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EC with mets to liver and lymph nodes
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Aug 05, 2008 - 5:24 pm
My husband had been scheduled for surgery on 7/21/08, but after another MRI and liver biopsy, it was cancelled. He now has mets to liver and lymph glands. He will start a different kind of chemo this Friday, 8/08/08. Has anyone been through this or knows of someone that has? I am wondering how they are doing. |
Joined: Jun 2008
Marilyn:
I had surgery that was aborted in March due to met's to my liver. I remained "NED" until August & have recently started my second round of chemo (the first was December-Jan). To date, there is no involvement of my lymph nodes (that I am aware of).
Other than the eating issues, which I had prior to my initial diagnosis & seem to come and go with the "changing of the moon", I seem to be tolerating the new chemo fairly well & am optimistic that we can at some point return to the No Evidence of Disease (NED) stage at some point in the future.
I hope this helps - - -
KD
Joined: May 2008
Thank you for your reply. May I ask what what chemo you were last on? My husband is now on Taxotere and Xeloda. You seem to have done quite well for several months! I hope this chemo works for you so that you will be NED again soon.
Good luck to you
Marilyn
Joined: Nov 2008
My husband was just diagnosed with ec - stage four. He will start chemo a week from Monday. We have not been given alot of encouragement. His chemo regiment will be Oxaliplatin, 5-FU, Leucovorinn. Has anyone had experience with this chemo. What do we expect. This has mets to liver and stomach. Any help or encouragement would be appreciated..
Joined: Jun 2008
Seems like everyones chemo regimen is a bit different depending on the Stage; however, my husband had dose dense cisplatin & 5fu. The ONC nurses who administered the chemo were wonderful in abating his symptoms, between the meds (ativan??) that sent him peacefully to lala land in front of their windows and great drugs for the nausea (thankfully they worked so well he never had a big problem with that). That was the BIG dose then he came home with a bag attached 24/7 for one week in the beginning of TX and then at the end. He was getting daily RT concurrently with the chemo. The only nasty side effect were mouth sores which affected his drinking and eating soooo much he lost over 50lbs and did have to go into the hospital for fluids, calories and pain control. That side effect was unexpected and wicked bad but in about 1-11/2 weeks went away. So we knew it was self limiting - but I wish we had the peg tube for feedings put in prior to starting chemo knowing NOW what I did not know then. His hair did NOT come out (no idea why) but the fatigue was profound and he did rest/sleep alot. I think one of the biggest things that got him (& me ) through that was the support/contact from family and friends - you just cannot go through it alone. When times get bad you will need to be his advocate with people because he may not have the