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pancreatic cancer

unsal
Posts: 1
Joined: Mar 2008

hello, is there anybody who fights against pancreatic cancer?

AuthorUnknown
Posts: 1564
Joined: May 2006

Hello,

You may want to search the personal web pages on the this site. On the left hand side of this page, click on "Personal Web Pages." You can then set the diagnosis and criteria you are looking for. If you find someone you would like to contact, you can do so through the internal CSN email system. For information on all of the functions of the CSN, visit the help link at the top of this page.

Take care,

Dana
CSN Dana

dasspears
Posts: 233
Joined: Feb 2009

I'm sorry but I don't see that listed.

mrwhipl
Posts: 1
Joined: Mar 2008

i been fighting it for 8 years. im 43, was discovered when i was 35.

ruth511
Posts: 4
Joined: Apr 2008

hello mrwhipl i/m ruth511/s husband she had her whipple 05/11/05 for a stage3 adenocarcinoma on the common bile duct they took lymph nodes off of the pancreas the head of the pancreas duodenum gall bladder a peice of the stomach did doctor this a/m blood still looks good weight is down though do you have trouble keeping you weight up?? her/s is down to 121 she was about 170 when she had her surgery she was 135 last august what kinds of med/s are you tied to just curiuos she takes 7 in the a/m/ 5 at noon 6 at bed time she is dictateing this it/s hard for her to see would like to here from you hope things are good for you god bless

bkr31
Posts: 5
Joined: Mar 2008

I am 31 and had the whipple procedure done almost a year ago....

ruth511
Posts: 4
Joined: Apr 2008

had the whipple 5/11/05 going on 3 years now getting over the surgery was kinda tough be patient i know its hard if you contact me i will reply i/m ruth511 on this site hope to here from you soon

ruth511
Posts: 4
Joined: Apr 2008

my wife hwd her whipple on 05/11/05 please respond hope you are doing well maybe we can help each other

ajbf
Posts: 28
Joined: May 2008

my husband had a 2 inch neuroendocrine tumor in the pancreas tail, he had a distal pancreatectomy and a splenectomy , in nov 2007 ,

lucy11
Posts: 5
Joined: Jun 2008

hi, my husband age 55, has unoperable cancer of the pancreas. he completed a phase 2 clinical trial at the University of Michigan. he just began a second round of chemo this week her in PA where we live. i am seeking support from other women who have husband's with pancreatic cancer.

ajbf
Posts: 28
Joined: May 2008

hello, my husband (51) had a his tumor remove from the tail of his pancreas , they think it had spread to his live, the ct scan found a lesion on his liver, his neuro-endocrine tumor was very rare,he had chemo for the other rare cancer (varient hairy cell leukemia/lymphoma )u can look on the personal web page on this site, about how we found out,and more! i wish u and your husband the best,their is a spot were you can see other peoples treaments ,they find new treatments all the time. (look at patrick swayz the dirty dancing guy ) they say hes back making movies, i would like to know more about his treatment! we have 4 kids,do u have any kids, its so hard to be strong infront of them, i cry alone,i cry thinking about the day i took him into the er, when this all started,ive been married to my husband 22 years, ive been with him since i was 19. he has been hasentating on taking more test, i tell him we have to be proactive,he say there fishing,he dose want to know whats on his liver,or if it has spread,the doctor talked him into it,it took a month for him to agree..so we r waiting for the appt 4 the octreotide test, i will update on our web page when we have results, i go on-line almost every day, ajbf

lucy11
Posts: 5
Joined: Jun 2008

Dear ajbf, my heart goes out to you. We have a daughter age 14. my husband was diagnosed 2/14/08. He has adenocarcinoma of the head of the pancreas. We moved to Ann Arbor Michigan for 6 six to undergo a clinical trial. His is inoperable and will not respond to "normal" treatment. He underwent 5 weeks of 5x week, radiation with every monday chemo (gemcitabine).
we have been home a little over one month. He started back on chemo this past monday. he will not ever be able to have more radiation. I cry daily as well, and try so hard to keep my spirits up for our daughter. Do you find that you have to put on a happier strong appearance for people,even relatives. I feel like sometimes people forget the caregiver (wife) needs help too.

ajbf
Posts: 28
Joined: May 2008

hi, i left a reply on your discussion,

charmlise
Posts: 1
Joined: Jan 2008

hi, my husband is 58 with inoperable pancreatic cancer. After a year of treatment, his health has deteriorated and he is now off of treatment to give him a chance to recuperate. Each day is a gift, our future is today, that's all we have right now. I would really like to know how you are coping, because it feels like, although we are surrounded by people, that we are alone. Maybe chatting with someone in the same situation will help.

