Jun 16, 2008 - 10:34 pm
I am posting my first messege as compared to hundreds over at the National Brain Tumor Foundation Messege Board. I look forward to learning a great deal as I did and continue to at the NBTF messege board. These sights are a wealth of real, actual, and living data information to combat a disease very little know or care about. My dad hit his head on the trunk in May 07 and had a second MRI to check something in question June 08. His symptoms at the time of his head injury mimicked a brain injury. However, the MRI with conrast identified an unidentified growth that we have come to know by stereotactic biopsy at Sloan Kettering as GBMIV. Multiforme. My dad was on temador and radiation initially 140mgtemador with 40 days radiation. Then after radiation continued on temador 240mg and maxed out at 340mg up until May 08. He started CPT11/avastin on May 15, 2008. All the major and deadly side effects have been absent. To date he has been able to do pretty much anything except the computer which he did all the time. His brain performance has done a 180 for the positive in all aspects including memory, cognitive, and high function reasoning. However, there is a slight delay in getting out new thought and the added frustration effects the judgement. He will have his 4th treatment on June26. I am amazed. The temador completely turned against him when it stopped working. He became violently ill, couldn't walk, couldn't think, was having involuntary body locks. The temador stopped working and the tumor grew and caused swelling. But, the next day after the avastin/cpt11 he was able to do anything. It was a miracle. Obviously the temador killed all the cells it could but the other cells that didn't die from temador needed to be addressed. I am convinced that his MRI on June26 could be a surprise. His tumor started out as a quarter sized tumor in the left temporal lobe with a tumor the size of a half a dime under it. The tumor was not agressively growing during radiation but after months on temador became ineffective. The tumor has been isolated in the left temporal lobe. It hasn't left that region. Also, my dad is a leftie which means alot of his vital functions are in the right hemisphere. I look forward to future post and any information of similarieties or comparisons. I have been my dad and mom's medical adviser for years. I just let my dad's prior doctor go and hired a new team for the cpt11/avastin and I am just getting back to the research swing again. God Bless you all and keep up the good work.