May 13, 2008 - 7:09 pm
hello to all. my 44 yr. old sister(a nurse), was diagnosed with nhl. it grew out from her lingular tonsil and has neck, armpit, groin and belly nodes involved. we've had 2 opinions. first onc. said"would only be an inconvenience for her", but ordered pet scan with not so good results. hillman center in pitts. was 2nd opinion. she had a muga scan, bone marrow aspirate and was ordered her tx. regime. rchop, every 3 weeks, for 6 cycles. she had the antibody last wed. chemo on thursday, followed by neulasta on friday... we are still awaiting the bone marrow results... she(of course is devastated), as well, as all of the family... her only symptoms, were a change in her speech and fatigue, and then she discovered her enlarged tonsil. then came the fateful biopsy... i have so appreciated all of your postings, as they have helped me to understand a little better. i have also been all over the net. some articles say"no cure", yet some of her medical practioners do indeed say "the word cure". i'm so confused:(:( we were surprised to hear the results of the spreading, from the pet scan, as we thought it was localized in her tonsil and neck nodes only???? any info. would greatly be appreciated. she gets round 2(21 days from now)... rchop... thanks so much, debbie (butler, pa)i guess we now need to ask about staging???????