Feb 07, 2008 - 3:01 am
I'm a two-time leukemia survivor, and while I'm almost 16 years post-BMT, I've got a few late effects (who doesn't?) from chemo (twice) and TBI (the second time). I'm now a 23-year-old grad student.
My problem is this: after treatment, I've found that I have trouble focusing and concentrating, and I fidget to a fair degree. While I could cope with it for years and got good grades all the way along, I've been noticing the issues have gotten more noticeable in the past few years. My coping strategies aren't working as well, so I spend a LOT of time on readings and papers (since I'm studying English, this is pretty much all I do) and am usually up very late struggling to get through. But no one takes my concerns seriously. As long as I get good grades, no one seems to worry or care.
Have any other long-term survivors noticed this problem? I know breast cancer survivors report "chemo brain," but to what degree is this across the cancer spectrum? I guess I'm asking for advice on what I should do next. It's hard to ask for help on this sort of thing, because my treatment was a ways back, and my current primary doc really isn't up on long-term guidelines. Thanks!