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Has anyone survived stage 4 stomach cancer?

savebrother
Posts: 1
Joined: Apr 2008

Hi,

I just learned that my brother in China was diagnosed stage 4 stomach cancer last week. The surgery could not go on at his stage. However, the cancer seems not spread to lung, liver, but spread over his bowl.

It is devastating after hearing this. I read a lot of research papers and articles about it. I now know it is incurable, but I see about 3% survivors from statistics.

If any of you belong to those 3%, or know anyone in those 3%. Would you please let me know what you have done? As eating, sleeping, exercising, or any unconventional approach you or he/she have taken? I am trying to find something common in those survivors.

My reading told me that any conventional approach (chemo, target therapy etc.) normally go to a dead end. I am struggling whether I should suggest family to let my brother take a paliative approach, combined with some Chinese herbal, instead of continually using chemo. My brother said he is not afaid of death, but does like die in hospital with endless pain. I hope he can fight for his life, but I do not want him to suffer the pain on a route without hope.

Please help me.

Thanks a lot

Frank

marie_and_mom
Posts: 1
Joined: Aug 2011

Your situation sounds a lot like my mothers. She's 62 this year,..was diagnosed in 2008. Had chemo, stage 4 stomach cancer, inoperable tumor, no radiation. Went into remission 1 year post chemo,..mets to liver and pancreas. Cancer returned earlier this year, Jan 2011, only w/ the tumor in the stomach, no where else for now (crossing fingers) She's depressed on most days...even w/ family support and medication. We have changed her diet, placed her on organic everything, and doing the cancer fighting foods.
I'm mostly writing because you actually put your phone number up knowing how crazy the internet can be,...yet you did it for those with this cancer. It meant a lot to my mom and she wanted me, and I wanted to email you/friend you per facebook (if you're wondering who I am). She's korean but very Americanized:),..just not computer literate.:) Just wanted to give you a heads up on the request and to have some link into the world of my mother's. Sometimes I get caught up in it being just between us and the family...helps to see the rest of the world who have more in common with her than we see on most days. God bless, and always, always, many more blessings. --Marie--

mukul
Posts: 1
Joined: Apr 2011

Hi Rohan,
My Mother is 48 detected with stomach cancer metasized to ovaries,but doctors said no to surgery,
Where your Aunt had a surgery,did doctors suggest surgery on thier own

tiffany32882
Posts: 3
Joined: Apr 2011

Hi I'm 28 and just got diagnosed with stage 4 stomach cancer my treatment starts next Thursday they are gonna put me on folfox clinical trail I wonder how the treatment like please respond I don't really know what to eat too they found two big tumors in my stomach and its been spreaded everywhere in my stomach they won't do surgery they told me I got a year with chemo and that it my parents are still in shock of my age and whats hurting to them is that have 3 kids as well please tell me whatever I need to be prepared thanks everyone.

liveinhope
Posts: 83
Joined: Mar 2010

Hi Tiffany,till the therapy starts eat as much and as often as you can.Nowadays there are a lot of medicines to reduce the side-effects of chemotherapy and you may do much better than you expect.During treatment drink as much water and other fluids as you can.eat small frequent meals with fresh fruit and vegetables and nuts.Avoid processed and canned foods.
You need to be prepared for a tough fight.We will be there with you in our thoughts.
With love and good wishes

tiffany32882
Posts: 3
Joined: Apr 2011

Thanks

OYONG
Posts: 3
Joined: Mar 2011

I will include u in our Prayers tiffany, and liveinhope is giving you the right thing to do.

By the way mom already give up after fighting gastric cancer last 3/31/2011 and shes now in heaven.I wanna say Thank you to all for all the adviced you wrote, esp. to darthpaul,Eric Grush and to all group members at facebook.

tiffany, you can also join the cancer group at facebook so you can get more info with ur situation...u can add darthpaul (founder of the group) at fb and he will add u then.

B0022
Posts: 1
Joined: May 2011

Hi Frank ,
My aunt has been diagnosed with stage 4 too 2 and a half months ago , She did the surgery even though the cancer was already spreading to her bowl too!At first the surgeon said that this was only a check up surgery that they dont even know if they will be able to remove anything from it and her chances were so low, but they successfully removed 80% of the cancer and a partial-gastroectomy and her uterus,too.They sent her back home after a month or so.3 weeks ago she started to throw up everything she eats , literally everything she lost so much weight in only a few weeks , her back is killing her from lying down all day and when she gets up to walk she walks for a little bit then she sits down cause she gets even more tired. We waited for her to start chemo , last week when they finally approved her to start chemo, things started to get complicated .We noticed that she started to have peeing problems (kidneys problems) she couldnt pee for 2 days so we called the doctor and he said to take her to the ER and they found out that she's having an infection in both of her kidneys , today the doctor said that they did everything he could to help her and there is nothing els he can do.I dont believe that i think she can still have kidneys transferred and she can go on B17 and fruits and veggies to built her immune system back, i have now idea why he is loosing hope.

