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Members Online: 20

Rollcall

HAWVET's picture
HAWVET
Posts: 318
Joined: Apr 2006

I sometimes wonder who visits this Head and Neck Cancer area. I thought I would get a count. Probably, not everyone will sign up. If you do, please complete the following:

Forum Name, Type of Cancer, Year, and Home State

I will start.

HAWVET,Nasopharyngeal, 1998, Hawaii

Mahalo (Thank you)

HAWVET

train-nut
Posts: 101
Joined: Jun 2008

train-nut, hypopharyngeal (piriform sinus), 2007, Oklahoma...best of health to all!

BugHunter's picture
BugHunter
Posts: 152
Joined: Oct 2007

BugHunter(Bill)
Stage IV tonsilar
Last treatment:03/28/2007
Home st: Michigan(but live in Tennessee)

geezer
Posts: 9
Joined: May 2008

Geezer, Tonsilar, 2006, Florida

victor53's picture
victor53
Posts: 97
Joined: Apr 2008

Victor Brown
Tonsil into base of tongue 4cm with a huge lemonsized lymphnode 9cm

I did 6 weeks of once a week chemo Erbitux Carboplatin Taxol then two week rest
Now i am in my second week of Radiation for 7 weeks with Cisplatin chemo daily on weeks 1.4.and 7 plus i get double radiation on fridays.
Then a 4 week rest then surgery is the plan.
I live in Costa Rica but am now in Rhode Island getting treated at same hospital i was born in 53 years ago. My email is vb53@cox.net i love to talk on phone with anybody who has experience at this email me your phone number and a time to call Thank you

cwctchr
Posts: 2
Joined: May 2008

Victor,
How are you doing? I am an 11 year survivor of tonsilar cancer. I had 36 radiation treatments and two rounds of cisplatin as well as surgery. Its been three months since your posting, but if you would still like to talk, I would love to hear from you.

TereB
Posts: 288
Joined: May 2003

TereB
Malignant Paraganglioma - started as glomus jugulare tumor in 1987 - still fighting
Houston, Texas

garyr's picture
garyr
Posts: 27
Joined: Jan 2002

Gary R
Throat & Lymph galnds
1999, New Mexico

jkinobay's picture
jkinobay
Posts: 247
Joined: May 2007

JKINOBAY, HPV16 positive SCC lymph nodes left neck misdiagnosed as Bronchial Cleft Cyst(surgery 5-07), MD Anderson said HPV16 points to tonsil area, tonsillectomy/adenoidectomy 7-07, left tonsil serious SCC, all else clear. Had 35 IMRT w/ weekly Cisplatin 9-07 & 10-07, last PET cancer free 4-08, next PET 10-08.

Surgery and treatment in Tucson, Az. but I live and work in Mexico.

Feeling better all the time. Be well..........JK

lolojldunn
Posts: 37
Joined: Apr 2008

lolojldunn (Jim)
Stage 4 Tonsilar
Last treatment 8/16/2007
Montana

sassyque
Posts: 44
Joined: Jun 2008

sassyque...cancer of the tongue...2003...Pennsylvanis

sassyque
Posts: 44
Joined: Jun 2008

Gee I can't spell!!!!Pennsylvania

slickwilly's picture
slickwilly
Posts: 339
Joined: Feb 2007

Slickwilly. Difuse Large B-Cell Lymphoma. 2003. Michigan. Mass with Octopus tenticles romoved from the right side of my face. Cancer from the Sinus cavity to the right jaw bone. 6 Chop+Rituxin treatments and 25 Radiation treatments. No more right facial nerve. 1/2 of my saliva glands, taste buds and sinus left. A minor meningioma brain tumor and it was Arthritis and spinal stenosis that finally put me on disability. Gotta hate those side effects. Keep fighting

Christmas
Posts: 91
Joined: May 2005

Christmas, nasopharyngeal, last treatment - March 2004, California

We are survivors!

ljoy's picture
ljoy
Posts: 85
Joined: Dec 2007

Tonsil cancer 2005. Treated at M.D. Anderson Houston, Texas and Texas Oncology Denton, TX. 39 radiation treatments and 3 rounds of Cisplatin. Now living cancer free in Sauk Rapids, MN. Ljoy

lorileona
Posts: 2
Joined: Aug 2008

lorileona (Lori, wife of Ron, cancer survivor)
Originally Stage IV, Tongue and lymph nodes
2005 and 2008
Wisconsin

marywiz15's picture
marywiz15
Posts: 1
Joined: May 2008

marywiz15
epithelial myo-epithelial carcinoma in my ethmoid sinus
November, 2007
Colorado

wboaz's picture
wboaz
Posts: 48
Joined: May 2008

wboaz, Squamous cell cancer of the left tonsil, January 2006, Oregon

SASH's picture
SASH
Posts: 277
Joined: Apr 2006

Squamous Cell Carcinoma Stage 4
Dx Sept 1999
7200 RADS over 46 treatments
10 rounds of weekly chemo simultaneous with the Rads
Cut from ear to ear May 1, 2000 that removed base of tongue

But I licked it.

