a great group of women and men here on this board. I had the Muga and it was no big deal. I was also diagnosed with IDC in June 2007 and had mastectomy and 7 lymph nodes removed which came back clean. I went through 8 rounds of chemo and wanted you to know that we are here to walk along side you all the way. Hugs, Lili0 -
Hi and welcome, even tho' wemmontero38 said:Welcome Nancy to the club
Welcome Nancy to the club none of us wanted to join. You will find a great group of women and men here on this board. I had the Muga and it was no big deal. I was also diagnosed with IDC in June 2007 and had mastectomy and 7 lymph nodes removed which came back clean. I went through 8 rounds of chemo and wanted you to know that we are here to walk along side you all the way. Hugs, Lili
Hi and welcome, even tho' we hate that any of us have to meet in this situation. You've found all of these brave women, so you have certainly come to the right place. The support everyone offers is tremendous, and I just know, you will be offering all that you can, also. Can't offer you a thing, yet, other than my Welcome. I still have to get to my surgical appointment, to meet my MD. I can tell you, the wait is longer than I want, and much, much harder than I expected! Ellie0 -
We're here for youEllieJV said:Hi and welcome, even tho' we
Hi and welcome, even tho' we hate that any of us have to meet in this situation. You've found all of these brave women, so you have certainly come to the right place. The support everyone offers is tremendous, and I just know, you will be offering all that you can, also. Can't offer you a thing, yet, other than my Welcome. I still have to get to my surgical appointment, to meet my MD. I can tell you, the wait is longer than I want, and much, much harder than I expected! Ellie
This is an awesome group of ladies. They will answer questions, give support, and be a shoulder to lean on, cry on, rant to and so on. You are in good hands. I too, love you name. Everyone should be someone's sunshine.0 -
Thank Youfauxma said:We're here for you
This is an awesome group of ladies. They will answer questions, give support, and be a shoulder to lean on, cry on, rant to and so on. You are in good hands. I too, love you name. Everyone should be someone's sunshine.
Thanks to all of you for your kind words of welcome. I look forward to chatting with all of you. What a group of encouraging people. Sounds like I am going to breeze thru this MUGA scan. I forgot the name of the chemo drug That I will getting, the one that affects the hard starts with an A. Thanks again for all your support. Nancy0 -
Hi Nancy: I also hadMikes Sunshine said:Thank You
Thanks to all of you for your kind words of welcome. I look forward to chatting with all of you. What a group of encouraging people. Sounds like I am going to breeze thru this MUGA scan. I forgot the name of the chemo drug That I will getting, the one that affects the hard starts with an A. Thanks again for all your support. Nancy
Hi Nancy: I also had adriamycin, cytoxan and 5FU and went through 8 rounds, that is why I had the MUGA test. Have they spoken to you about having a port put in. If you are having the adriamycin, it would be a very good idea to get it. Not only could adriamycin damage your heart but it is extremely bad on the veins. Hugs, Lili0 -
Welcome
I too had adriamycin, but as a pretest had an echocardiogram, not a muga. The echo was my favorite test...very interesting and I had a great tech who described the parts of my heart and what they were doing. Not only is a port a good idea, but get some emla cream. You put it on an hour before the port needs to be accessed and it makes the procedure painless.0 -
echocardiogramlynn1950 said:Welcome
I too had adriamycin, but as a pretest had an echocardiogram, not a muga. The echo was my favorite test...very interesting and I had a great tech who described the parts of my heart and what they were doing. Not only is a port a good idea, but get some emla cream. You put it on an hour before the port needs to be accessed and it makes the procedure painless.
It was also fun to hear the sounds that your heart makes. I kept trying to conclude whether my heart "sounded normal" or not. In the end, I passed so I guess it was.
Never heard of this emla cream. I get nothing before they access my port for chemo. They used a spray the first time to numb the area but said they wouldn't use it regularly becuase it causes discoloration. What does the cream do?
Mimi0 -
I hope you get thismmontero38 said:Hi Nancy: I also had
Hi Nancy: I also had adriamycin, cytoxan and 5FU and went through 8 rounds, that is why I had the MUGA test. Have they spoken to you about having a port put in. If you are having the adriamycin, it would be a very good idea to get it. Not only could adriamycin damage your heart but it is extremely bad on the veins. Hugs, Lili
Hi Lili, I am not to sure how to work this site. I hope you get this. Thank you for all the info. I am going to be having adrimycin and cytoxan. I am not sure what the 5FU is that you mentioned but they didn't tell me about so I guess it's just the two drugs I mentioned. They did tell me I would be getting a port. They have not scheduled an appt. yet. I have to have the MUGA tomorrow and on Thurs. I am having a bone scan and Cat scans of chest abdomen and pelvis. I will let you know how I do. Love, Nancy0 -
Emla creammimivac said:echocardiogram
It was also fun to hear the sounds that your heart makes. I kept trying to conclude whether my heart "sounded normal" or not. In the end, I passed so I guess it was.
Never heard of this emla cream. I get nothing before they access my port for chemo. They used a spray the first time to numb the area but said they wouldn't use it regularly becuase it causes discoloration. What does the cream do?
Mimi
Hi I have never heard of the Emla Cream. Did you get from the oncologist? Was it used to put the port in? I have not yet had the appt. set up for the port but I will be getting one soon. I have a few other test to get out of the way first. I am not to worried about the MUGA scan any more. you have all put my mind at ease. This is all so wonderful to have such a nice group of people to share all of this with. Sometimes you are the only ones I can ask . Love, Nancy0 -
Port and Emla creamMikes Sunshine said:Emla cream
Hi I have never heard of the Emla Cream. Did you get from the oncologist? Was it used to put the port in? I have not yet had the appt. set up for the port but I will be getting one soon. I have a few other test to get out of the way first. I am not to worried about the MUGA scan any more. you have all put my mind at ease. This is all so wonderful to have such a nice group of people to share all of this with. Sometimes you are the only ones I can ask . Love, Nancy
Hi Nancy: When they put the port in they knock you out so you will probably have the procedure done is a same day surgery unit. You will be a little sore for about 1 week until you heal. They usually do it about 1 week before you start chemo. The EMLA cream is a topical ointment that numbs the area. I didn't get anything and it wasn't such a big deal. It's almost like when you have your blood drawn, the initial prick, then you won't feel anything. Hugs, Lili0
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