Sep 15, 2008 - 9:47 pm
Is there anyone who has this aggressive embryonal rhabdomyosarcoma of head and neck? Any opinion about possible radical neck surgery surgery for treatment of this?? Have had chemo, radiation and another chemo. Have referral to MD Anderson but so did IKE. Is there anyone in this world with this also. I have met no one as I have read there are only 350 cases diagnosed each year. Any info from someone who has this would be so helpful. I feel so alone. I have researched and researched online................Thanks......