Sep 01, 2008 - 5:02 am
I just joined but am not new to NHL. I was Dx in 2005 with follicular NHL stage IVB. I am currently in remission after CVP+R. I am receiving maintenance Rituxan (for almost 3 years now)and my oncologist said that I will have Rituxan until the cancer relapses. I am told that this is a pretty benign treatment as far as side effects go...but I have had a difficult and painful time at best. To be honest, I have never been in so much pain in all my life. My joints and tendons and lower back pain along with fatigue are unbearable. My Oncologist says that he has never heard of such effects being so severe and that in all the patients he has ever treated...this isn't something he has ever heard of or dealt with concerning Rituxan.
I am desperate to find relief of the pain. The psychological effects of long-term pain has changed who I once was. I find myself begging to anyone who will listen to help me. Has anyone else ever been through this? I don't know what else to do.