Gordon Hendrickson
Posts: 1
Joined: Sep 2008

I am 73 years old and was diagnosed with pancreatic can in June, 6 years ago. I was told that I was in stage 4, but today I am doing quite well. I have some problems with digestion and elination, but it's not too bad as I feel so fortunate. The New York Times wrote an article about me in July of 2007 and you can google me to read more.
I talk to people all over the country about living after being diagnosed with pancreatic cancer. In many ways, I am a MIRACLE and feel that I now have a purtpose in life, more than ever. You can write me directly at gordonhend@msn.com.
Believe in MIRACLES
Gordon

jimsbaby's picture
jimsbaby
Posts: 6
Joined: Aug 2007

Hi there, I thought I would reply and let you know I was here, and thank you for the emails. Sherry

jamie59
Posts: 3
Joined: Jan 2009

I have just been diagnosed with pancreatic cancer and have only heard negative things until I found this website. You're story has given me hope. My cancer right now is inoperable and I am going through treatment. Don't know what the outcome will be but I'm fighting everyday to thing and act positive. This cancer was just diagnosed so it's new to me. It has not spread to any other organs and i am healthy and young as the doctors put it so I have a chance to fight this. You're story inspired me.

LindaNuc
Posts: 9
Joined: Mar 2009

Hi Jamie59... My husband, age 52 was just diagnosed also. Adenocarcanoma panc head stage 3 with involvement of the SMA. In 4 days he starts chemo & radiation to shrink tumor away from the artery. Are you undergoing similar treatment? His therapy will continue 6 weeks, wait 4 more weeks then repeat CT scan to see it the treatments worked. If so he will have whipple -if not, unsure of what will be next. Don't really know anyone that's gone thru such a treatment. Can only hope & pray it works. Our prayers for your recovery also. We most definitely need to remain positive.

jcandler
Posts: 7
Joined: Jun 2009

Hi LindaNuc,

I was diagnosed with pancreatic cancer in Dec 2004. My tumor was also inoperable due to the fact that it was in my portal vein. I under went 6 weeks of radiation treatment along with oral chemo. After this treatment, my tumor had shrunk enough that I was able to be operated on. Just remember that all things are possible with God.

Good luck
Joe

Alyssa B
Posts: 3
Joined: Oct 2008

Hi. I have adenocarcinoma of the middle and head of the pancreas. Here is my story. I am so glad to have found this group!

was diagnosed with locally advanced pancreatic cancer on Dec. 27, 2007. It is non-resectable. I am a 38 year old mother of 7. I had 29 radiation treatments and weekly Gemzar treatments beginning in January and ending in March. I then had a month off of treatment. When I was first diagnosed, my tumor measured 6.0 x 5.5 cm and was wrapped around the hepatic artery and the portal vein. In March I had an MRI and my tumor had shrunk slightly. I went back on Gemzar in April and have been on a 3 weeks on, one week off schedule since then. I started having excruciating pain in June and was given another MRI. At that point my tumor measured 4.0 x 3.7 cm. It had continued to shrink. Doctors have no idea why. It seems I am the only one they have seen Gemzar do this with. Unfortunately, my tumor was still inoperable in June. I continued to have debillitating pain throughout June and was hospitalized at the beginning of July. I had bilateral pneumonia with my lungs 1/3 collapsed. I also had 6 ulcers and stones and sludge in my gall bladder. I was in the hospital a total of 8 days. Upon release I felt better for a few days and then my pain increased some more. I was finally given a celiac access nerve block -- I have been pain free since. In fact, I am completely off narcotics for the first time since my diagnosis. My white cell count has been too low for treatment three times in the last two months. I had my most recent MRI last week. My tumor now measures 3.1 x 2.3 cm! Still no medical explanation but who cares! I am beating this dreadful disease so far. My tumor is still inoperable but is shrinking. I feel blessed.

