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possible recurrence
 |
Mar 31, 2008 - 6:57 pm
I had papillary thyroid cancer 13 years ago. I had a total thyroidectomy and go for a thyroglobulin test yearly. My numbers were in the decimals. Last year I went through surgery, chemo and radiation for breast cancer and my thyroglobulin was up to 4. The doctor said that it was not related to the breast cancer. This year the thyroglobulin is up to 9! My TSH level was too high, so the doctor increased my synthroid dose. Now I have to wait 8 weeks with the new dose before I can repeat the blood tests in case the TSH is affecting the thyroglobulin. I had a PET scan follow up for the breast cancer this week. It was clear. I'm thinking that I'm having a recurrence of the thyroid cancer, but it is still too small to show up on the PET scan. Any body have any experience with this? |
Joined: Mar 2008
I'm afraid don't have any relevant experience to offer. I am just a recent thyroid cancer patient and have never had a recurrence. But I wondered, have you tried asking your doctor for a radioiodine scan? Maybe this would detect something that the PET scan may have missed, unless you already know that radioiodine scans don't work for you. Just an idea.
Joined: Apr 2008
Yes, expereince I wish I did not have. PET can't find microscopic CA. I'd get an ultrasound ASAP. Be picky as to where it is done. Maybe a 2nd opinion is in order.
usually TSH up mean Tg up and they want you supressed better.
Recurrence is usually in regional nodes and only ultrasound can see that!
Best wishes.