Is there anything els to do ? I really dont want to give up on her , she means the world to me and I am not ready to let her go .
Seeing all of ur comments really built my hope back up , I really gave up before i read all ur comments.
My prays to everyone here and for u and ur family too frank !

xxx

hamidg84
Posts: 1
Joined: Jun 2012

My dad was diagnosed with stage 4 cancer in Nov 2011 He is only 53. He kept on loosing weight but we never noticed until doc exposed this horrible news.

He went throught chemo from Dec - May2012 successfuly with great hope and strong will power. He has now started loosing blood through vomit and stool. Doctors have been lazy in doing endoscopy as they do not have senior at the moment in hospital so they are keep on giving him blood.

He is in hospital right now. What a strong man!! May God bless and live him long with healthy life.

It's the 3rd time he will be going through pathces to stop bleeding. I have learnt there is nothing much medical can do but what can we do make his life easy and painless?

I pray that nobody suffers from this disease. God bless you all

veroaka
Posts: 1
Joined: Jun 2012

One of my dear friends was Dx with gastric cancer stage IV 17 days ago. Her prognoses is poor. She has jaundice because the tumor is pressuring the liver and she is retaining the bio fluid in the liver. Her heart rate is very fast and her breathing aswell. She is only 34 y/o. I feel so bad for her and don't know what else to do to help her. She has a 1 y/o and 9 y/o daughter. SHe is inpatient right as I speak. She has also developed pnuemonia. They wont do surgery and they are not sure if they will give her chemo can anyone please give me an advise and have her in your prayers. She is also vomiting everything she is.

Thank you

gcordoba
Posts: 3
Joined: Jun 2012

Prayers for your dad and you & the family :) xoxo. F*ck cancer

kosakayama
Posts: 2
Joined: Jun 2012

hi, my dad's going through the same thing. he tried taking chemotherapy once but he was just too weak to continue because of his low immune system, and he went through chemotherapy and radiation earlier within the same year because he had thyroid cancer (which is completely gone). he can't have surgery because the doctors said the tumor in his stomach is too big and the surgery might be fatal to him. he could barely eat and probably ate 3-5 teaspoons of his meal, which is pureed. right now what they're doing is giving him sedatives and morphin so he can sleep peacefully. my mom says they plan on continuing this method until he dies peacefully in his sleep. i know my dad still wants to fight but they don't know what else to do for him because we can't build up his immune system through food.

gcordoba
Posts: 3
Joined: Jun 2012

I am sorry to hear this... I recently lost my bf, as painful as is to read this it breaks my heart. I wish I had a great recepi to share with you, all I can say is kiss ur daddy and hug him each time :) that will put a smile. Prayers for your dad and you! Xoxo. there is a juice brand "naked" it has vegetables including broccoli I don't know the name but that its good as vegetables and fruits help fight cancer. :)

LisaLisa929
Posts: 1
Joined: Jun 2007

I did! I had stage 4 esophageal/stomach cancer that went to my liver. I had chemo - an obscene amount of it - and I am fine! I wrote a book - let me know if you would like one - good luck! Pray hard! Lisa

preef
Posts: 1
Joined: Jul 2012

My dad, age 72, was diagnosed with stage 4 stomach cancer in mid February of this year. He had a massive amount of mets in the liver. I saw the CT scan - he had far too many tumors in his liver to count. By the time they found it he was so week he needed oxygen in the hospital. He barely survived his first two rounds of chemo and ended up in the ICU twice because of extremely low blood pressure due to dehydration. He spent most of February, March and April in the hospital. He couldn't eat or drink much of anything. It looked really bad and the doctors thought he wouldn't leave the hospital. The doctors stopped a chemo cycle early and lowered his dosage for the following chemo cycles to about half of what his initial dose was. He's been getting CT scans every two cycles (6 weeks) and his liver mets are shrinking by 30% each time. They only monitor the liver since poor liver function is what can be fatal - not the stomach. Also because they can't see the stomach tumor on the CT scan.

