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Alcohol ablation for recurrent TC

Joanjwm
Posts: 1
Joined: Jul 2008

Has anyone opted for this type of treatment as opposed to neck dissection? I am facing recurrence with surgery as the standard protocol. Mayo clinic has pioneered this non-surgical treatment. Looks promising.

thyroidnodules
Posts: 1
Joined: Jul 2009

Hi,

I would also like to talk to someone who has had this treatment. I live in Seattle and am having a biopsy tomorrow of some lympth nodes in my neck to see if I am a candidate for alchohol ablation treatment at the Seattle Cancer Care Alliance. I have three spots of cancer in my neck that have shown up on PET scans since I had my thyroid removed (Papilary thyroid cancer). One node is a centimeter in size.

jessjewel
Posts: 1
Joined: Feb 2010

Dont know if you found a doctor in Seattle to do this tx, but I'm having it done on a lymph node in Seattle at Group Health end of March. If you did do it, was it painful?

ihlthyroid
Posts: 2
Joined: Jul 2010

Did you have this procedure done?
Were you satisfied with the outcome?

timir
Posts: 2
Joined: Sep 2010

I have received ongoing treatment at the Mayo Clinic for the last 2 years, ask any questions!

lizfromchicago
Posts: 1
Joined: Oct 2010

Just found out I have some thyroid tissue and a suspicious node found on ultrasound 9 months after total thyroidectomy, and my endo in Chicago said I have to go back to surgery. Have you had any luck with alcohol ablation at the Mayo clinic? I would like to avoid surgery if at all possible but don't want to risk my health.

aniat
Posts: 4
Joined: Oct 2009

i just want to know if is painful and if is working?Please let me know

gloriamatzo111
Posts: 2
Joined: Apr 2010

Do you know how Mayo decides whether or not you qualify for alcohol ablation? My 78 year old overweight high blood pressure mom has suspicious lymph nodes on both sides of her neck now. She had a total thyroidectomy due to papillary cancer in 2006. They did an FNA a year and a half ago and found Thyca cancer in her nodes, but the lymph nodes were so small they said it wasn't necessary for her to have surgery at that point.
Thank you for any information. She is at high risk for surgery because of her weight and her poor circulation. Also the cancerous lymph nodes are right next to her carotid artery and touching her laryngeal nerve.
-Gloria

Baldy's picture
Baldy
Posts: 225
Joined: Mar 2011

Thyroid cancer advances so slowly, considering your Mom's health and age, the cure may be worse than the disease. I'm betting this is why she's getting the advise that her doctors are giving her.

Alan

theramosfam
Posts: 1
Joined: Nov 2011

Hello.
I was just recommended this procedure at Majo today. They found a 1cm enlarged, circular lymph node close to my langular nerve. The biopsy they did came back in conclusive.

my i ask who is your Endo at Majo? did the ablation work? Did the node dissapear that they ablated? had you recieved RAI? who was your radiation md?

thank you so much!

jcvolt
Posts: 69
Joined: Mar 2009

Sounds like a cocktail. Tequila and sloe gin?

Sorry, couldn't resist. What type of cancer do you have?

jmclutch
Posts: 5
Joined: Dec 2009

GO TO M D ANDERSON CANCER CNTR IN HOUSTON. Dr. Steven Sherman is head of the Endo center there and he is on the board of Thyca also. He talked to me about that treatement as I'm unresponsive to I-131 have had 3 re-currant surgeries since thyoridectomy in Feb 2004 - he said it can be painful as they are unable to tell when they reach the "full" status injecting however there are other clinical trials out there that could be what you need. I really wish you can get to Texas and speak with them as they are 5 yrs ahead of everyone else world wide and I got a "cancer free" checkup in Feb & Aug this year. I still will go back in Aug 2010 and will most likely never get off the yearly check up list - but hey - I'm so glad I went. Topeka dr. said he "had it all" after 2nd surgery - he removed 2 more lymph nodes after original surgery - and some para thyoids - (sept 2006) went to Houston in late Nove 2006 and they found 117 Lymphs full of cancer and then I had another disection in Nov 2008 - and am now on vacation from cancer. So give them a call. You can self refer on line and then they will assign you a team that will get you where you need to go. IT IS AN AWESOME HOSPITAL with all the right info and help you need. hang in there! you'll get through this!! God be with you

ihlthyroid
Posts: 2
Joined: Jul 2010

Are they any better than the Mayo Clinic. Are there published outcome statistics available?

reddyvaribabu
Posts: 3
Joined: Jul 2009

Hi,
I was unresponsive for I-123 and working on finding out what is my next options now. I see "alchohol" ablation is a better option for me. But it looks like Mayo clinic is also doing this now. I see you have to housten MDA cancer center. May I know what made you choose this to mayo?

