Nov 16, 2008 - 10:03 pm
My husband is 5 months out from teatment for stage 3 SCC of base of tongue, T2 N1. He had 2 Cisplatin treatments, 5 Erbitux, and 42 radiation treatments. Peg tube used from second week. Very, very ill all of treatment. Staph infection in 6th week, gastric issues for 4 months. Back to back thrush infections in mouth for 3 months. Of course, dry mouth, no saliva, not eating anything yet as mouth sores and infections make it just too painful. No appetite to speak of, either.He also has rheumatoid arthritis and is on high doses of Methotrexate. Weight loss continues as he struggles to get in nutrition in through tube, as well as water, and to work as many hours as possible. Most difficult problem currently is the mouth ulcerations on roof of mouth, sides of tongue, under tongue. We have tried a long list of medications, rinses, natural remedies: Allupurinol, Mary's Magic Potion, acidophillus, baking soda, aloe vera juice and gel. The nightly flouride gel treatments, even using the dental trays, are so painful. Anyone have any other treatments he can try? I never imagined when treatment ended in June, that he might not be able to enjoy a few bites of Thanksgiving dinner! Any and all suggestions welcomed!