He started on Oxaliplatin and Xeloda chemotherapy. After 6 rounds of Oxaliplatin they discontinued it because of concerns about neuropathy. The oncologist was going to take him off the Xeloda too but we insisted he stay on it since some recent studies have shown that taking a break from chemo reduces survival time. The studies showed taking a break from the more toxic drugs like oxaliplatin and staying on the less toxic drugs like 5FU or Xeloda greatly improved survival. We will have to wait about a month for his next CT scan to find out if the Xeloda alone is continuing to reduce the tumor size.

We also have my dad taking PSK (http://www.mushroomscience.com/products/coriolus-super-strength-turkey-tail/) from Mushroom Science as well as AHCC. These seem to have helped him regain his strength after getting out of the hospital.

LisaLisa Congratulations. I'm so happy for you. I'd like to know how you did it. What drugs and alternative treatments did you do?

Good luck to all of you.

osam
Posts: 1
Joined: Aug 2012

My bestfriend Osam (25 y/o on dec.8) have stomach cancer for the past 3 years and it was found out that its now stage 4, he is so energetic, he doenst seem that hes sick, he even play tennis. Is this possible? sometimes i have doubt if hes in stage 4 coz i havent seen his records coz i havent met his family yet. they are muslim family so they are quite conservative. He already had readiotherapy and chemo before 2 months and as per my bestfriend, his condition isnt good. He has also have psoriasis that make his lifes horrible. I am always with him everytime, he makes me laugh, he always make jokes and dancing, we always watch horror movies and cook together. But im worried about his eating habits, he eats a lot and he eats evrything like spicy foods coz he loves spicy and i think this isnt good for him.

SYDNEY MANUEL
DUBAI U.A.E

Sori
Posts: 2
Joined: Oct 2012

My mother in law has stage 4 stomach cancer with metas to the lungs and kidneys.
She is following the EOX tratament(since last week).For the moment she is ok, she doesn't not have any sick symptoms and she is eating quite well.
I was wondering LisaLisa, what treatament did you follow?
And what diet did you take ?

Also, where is your book available?
Thanks and I wish everyone all the best.

Sori
Posts: 2
Joined: Oct 2012

My mother in law has stage 4 stomach cancer with metas to the lungs and kidneys.
She is following the EOX tratament(since last week).For the moment she is ok, she doesn't not have any sick symptoms and she is eating quite well.
I was wondering LisaLisa, what treatament did you follow?
And what diet did you take ?

Also, where is your book available?
Thanks and I wish everyone all the best.

Hillarjr's picture
Hillarjr
Posts: 5
Joined: Nov 2012

I was diagnosed with stage 4 adenocarcinoma of the stomach, HER-2 positive, full stomach wall thickness, lots of positive lymph nodes, maybe a tiny metastasis to the peritoneum. Partial gastrectomy, oxaloplatin for 6 or 7 cycles (yes, I do have some chemobrain), Xeloda two weeks on, one week off since then. Herceptin infusions every three weeks since them.

Currently, I am almost two years out with no cancer symptoms (only treatment side effects) and no evidence of disease. My long term prognosis remains a little questionable, but the prognosis for stage 4 is much less grim than it was even a few years ago,particularly stage 4 that is HER-2 positive.

I first read this thread two years ago and almost despaired. Please do not despair. In addition to the much improved three aments now available, there several more in development that may be available in the next couple years :-)

mwong147
Posts: 2
Joined: Apr 2013

Hi Hillarjr,

 

I was wondering how your doing now! My moms situation sounds similar to yours!

 

 

paddy24
Posts: 5
Joined: Dec 2013

Hi Hillarjr!! Im in the UK. My story is very similar to yours.  Did you have a total gastrectomy also? and do you struggle with your eating if so?

FortunateOne's picture
FortunateOne
Posts: 2
Joined: Jan 2013

I am a Stage 4 (metastasised) Gastric Cancer Survivor - I'm still here! Female in my late 40s, hoping to see my late 50s. It is my hope to help others with this Deadly Disease by providing information about my experience living with this condition. Hoping for an 'official' remission.

Best wishes

paddy24
Posts: 5
Joined: Dec 2013

I was 49, in 2010 when diagnosed and treated. Now in 2013 still alive and kicking, but not as high!! Any tips on curing my back problems, which, I think is damage due to all the treatment!?

paddy24
Posts: 5
Joined: Dec 2013

Hi there, I had all my stomach removed, chemo and radiotherapy in 2010, I had stage4 cancer. Luckily it hadnt metastised elsewhere. The whole treatment was a huge ordeal, and if I had to go thru it again, I would seriously think about it!! However, although, my quality of life has changed drastically, I am still here to tell the tale 3 years on. It is very life changing either way, so good luck to you and yours!

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