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rhabdomyosarcoma survivor



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dashw

				          
            Posts: 1

          
          
            Joined: Nov 2007

          
        					
				
		
									

        			    August 23, 2008 - 11:16pm			  			

			
			
My 5 year old daughter was diagnosed with rhabdomyosarcoma at the age of 3. She is now 16 months off treatment and is doing well. She is now on 4 monthly scans. I would love to connect with anyone who has been through this or help support anyone who is currently going through it.


‹ Profession of childhood cancer survivors My 5 Year Old has Stage 4 Cancer ›

						
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Your CSN Staff

				      
	        Posts: 154

	      
	      
	        Joined: May 2008

	      
	    				
		
			
October 1, 2008 - 5:28pm

			
The easiest way to locate ...
			
Dear dashw,


The easiest way to locate other CSN members with similar experiences is to type keywords (such as "childhood cancer," "rhabdomyosarcoma," etc.) on the search bar at the top of the home page. You can refine your search by clicking on the “Advance search” link listed underneath the search field. The major categories of content on CSN are blogs, discussion boards, personal pages, etc. For example, if you are looking for a specific posting on a discussion board, you can limit your search to discussion boards only by clicking on the "discussion" and "advanced search" button at the bottom of the "advanced search" box. Remember that you must be logged on if you want to post anything on a discussion boards, view personal pages, use the chat room, etc.


Cordially,

Your CSN Staff



			
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PaulLD

				      
	        Posts: 1

	      
	      
	        Joined: Jan 2009

	      
	    				
		
			
January 6, 2009 - 9:36am

			
rhabdomyosarcoma survivor
			
Hi,


We have recently had the news that a friend of ours has been diagnosed with Rhabdo (she is also 5 years old).


Your comment is very promising. Can I ask is there anything you feel friends could do to help apart from just "being there".


I appreciate any help or advice you can offer so we can help and support our friends as much as possible.



			
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Jim99zz

				      
	        Posts: 1

	      
	      
	        Joined: Oct 2009

	      
	    				
		
			
October 5, 2009 - 3:46pm

			
rhabdomyosarcoma survivor
			
Hi,

I just found this support network and thought I would send a message of support.

I am a 25 year survivor of rhabdomyosarcoma.  I was 22 when diagnosed. I'm 47 now.

I had 2 surgeries (1 very major), 12 months of chemo and 6 weeks of radiation.

I am very healthy and have been since my treatment concluded.  I have 2 children aged 6 & 8.

I wish the best for your loved ones who are battling this cancer.

Jim



			
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dlrobins

				      
	        Posts: 12

	      
	      
	        Joined: Sep 2009

	      
	    				
		
			
October 23, 2009 - 2:13am

			
rhabdomyosarcoma survivor
			
Jim, Thank you for finding the support network and posting. Your message was a becon of hope for my son Kyle and I.  Kyle (age 21) was diagnosed with ERMS in July, and has been on chemo since August.  Recently he began radiation, and between both, the tumor in his neck has reduced significantly.  There are not to many adults out there with rhabdo,and so when we find a success story we celebrate.  Thank you, Debbie * Would love to communicate with you further.



			
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dlrobins

				      
	        Posts: 12

	      
	      
	        Joined: Sep 2009

	      
	    				
		
			
November 15, 2009 - 4:37pm

			
survivor
			
Jim99, Would love for my son Kyle, now age 22 to email with you. Ky was diagnosed this past July, and is currently undergoing treatment.  More rhabdo survivors need to post their stories. You are an inspiration for those who are fighting the battle. Debbie



			
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stinkerthecat

				      
	        Posts: 1

	      
	      
	        Joined: Nov 2009

	      
	    				
		
			
November 17, 2009 - 5:56pm

			
granddaughter with same sarmona as yours--please write back!
			
We have a 20 year old granddaughter who was recently diagnosed with rhabdomyia sarcoma---she is taking chemo at barnes jewish in st louis and we need all the support we can get---hers started in pelvic area and she has in her tongue and spine---please write back--thanks



			
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