Sep 14, 2008 - 7:20 am
Hi, I'm new here and I'm not sure if I have found the right discussion board. Let me tell you a little about myself. I am a 53 year old female, married for 35 years, 3 grown children, and up to 5 months ago working at a full-time job. On May 4, 2008 I lost feeling in both of my legs at work. My coworkers thought I was having a stroke as my blood pressure was elevated (and I am on a BP med already) so one of them carted me off to the local ER. There the dr. diagnosed me with parasthesa and told me to follow up with my PCP, which I did the next day. He thought I just had a pinched nerve and prescribed an oral steroid which did not do a bit of good. By then my legs had become severely spastic and I was developing symptoms associated with multiple sclerosis. So my PCP referred me to a neurologist who diagnosed me with transverse myelitis initially and a spinal cord lesion. I have had MRIs, CT scans, a lumbar puncture to rule out MS, a PET/CT scan to find the primary source to figure out where the lesion in my spinal cord could have come from, a fine needle biopsy of my thyroid which indicated a "follicular neoplasm pattern". I underwent a total thyroidectomy on August 13th, 2008. The path result said the thyroid was cancer free. So now I'm seeing a neurosurgeon who is telling me that he is relatively sure that the lesion in my spinal cord is a primary cancer and he is trying to find someone who will be able to get tissue samples and a biopsy. He said because I am still mobile and able to walk on my own that he will not touch me, even though he is supposed to be one of the best in my home turf. So my husband and I are waiting for his phone call. I'm getting really frustrated again by all this waiting. In the meantime, my legs are feeling heavier, the neuropathy in my left leg is getting worse, and my back is in almost constant nagging ache.
I'd like to hear from others who are dealing with spinal cord tumors. I don't even know what kind it is or what stage - I'm back to square one with this since thyroid cancer was ruled out. And yes, I know that the lesion could be benign. It's always in the back of what little mind I have left! Hope to hear from someone.