Apr 16, 2008 - 4:20 pm
Hi, I recently had two small tumors and part of a rib removed at UCSF, with a Ewings/PNET diagnosis. I have met w/ one oncologist and will have a second opinion at Stanford on about two weeks. The chemo regimen planned is tough, with alternating hospitalization for chemo one month and then infusions the next. This is seemingly such a rare diagnosis for adults that I am having no luck finding people on thsi site...I am a colon cancer person and that site part of this site is HUGE.
Has anyone out there Had chemo - the 5 drug regimen used for children and adult Ewing's? Any thoughts about anything???
I love hearing all of the nutritional news. I'm just a little scared. Eventhough I know chemo will hurt my body, I am frightened to not do any...I hope that makes sense. I want to try to complement my chemo w/ nutritional work, though. Have been juicing for two years...somehow that is not helping keep cancer at bay.
Well, I hope I get some reply....and I willbe heppy to join in this fight for all of your survival as well.
All the best,