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i need some one to talk to

Juno13
Posts: 1
Joined: Dec 2008

I am a caregiver to someone who has a very rare cancer there is no cure.
We have been abandon by our friends she has family support I don't.
I feel alone and very frustrated and I am scared for what is going to happen in the future.

MR_SAD's picture
MR_SAD
Posts: 91
Joined: Nov 2008

We are all in this together. You have found a great place to start. There is a lot of us
That have been doing this for a while now. Get ready for the hardest thing you will ever
have to go through. There will be good days and bad days just know their is a lot of us here to help. There will be times you will just need to vent. This is the place. WE all are going thru this tough time together.

arbrab's picture
arbrab
Posts: 55
Joined: Nov 2007

GO TO THE CSN CHATROOM. THERE ARE PEOPLE IN THERE THAT CAN HELP YOU THROUGH ALL THE STAGES OF THIS.
I LOST MY HUSBAND IN 07 AND WITHOUT THE SUPPORT OF THE CHAT ROOM I DON'T KNOW THAT I WOULD BE WRITTING TO YOU. IT IS AN AWESOME EXPERINCE AND WE JOKE AND TALK ABOUT EVERYTHING. IT DOES HELP BELIEVE IT OR NOT
BARBRA

RE's picture
RE
Posts: 4606
Joined: Feb 2004

Hello Juno,

You are not alone, we are here to help if we can. First has hospice been contacted as they can be extremely helpful during such times. In addition to that the American Cancer Society may have ways to assist you as well, I would call your local chapter.

I assisted in the caregiving of both my mom and my sister, in both cases hospice was extremely helpful.

Hope some of this is helpful to you.

RE

elvisfans_tcb's picture
elvisfans_tcb
Posts: 8
Joined: Nov 2008

I too am a new caregiver and a survivor of stage 4 cancer. When the doctor says 2 years then we hear stories of people who go beyond it's nerve racking..being in limbo. How to go on and feel ok or happy knowing what may come and what he must be feeling is tearing me up. I remember the chemo the fatique and there's only so much I can do for the man I 've been with for 11 years. This is such a moment to moment thing, an obstacle course with its ups and downs. Being at the mercy of the doctors and what they have to say. I can't believe how many of us are getting or have had this, it's become the norm, so and so has cancer, so and so just died. It's like watching a movie right? Although negative I am not going to apologize for this entry I know this will pass and come again. Best to everyone..Mary Rondoni (Maryrondoni.com)

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

I am an Elvis fan too, Mary :). Still recall my younger days, with the broomstick, singing to Elvis' tunes.

Let me advise that you are not at the mercy of doctors. You are at the mercy of the disease, perhaps, and your own psyches. The doctors are only trying to help, we must hope.

I congratulate you on your survivorship, Mary, and also understand your issues re caregiving. I have long been on record as saying that I would much rather be the survivor (I am, twice now) than the caregiver.

No need to apologize, by the way. Anger and frustration are part of the deal, as you must know as a survivor. It is to be expected.

The important thing, I think, is to get over it. Do not let it, the disease, take more than it can. Celebrate life together, work together to make it a good life, work together to beat it, as you have done already as a survivor.

Hang in there. Don't let yourself be all shook up :).

Take care,

Joe

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