Jun 28, 2008 - 10:52 pm
I am new to chat rooms of any kind, just never felt the connection until the frustrations my husband and I are facing related to his recovery from the radiation he had for base of the tongue cancer sounded so much like so many I have read in the past 3 hours of reading the Head and Neck comments. And responses were so kind and supportive.
In April of 07, my husband finished his rounds of chemo and radiation with a modified radiacal neck dissection and total reliance on a peg for nutrition. The radiation really did a number on his throat for here we are 14 months later, 5 dilations, swallow therapy etc and he has not been able to swallow anything for any length of time due to a "soft" stricture that formed above his esophagus, a poorly functioning epiglottis, and horrific mucous( to the point he carries a styofoam "spit cup" around with him all day).
The good news is, one doctor finally found the right combination of meds to help him sleep so his energy level is greatly improved in the past 2 weeks, and I see his "real" personality back.
If we could get some kind of handle on this very thick mucous situation we would feel so much better, but nothing works - and no one seems to know where it is coming from, why, or even if it will ever get better/go away.. We are looking at atleast one more dilation, but even after this one 4 days ago, whenever he takes even a tbl of water, thick mucous forms, he can't swallow it, he begins coughing. Any ideas, help, medical facilities anywhere on the East Coast if you've had this problem, would be truly appreciated. He's lost 38 pounds yet is handling his not eating better than I am. Thanks.