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Sie effects of IMRT radiation and Temador

LisaF2008
Posts: 3
Joined: Jul 2008

I am newly diagnosed with an inoperable low-grade astrocytoma. I will start 6 weeks of IMRT radiation and Temador in a few weeks. Can anyone please tell me their side effects from taking the two treatments together? I have two young children, and I would like to prepare them (and myself) for what to expect. Any info is appreciated.

chaffinsmom
Posts: 4
Joined: Jul 2008

I know RT makes you really tired. My son was dx with an oliodendroglioma/astrocytoma 3 years ago. My heart goes out to you and my prayers to give you and your family strength to get through this.

ChristyM
Posts: 38
Joined: Jun 2008

I have recently finished 6wks of chemo and radiation. Its important to get plenty of rest and to take things easy. I tried to keep myself on the same sleep schedule everyday so it would be easier to adjust when I was completed with treatment. I would say to try to go for walks whenever you can and feel upto it--it will help you adjust and keep your stamina up afterwards. Its difficult to let people help you but it will help you a lot.

Jenniferclay
Posts: 2
Joined: Sep 2008

Yes, I lost my hair where they did pinpoint radiaton. Tired, drained of energy. Appetite was
pretty good. I have had Astrocytoma grade2 and Glioblastoma grade4. I was diagnoised in Feb.
2006. I do feel that besides the help of God, Temador saved my life. I still don't know why
God has left me here, except for my 14yr old Daughter, Harley. We go to a christian
phycologist becaust it is scary for me and her.

farinelli
Posts: 2
Joined: Jan 2009

I was one of the guys who went to the doctor with increasingly severe headaches and nausea daily, and no clue as to why. Three days later I had a golf-ball sized tumor (GM) removed from my right frontal lobe. I didn't have time to fret about side effects when they started the radiation and Temodar concurrently-6 week course.

I ate well but slept poorly despite doing twenty or more laps of the hospital ward every day. Don't be afraid and don't let minor side-effects turn into major ones by worrying or varying a planned counter program. Have some moderate excersize routine in place before you start and keep it up. Try to keep busy instead of sleeping during the day or watching a lot of television. I was on an unrestricted diet and ate well throughout-it was a great source of anticipation and joy during a brutal seven week stay in the hospital (brutal because I am an outdoors person). I also resisted sedatives which I felt were countering my keep busy, stay mentally alert plan of action. I actually had too much energy, partly because I didn't waste it worrying. I also took what pain medication they allowed, if only to prevent going back to the pain that I suffered for weeks before and after the operation. Once the pain was gone the rest was easy. When they told me about the side effects I told myself I could blow right through it and I did. I thank God and Jesus Christ!

I did lose much of my hair and suffered a mild depression on the day it started falling out. I thought I wouldn't. Nevertheless, keeping busy and excersizing helped me get over it quickly