Florida

HAWVET's picture
HAWVET
Posts: 318
Joined: Apr 2006

Thank you for all who have responded. For those of you still in need of treatment, I wish you well and will keep you in my prayers.

There is a total of 17 of us who have responded. I will keep a roster and will have another roll call in January 2009. My hope is that we will all be present 100 percent and we do not lose a soul due to this disease.

Here is the list:

NAME STATE
Bughunter Tennessee
Christmas California
Garyr New Mexico
Geezer Florida
Hawvet Hawaii
Jkinobay Arizona
Ljoy Texas/Minnesota
Lolojldunn Montana
Lorileona Wisconsin
Marywiz15 Colorado
Slickwilly Michigan
Sash Florida
Sassyque Pennsylvania
TereB Texas
Train-nut Oklahoma
Victor 53 Rhode Island
Wboaz Oregon

If your name is not listed, it can still be added.

Mahalo and Aloha

cwctchr
Posts: 2
Joined: May 2008

Name: cwctcher
tonsilar cancer in 1997
Virginia

Pie123
Posts: 2
Joined: Jun 2008

Pie123
Squamous cell cancer behind the left tonsil
Ended treatment 9/2007

marymoo
Posts: 1
Joined: Aug 2008

hi ya'll! Marymoo here age 39, SCC of Tongue and lymphnodes, just had first removal surgury Thursday Aug. 21, 2008, Alabama.

We Will Survive!

Marymoo

devildawg
Posts: 16
Joined: Jun 2005

devildawg, nasopharyngeal, 2004, michigan

jodyman
Posts: 1
Joined: Aug 2008

jodyman
Squamous cell carcinoma at base of tongue
2008
Texas

Just started radiation and chemo. Erbitux once a week, radiation daily 7 - 8 weeks (twice a day last 2 weeks if I get there), Carboplatin once every 3 weeks.

Previously had lung cancer in 2005. Chemo and radiation completed 12/2005. Lungs good now but doctors not very optimistic about prognosis for this one.

train-nut
Posts: 101
Joined: Jun 2008

My primary care doc, an internist, had base of tongue SCC with nodal invovement on both sides of his neck. No surgery, chemo and radiation...same treatment plan you have. He is two years post-treatment and cancer free. Be OPTIMISTIC! Were I you I'd be more concerned about the Sooners thumping the Longhorns real good this year. Rich in Tulsa.

bany
Posts: 38
Joined: Jun 2008

adding my dad to rollcall ok?

TR2
SCC of the maxillary sinus
radical surgery june 2008-no radiation/chemo

near Ottawa, Canada

HAWVET's picture
HAWVET
Posts: 318
Joined: Apr 2006

Bany, will add your dad. We will have a roll call in January and I will list the names. (Every six months thereafater). Hopefully, we will all be present and respond. With our type of illness, we never know who would have left us.

bany
Posts: 38
Joined: Jun 2008

thank you hawvet, i hope so too.

jagged
Posts: 55
Joined: Apr 2008

Add me please.
JAGGED
Carcinoma of unknown primary (CUPS) treated by head, neck, lung oncologists.
1) Breast cancer: 9/05
2) CUPS tumor wrapped around esophagus: 5/07
3) CUPS landed in lungs: 4/08
Home state: Washington

sassyque
Posts: 44
Joined: Jun 2008

Hi Jodyman.I too was digagnosed with cancer at the base of the tongue.The tumor had taken over almost my entire tongue.I did not let them operate because they would have removed my tongue.They gave me no hope at all.That was 5 years ago and I am fine with no reaccurance.I had chemo and radiation and I can have sympathywith anyone that has to go thru this but you must keep the faith.The big man is in charge but we have to believe.Prayer is the best medicine there is and without it I would not be here.Stay strong,you are in my prayers.God bless you....Sassy

tom55
Posts: 10
Joined: Oct 2008

Count me in.
tom55 Medullary thyroid, August06, Michigan

paula002's picture
paula002
Posts: 29
Joined: Apr 2007

Paula002, Nasopharyngeal, 2007, Montreal.
Greetings to everyone.....

hunpot's picture
hunpot
Posts: 90
Joined: Nov 2008

my mom had Squamous cell carcinoma top voicebox Passed on August 18th, 2008 after a brief battle that she fought hard and did everything possible. illness was diagnosed in Feb 07. I come on here to see if people have been affected the same way and if i can give any advice because i was her caregiver and have been through it as well. I wish evryone on her the most success. Massachusetts

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