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larry59update

larry59
Posts: 41
Joined: Oct 2008

I'd update on my blog or profile but I am a computer goober and not sure what I'm doing. Anyway I got a full bone scan last Thursday because of back/hip pain, to see if spread is involved. HOpe to hear results from doc soon. And he is to do surgery on me Friday oct 31, TURP and orchiectomy. The turp will hopefully allow removal of my catheter that I've had for 6 months now. And the orcho will allow me to get off the chemical hormone therpy (Lupron) and simplfy things all around. Pls keeep your fingers crossed about scan cause I am hoping pain is not cancer related. If it is chemo and/or radiation is in my future, not looking forward to that.
Love to all, Larry59

jimbeam50
Posts: 47
Joined: Oct 2008

Wishing you the best of luck with your surgery and test results.

shipjim's picture
shipjim
Posts: 130
Joined: Apr 2006

It's been a week, how are you doing? jj

larry59
Posts: 41
Joined: Oct 2008

surgery went OK, I finally got rid of my catheter (after 5 and a half months) on Wednesday. There was a painful bloody complication getting it out but they finally did it and I can go on my own like a normal person now. I do have to go to a radiation oncologist next week though cause of back pain cause by the cancer. But I can deal with it, I'm a fighter.

jimbeam50
Posts: 47
Joined: Oct 2008

Hi,

It seems like each doctor has his own method of treating pc and my husband just wanted to comment on his treatment because he has some similar symptoms to you. My husband is the one who started out with a 5700 PSA count and his Gleason score is 9. His PSA is down to 67 and he is on the Casodex/Lupron treatment. When first diagnosed he had a lot of bone pain, in fact, that was why he went to the doctor in the first place, because of the back pain. He has the cancer in the bones in his legs, arms and spine. When he went to the radiation oncologist, the doctor explained to him that the radiation would be used only for pain relief. My husband is taking some oral pain medication now and he is satisfied with that and doesn't want to use the radiation until he has to crawl in to the office (his words). My husband also has a once a month Zometa IV treatment. This is supposed to reduce or delay fratures and bone pain. He has had 5 treatments so far and he feels that he has less bone pain and is feeling a little stronger.

larry59
Posts: 41
Joined: Oct 2008

I still can't figure out how to add 'friends' to my CSN list, would like to add you if you want. I agree with your husband, I see the radiation doc Thursday but will hold off rad treatment until I absolutely cannot function with out it. Pain meds work so far and I want to stay at my job as long as possible.
I didn't get my diagnosis until I had a total bladder blockage and had to to to emergency room. Catheter inserted and I was sent immed. to uruologist. A few weeks and a biopsy/bone scans later and I joined the metastic prostate cancer club. I'ts so wierd that we don't have bone cancer, but prostate cancer of the bones. Like it makes much difference.
Started on Lupron but on Oct. 31 had a turp to I could get rid of catheter finally and since I was having surgery went ahead with surgical castration, so I don't have to fool with those shots and Lupron's many side effects.
And since last October I have been my wife's cargiver as she went through several differenct life-threatening illnesses. She is finally on the mend but still has little energy, uses a cane or a wheelchair for long trips. Needless to say this has not been a real good year for us.
But on a positive note I'm still here and will fight the big c as long as possible.
Write back soon, Larry59

artizan's picture
artizan
Posts: 60
Joined: Oct 2008

Larry,
I have read your posts in various places on the boards and am glad your surgery went well. I encourage you to continue the fight especially when it seems too hard. I pray you will have many good days agead. Enjoy them as much as you can and share your love with those around you. You may not feel that you matter to the world but you do. Movies like "Its a Wonderful Life" and books like "The Five People you Meet in Heaven" remind us or how inner connected we all are. little things we say and do affect peoples' lives in ways we can't imagine. So fight on and live life to the fullest extent you can!!!!!

larry59
Posts: 41
Joined: Oct 2008

Your message really lifted my sprits. I intend to fight mr.c as hard as I can for as long as I can. Thank you again.

artizan's picture
artizan
Posts: 60
Joined: Oct 2008

Support is why we are here.....

whubbs
Posts: 77
Joined: Sep 2008

Larry,
Good luck with your treatments, we'll keep you in our thoughts and prayers.
I admire your spirit and strength, keep up the positive outlook, it will take you the
length of your rehabilitation and cure.
Keep us posted.
-Wayne

rogermoore's picture
rogermoore
Posts: 265
Joined: Mar 2002

Larry,

Our postings have passed each other many times during the past years. I look forward to your continued support of others for many more years.

Good luck and God Bless.

Roger

Olee's picture
Olee
Posts: 97
Joined: Nov 2008

Larry

Men like you are the tough ones in this world. I wish you the best.

larry59
Posts: 41
Joined: Oct 2008

I've heard from you one or twice and was told you are an expert as far as dealing with prostate cancer. I see that you joined this site in 2002 so I hope and pray that your cancer has been taken care of, without too many of the aftereffect complications so many men must go through.
In a way I feel lucky because even though my condition is terminal at least I have some idea of what's ahead and how I'll die. I had not counted on bone pain beginning less than 6 months after diagnosis. I start the palliative radiation treatment process next week. and plan to do the treatments and also work at the same time. I love my job and don't want to give it up until I can't do it anymore (I am a newspaper editor, desk job in front of a computer all day).
Anyway I just wanted to tell you a personal hello, and hope that you are doing well.

rogermoore's picture
rogermoore
Posts: 265
Joined: Mar 2002

I am sorry to hear of your prognosis. However, just this morning I read about a new drug that has been approved by the FDA for Advanced Prostate cancer. You never know, I would ask my Doctor about it.

It is good that you do have a desk job and can work from a sitting position. Perhaps this will give you some comfort?

To answer your question on my cancer status, yes I am cancer free and have been since 2001. I am one of the LUCKY ones, and count my blessings every day. It is ironic that you sent your posting on my Birthday 12.28.42.

Best of luck and prayers are going up for you every day.

Roger

rogermoore's picture
rogermoore
Posts: 265
Joined: Mar 2002

Larry,

I found the name of the new drug for advanced PC. It is Degarelix and was just approved by the FDA. It is on this site somewhere, but I found out on another news website.

Good luck,

Roger

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