Jun 30, 2008 - 11:38 pm
Hello! It's been a while since i last posted! I was diagnosed stage IIIB rectal cancer in August of 07 when i was 38 years old. I received six weeks of 5FU pump along with seven weeks of radiation. Had resection surgery in January 08 (clear margins, with four out of fourteen lymph nodes involved), and began FOLFOX6 in April.
Before surgery i started having pain in my back and butt muscles. This has progressively increased until now i can barely walk. My oncologist didn't seem concerned about this, and the nurse actually suggested i try to find a chiropractor. I didn't think that was a good idea because the pain was acute, and apparently here to stay. I made an appointment with my primary oncologist, and she ordered x-rays. Now i find out i have a bad calcium defeciency, and mild arthritis in the area where radiation was given. I'm getting a bone scan in two weeks to see if i have osteopenia.
The radiation treatments have caused me more problems than any of the chemos or surgery together. I also have radiation cystitis. What i would like to know is if this has happened to anyone else, and how did you treat it? Especially the arthritis. I am on calcium supplements, and i do mild yoga in bed, but the pain is almost unbearable. Is there anyway to relieve the pain without so many painkillers? My doc prescribed ibuprofen which helps, but she doesn't want me to take it very much. :( I don't think i'll see her again until after the bone scan. Any help would be wonderful!