Alyssa B
Posts: 3
Joined: Oct 2008

I forgot to say that I am open to receiving email from anyone.

NETsurvivor's picture
NETsurvivor
Posts: 16
Joined: Oct 2008

Alyssa, Your story is simply amazing! It is so exciting to hear good news about one with such a difficult cancer. I pray that you will continue to improve, the tumors will shrink, and one day you will be healed - a medical miracle! I also have pancreatic cancer but it is a very rare form called neuroendocrine tumors or Islet cell carcinoma. My type is slower growing than adenocarcinoma. Nice to meet you! Feel free to message me if you want to stay in touch.

RIOSTAX26
Posts: 2
Joined: Oct 2008

My sister was diagnoised with endometiral cancer 1/08. The cancer has spread to her organs in her abdominal wall. She went through 2 surgeries to remove the uterus but they were unsuccesful. She completed her chemothearpy 7/08. She has seen 4 Oncologist since the last surgery and they give different opions. Could you please recommend a good diet for her. She is depressed and is leaning on my to help her. She does not have the strenght to do research at this time. I would appreciate any suggestions you may have even though you have a different type of cancer.

NETsurvivor's picture
NETsurvivor
Posts: 16
Joined: Oct 2008

Hi Riostax26,

You might want to check out the website http://www.nutritional-solutions.net/
Dr. Jeanne Wallace PHD,CNC . She specializes in cancer patients and provides a nutritional and supplement protocol specific to each individuals health situation. She does charge for her services. You can find out more by exploring her website. We hired her shortly after I was diagnosed. The amount of information she gave us was overwhelming at first but through the telephone conferences included in the fee, I am now on a diet that I believe has been helping me to fight my cancer. I also take supplements recommended by her. Each recommendation comes with an explanation of the science behind the food or supplement including notation of the studies that support it.

Lisak
Posts: 59
Joined: Mar 2009

From what I see is she cost a lot.. 350.00. does anyone know a good free nutritional guide?

SaschaSue
Posts: 3
Joined: Apr 2009

Hi

In August 2007, I was diagnosed with an adenocarcinoma of the body of the pancreas, Stage IIB. I was 41 and until a month before diagnosis, I had no symptoms at all. One week later I underwent a distal pancreatectomy & splenectomy. 4 weeks following that (I recovered from the operation well) I started a 6-month regime of Gemzar and Cisplatin weekly for 3 weeks followed by a week off. I was lucky to have little or no side-effects from the chemotherapy. I then had a month's break and started a chemoradiotherapy regime for 2 months with 5-FU and daily radiotherapy. Since my surgery my CT scans have shown "no evidence of disease" and my CA 19-9 marker tests have all been normal.

I am now 20 months since diagnosis. I feel great, am fit and well and back to work full time. I have no side-effects from treatment except the possibility that I am now infertile as menopausal symptoms have kicked in ( but I am blessed with 2 kids already), and blood sugars that are a little raised above normal. I can eat and drink normally (although I don't eat meat through personal choice, and have cut out all refined sugars because of the raised blood glucose levels). The only outward sign that I had anything serious at all is the fact that my weight has dropped from a UK size 12-14 (US size 8-10) to a UK size 8 (US size 4). This has now stabilised now all treatment has stopped.

I now have a wonderful collection of surgeons, oncologists and an endocrinologist who have worked hard to see me through this far. On an emotional level, my family, in particular my husband, has been thoroughly supportive and loving and my friends an inspiration.

My attitude throughout has been entirely positive and while my clinicians don't put a time-line on any prognosis, then I won't either!!

Good luck to all of you who, like me, have been unfortunate enough to be struck with pancreatic cancer, and keep fighting!

SaschaSue

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