Babu

aniat
Posts: 4
Joined: Oct 2009

I just want to know if the alcohol ablation is painful?

aniat
Posts: 4
Joined: Oct 2009

I just want to know if alcohol ablation is painful?

lori d
Posts: 6
Joined: Dec 2009

there is a dr at columbia in NYC who wanted to try to do this with my thyroid cyst/goiter
dr. david sperling. he and his staff ROCK!
if you want more info i can give it. not sure where you are located - if this is an option.
let me know.... i would be happy to share any thing that might be helpful.

BellsAngel69
Posts: 102
Joined: Dec 2009

I live in upstate NY. I've had a total thyroidectomy and two I-131 treatments, surgery to remove a spot that metastisized on my hip. My TSH recently went from 29 to 121 since May of this year, so in six months it has quadrupled. My scan in May said I was clean when my level was 29. Hard to believe nothing will show in my upcoming scans on Jan 13th and 15th, but if nothing does, I'm finding another doctor for a second opinion. I'm not going to turn my back on this, as the doctors want me to do. To just come back in six months for another blood test to check my TSH. No way. I want answers, options, anything to help me beat this.

So is it Columbia University Hospital? Do you have more info?

Perstephanie
Posts: 28
Joined: Feb 2010

I assume they did an FNA and it was definitely a cyst/benign? From what I've read, this really looks like a good route to go with recurrences if you find someone experienced.

timir
Posts: 2
Joined: Sep 2010

I have been receivig the treatment at mayo under Dr. Ian Hay for the last 2 years with great success. I had papillary cancer that has come back on numerous occasions. After a modified radical neck dissection, it came back in 2 lymph node areas. I have had treatment 3 times now with no sign of the cance.

AIMpro
Posts: 1
Joined: Sep 2010

My daughter, now 22, had a thyroidectomy in late 2008, the T-131 radioactive iodine treatment in January 2009 and then a partial neck dissection in April 2010. Her endrocrinologist wanted her to do a higher dose or radioactive iodine and go through that treatment again due to her high TG levels...a therapeutic dose of the radioactive iodine with ultrasound and a PET scan revealed nothing. So, we took her to Mayo last week for a second opinion and saw Dr. Vahab Fatourechi. At Mayo they found two cancerous lymph nodes in her neck and Dr. Fatourechi advised us NOT to do the radioactive iodine treatment but to consider alcohol ablation. Can any one tell me what this entails?

mountaingirl_ca
Posts: 1
Joined: Nov 2010

Good news that it's been successful for you. I live in Oregon, with an appointment next month at Mayo to see if I would be a candidate for alcohol ablation. I'm wondering if you know or if the doctors at Mayo referred to any other institutions/hospitals/doctors that can do this as well, or if Dr. Hay is the top choice for this procedure? Ideally, someone or someplace closer to home.

Thanks!

gloriamatzo111
Posts: 2
Joined: Apr 2010

Do you know how Mayo decides whether or not you qualify for alcohol ablation? My 78 year old overweight high blood pressure mom has suspicious lymph nodes on both sides of her neck now. She had a total thyroidectomy due to papillary cancer in 2006. They did an FNA a year and a half ago and found Thyca cancer in her nodes, but the lymph nodes were so small they said it wasn't necessary for her to have surgery at that point.
Thank you for any information. She is at high risk for surgery because of her weight and her poor circulation. Also the cancerous lymph nodes are right next to her carotid artery and touching her laryngeal nerve.
-Gloria

aniat
Posts: 4
Joined: Oct 2009

I am also going to Mayo clinic.My appointment is next week.I will have biobsy first to check if I am candidate for ablation.Let me know if is painful.Thank you

taffinang
Posts: 18
Joined: May 2010

I am going down to Rose Medical Center in Denver to have the alcohol ablation done on Wed so I too would appreciate any feedback from someone who has had this procedure done.

AliceP
Posts: 32
Joined: May 2010

This is my 4th recurrance of Hurthle cell cancer. Luckily all have been located in the neck region.

I had a needle biopsy and the trace dose of I 131 and WBS this week. Results: HCC tumor is located in my chest cavity beneath my breast bone/collar bone. My radiation oncologist doesn't feel that further radiation would be effective. It did not take up the iodine so RAI is not an option. Due to the location, surgery would be difficult. Next step is to see a doctor at Mayo Clinic Jacksonville and perhaps have alcohol ablation treatments. I am also looking at getting input from MD Anderson in Houston.

This cancer just does not want to go away, but I am keeping a positive outlook and an aggresive approach for treatment.

I'll post more after I see the Dr. at Mayo.

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