Jun 21, 2008 - 6:29 pm
I was 31 years old in 2006 when I was diagnosed with an aggressive variant of papillary-follicular thyroid cancer. I had tons of surgery and RAI. They also found out that I had Hashimodo's Thyroiditis when they took my thyroid out. What this means to me today is that I have antibodies against thyroglobulin so my thyroglobulin levels always read zero so we can't go off of bloodwork to see if my cancer is back. I have to get radioactive iodine scans every year instead. My last one was positive for spreading to the brain and I had to hear the news that my cancer was not gone and it was now in my brain. Well, after more scans, they found out that it WASN'T in my brain and said that the first scan was "contaminated", whatever that means. So, they sent me home and since all of this I have gone through a divorce and gone back to work full time. I can barely function I am so tired but my last TSH was fine. My endocrinologist said I have cancer-related chronic fatigue syndrome. I don't know anything about this and don't really believe him. I think I am just still recovering from a horrible few years of being very sick. Recently I have been trying to find statistics on recurrance rates of people who had the variant I did. I feel so sick still. Did anyone else have such a hard time recovering from their treatments? It's 2008 and I still am recovering I think!