Dec 26, 2008 - 12:31 am
Hi I'm new on here,
I was wondering how can they tell if you have a fibroid or a endometrial cancer tumor just from looking at it on a pelvic vaginal ultrasound?
I had been having spotting off and on in between my period for 3 years now, and I went to 2 gynecologists and nurse practioner two years ago who only gave me a regular pelvic exam. So I went to my internist and she gave me a prescription to have a pelvic vaginal ultrasound which I had never heard of, because she said there are certain things you can't see with a regular pelvic exam.
I was really worried because my mother died at age 49 just 4 months after being diagnosed with stage 4 endometrial cancer that was already in her lungs when it was found!
So I had it done in 2006 and it came back totally normal, and when the technician was doing it she looked at my uterus on her scren and I was so afraid and I asked her are there ant tumors there, and she said no nothing not even fibroids.
Well, I had posted on here a few months back about how in July My now former gynecologist called me after I had a Pap test a week before and she said that endometrial cells turned up on my Pap test.
I was understandably very scared after what happened to my mother but this gynecologist was an insensitive creep as she had been 5 years before when I had some atypical cervical cells show up, but with a repeat Pap test 3 months later it was normal, I had used tampons just a few days before and I found out from The American Cancer Society soon after this,that this can effect the test results.
Anyway I went to a new gynecologist on September 9, who uses a newer more accurate not too painful endometrial biopsy called,The Truetest which uses a brush and collects a lot more cells and is said to more accurate than the standard endometerial biopsy.
The biopsy came back as benign but said that I had a secretory pattern and it said that altered secretory patterns may be seen with advancing age,in luteeal phase defects,or secondary to polyps ,leiomyemas or progestins.
So in September I asked my same internist if she could please prescribe another pelvic vaginal ultrasound because it has been 2 years and 2 months since the last one and she agreed that it was a good idea to do it again since I haven't had it done in 2 years. But she wanted me to do it in December 3 months after my biopsy in case there was something disrupted from it.
So last week I had it done, and I did to hopefully get some piece of mind if there was nothing in there like there wasn't 2 years ago, and since my new gynecologist said that a hysteroscopy is 100% accurate which he orginally said I needed but I was afraid and I asked if he could do the Truetest biopsy instead, and he now refuses to do a hysteroscopy because he said there is risks with surgery. He had told me that the biopsy is only 99% accurate.
So I was hoping that if there was no growths in my uterous like the last time I could relax and be reassured that the biopsy was right. But instead when the same exact tech as the last time was looking at my utrous on the screen,this time she tells me I have a very small fibroid. I said how do you know it's a fibroid just from looking at it and not a cancer tumor. She said because she sees millions of fibroids all of the time,they are very common and she said she knows what a fibroid looks like.
In my mother's medical records from 1985 which I got a few months ago, it says they thought that she just had fibroids until they did a D & C about a month later. So they couldn't tell that one of her tumors wasn't a fibroid but a stage 4 cancer that had as they described,extensively replaced her uterous lining and was in her lungs!
My gynecologist called me yesterday and he wasn't that nice he acted annoyed he said I ws asking him a lot of good questions he doesn't have answers for. I asked him how can they tell that I have a fibroid and not a cancer tumor and do fibroids look different from cqncer.
He said that sometimes they can't tell but it's 99% that it's a fibroid. I told him that they thought my mother just had fibroids too.He said the only way to know 100% is to have a hysterectomy and he wouldn't recommend it and he said he doesn't think many other Dr.'s would either.
And I said that a D & C and a hysteroscopy can diagnose it, and he said thats surgery and that any surgery has a risk of death. I said I know it's scary but I don't know anyone who died from surgery I have a few relatives older than me who had surgery and they didn't die.
He said if you look on the consent forms you'll see it says there is a risk of death.
I asked him what kinds of tests can I have in the future to make sure this really is a fibroid, and all he said was a Pap test and pelvic exam.
I also asked him if he thinks there is a conection to this growth if it is a fibroid, and the endometrial cells that turned up in my Pap test, and he said that fibroids don't usually shed, but I know cancer tumors do and so do pollyps which have to removed because they can sometimes turn into cancer.
He said he thinks that because my period ended 2 days before the Pap, that even if I wasn't bleeding cells could still have been shedding.
And I know that a pelvic exam can't usually see it either, I'm sure my mother had plenty of Paps and pelvic exams but she still had stage 4 when it was found only from a D & C! He actually claimed that about 80 some % of endometral cancer is found from Pap tests!
If you could let me know if you know anything about this, I really would appreciate it.