Nov 16, 2008 - 10:42 pm
When this whole thing started, I was going to have surgery - that's it. Remove part of my mandible - cancer gone. It's been 4 months now. I've had 2 surgeries, 8 radiation treatments and 1 chemo treatment. I have a total of 7 weeks for radiation and 2 more doses of chemo. The cancer was bigger than the surgeon (or anyone else for that matter) thought. Plus, it got into the nerve and the soft tissue of the left side of my mouth.
So, I'm trying not to be panicked, but I am starting to feel the effects of the radiation which is very frightening since I have 6 more weeks of it. The first round of chemo didn't go as well as the doctor and nurses were trying to convince me it would. I can't believe how horrible chemo was. I wasn't prepared at all. I also wasn't "back to myself" for a full week. I lost 7 pounds, threw up, slept, felt sick and I just wasn't "present" for my family. I am 40 years old. I have 3 children: 15, 10, 8 and am married. My family has been wonderful, but my expectations for myself are too high. The experience was like what I image hell to be.
I can't seem to find someone with my same cancer. It would be so helpful to speak with someone who has my same situation. Like, do I 100% have to have a feeding tube? I am really trying to avoid that, but am starting to feel that it is inevitable. I do have a port in my chest.
Just looking for any feedback. Thanks so much!