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Wilm's Tumor

rebblegirl
Posts: 1
Joined: Aug 2008

My name is Yvonne, I am a mother of three. My youngest son who will turn 2 on the 23rd had a wilm's tumor and had it taken out in may. I just need someone to talk to...help??

MariaMilam
Posts: 2
Joined: Aug 2008

Yvonne, I am on this web site because I have Kidney Cancer but I saw your post and wanted to respond. There is a woman in my church whose 3 year old daughter (now 6 years old) had Wilms Tumor. I have spoken with her a lot. Maybe I can help a little. I'm happy to talk.

Maria

akagumbo
Posts: 5
Joined: Feb 2009

I was givin six weeks and I am now 34 with a bright son of 14.

Keep the faith, and say your prayers, thats what my mom did.

donnamay25
Posts: 1
Joined: Mar 2009

Yvonne,
My name is Donna. I am a mother of two. My son is 5 and my daughter is 6. In July of 2008 my daughter Lexi was diagnosed with wilms tumor. At first I thought "you must have the wrong chart" or at least that's what I said to the doctor, because my baby has been perfectly healthy her whole life. She's never been sick, or hospitalized. She has only had a small cough probably once since she was born. One day she said to me mommy my tummy hurts, and naturally I figured she ate too much or she was just a little constipated. Well two days went by and she still hadn't pooped, and by the end of the second day she seemed to be in an extreme amount of pain. I had thought about taking her to the emergency room but didn't, instead I asumed she was just really constipated so I bought her some exlax. I waited the recommended amount of time for the exlax to work but it didn't. When I checked on her, after realizing the exlax wasn't working, she had a small egg shaped lump on the left side of her belly. I told my husband I don't think this was here before, I think I'm going to take her to the emergency room. At this point she hadn't pooped or eaten is almost three days. We waited in a room in the ER. for about six hours. I asumed they would bring her something to help her poop, instead they pulled me aside at 6 a.m. on July 17th and told me my baby had a tumor the size of an adult fist on her kidney, and that I could not take her home because they had to transfer her to a different hospital. If you need someone to talk to or just relate to I'm here and willing to listen and talk about what you must be going through.

4yroldcancermom
Posts: 3
Joined: Nov 2009

Hi Donna,
My name is Hayley and reading your post I started crying. My daughter was diagnosed with Wilms December 2008, she is in remission right now after chemo, kidney removal and radiation. The doctors only gave my daughter a 30% survival rate. I have to say I'm scared out of my mind. She has scans every 3 months., she is due to have scans in December 2009. I would love to talk some time. How is your child doing?
mclean4danes@verizon.net

Elizabeth2009
Posts: 2
Joined: Apr 2009

Hi Yvonne
My name is Elizabeth and i had (WILM'S)cancer when i was 5 (1985). How can i help??

deedee0119
Posts: 5
Joined: May 2009

My name is Dana and I am a Wilm's Tumor cancer survivor -- in remission for 43YEARS! I know you posted your question last year, but if there is anything you need to know, please feel free to contact me. I have been able to live a full and normal life. Now that I am in my mid forties - I am beginning to experience more latent side effects. Let me know if you need to talk...God bless you and your little one.

Dana

karyn1
Posts: 1
Joined: May 2009

Hi Yvonne, I have two daughters, a 9yo and a 4yo. My eldest daughter had a wilm's tumor when she was only 6 months old, she had her right kidney removed and had 10 weeks of chemo. She will be 10 in October and is strong and healthy, there is a 5 and a half year gap between her and her sister as we were worried that the next child may have cancer too. With such advanced medical treatments these days Wilm's Tumor survivors have 95% success. I wish you the best with your family. Karyn

lorzpav
Posts: 3
Joined: Apr 2010

Hi, my name is Laura. I had a Wilms tumor when I was 12. I am now nearly 25 with no side effects presently. I'm so sorry to hear about your son.

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