Aug 26, 2008 - 12:09 pm
I was treated with proton beam therapy at Loma Linda University Medical Center in Loma Linda, CA. The patient support was tremendous, both in the treatment room and outside the treatment room. While each case is different, it appears that a common journey to asub-1.0 PSA takes around two years. My experience appears to be following that trend. I was blessed to have found my PSA to be cut by more than half on the first post-treatment PSA test. The side effects during treatment started at about 50-65% of the way through the treatment with periodic increased urination at night (no big deal since I was seeing some of that before I went out there), some fatigue (corrected by increased protein intake) and a light "tan" at the spot on each hip where the beam entered the body. I've used Flomax since treatment, for which the need has decreased little by little over time. Prior to treatment I was told that other possible side effects might be blood in the urine, painful or difficult urination and diarrhea; I did not experience any of those side effects.
During the consult I heard the most objective presentation of all my treatment options. It was the most objective presentation of options that I've ever received for any condition for which I've ever sought treatment. There was absolutely no pressure to select proton treatment. Likewise, I was never told that I should stay away from any of the other options. Information was presented in a completely unbiased manner.
I would be delighted to visit with anyone via phone or in person. Just send me a PM and I'll give you my contact information.