Oct 29, 2008 - 10:52 am
hi, it's me again. i know this is a rare cancer and there aren't very many active members here. since my dad was diagnosed, i have been researching on the web, trying to find out everything i can about it. since i joined, i've been reading through the threads here and reading profiles and blogs. i know my dad is worried about the length of time it's taking for his mouth to heal. even without radiation, he still has sores and rawness. he sees drs almost every week and isn't getting answers. they just say wait another month, then another and another. after surgery, has it taken anyone 5-6 months to heal and for the pain to ease.? i think he needs hope that there's an end in sight and that the pain will decrease.
one of his major causes of pain is from the removal of his lower eye orbit. his eye is barely supported by a thin layer of muscle that hammocks under his eyeball. the muscles are so strained that he has constant aching. because his lower lid droops, he must tape his eye shut at night so it doesn't dry out while he sleeps. each check up, the dr tells him that it needs to fully heal before they discuss surgery to put in some kind of support. yet, each time he sees the dr, he tells him to wait another 2 months, then another 1. he is very frustrated and i know ppl heal at different rates, but if anyone has experienced this or know of someone who has, it would help so much to hear how long others have taken to heal or what type of drugs may have helped them get through?