Jun 11, 2008 - 5:04 pm
Does anyone know the normal dose of RAI Radio Active Iodine Treatment that is given for thyroid cancer? I was given 153. I'm trying to find out if this dosage is high. It's been less than a year since I had the RAI treatment. Since late March of this year and I have been in a great deal of pain in the jaw area. It all started with the feeling of an ear infection in my left ear. I went to urgent care and the doctor said my ear looked fine, but gave me some prescription drops. The pain didn't go away and ended up going to see an E.N.T. Ear, Nose and Throat specialist within my medical group. The E.N.T. I saw was the surgeon that removed my whole thyroid gland because he found cancer in the middle portion. Dr.&^%$&^* felt I was having inflammation of the salivary glands. My cheeks only got swollen twice, and of course they weren't swollen during the two visits I had with him. He said to drink lots of water, use warm compress and suck on lemon drops. He thought I might have a stone in one of the ducts. The doctor did say if the pain didn't go away in three months surgery may be a possibility. That was a huge red flag. I then requested a second opinion from another E.N.T. specialist OUTSIDE our network, which was granted. The second opinion doctor didn't confirm the pain was strickly salivary glands. He suggested I be tested for Sjogren's syndrome which is an autoimmune disorder. I was then seen by a rheumatology doctor and the test came back negative. I have had a c/t scan of both sides of the face to see if there was a tumor or a stone in the duct. No tumor or stone. The intense pain has never gone away. I have made an appointment to see an oral surgeon to have pamaramic xrays taken and have a chat. The pain is never consistant. Meaning one day it's on both sides of my jaw bone, the next it can be only on one side or the other. I am living on over the counter pain medications anti-inflammatory types. I.E. naproxen/ibuprofen. Does any one have any suggestions or a clue.