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Stage 4 Lung Cancer

Lisaann63
Posts: 12
Joined: Feb 2008

I would love to hear from someone who has been diagnosed with stage 4 non small cell cancer. My husband was diagnosed in Nov. He seems to be doing well, but I just really don't know what to expect..it would be nice to hear of other experiences....thanks!

kimbil
Posts: 12
Joined: Jan 2008

My mother was diagnosed with the same as your husband in December. She has been receiving radiation for about a month now. She finished it on her brain and is getting it on her lung. She has had no side effects (only loss of hair) and seems to be responding well so far. She will be starting chemo soon. I will let you know how she makes out with the chemo. I don't know what to expect either, but will keep you informed on her progress. Darlene

Lisaann63
Posts: 12
Joined: Feb 2008

Thank you Darlene, that would be great. My husband did start chemo, he's had 2 cycles, he goes every 3 weeks and gets an IV of carboplatin and taxol. He did very well the first time around, the second time so far seems a little rougher for him, he's very very tired. He drinks Ensure, that's been helping in keeping his weight up, keep that in mind. Please let me know how things are going, would love to stay in touch.
Lisa

kimbil
Posts: 12
Joined: Jan 2008

Hi Lisa,

Glad to hear that your husband is doing well with the chemo. I don't understand why the doctors have not started my Mom on chemo yet. They don't seem to tell us much only what we need to know. I would like to know if the radiation has shrunk any of the tumors or not. My mother is getting the same chemo drugs as your husband when she starts it. How old is your husband? My mother is 69 and had no health problems until diagnosed with the cancer. I think that she will do okay since she has no other preexisting conditions to deal with. I will keep in touch. My thoughts and prayers will be with you and your husband.

Darlene

Lisaann63
Posts: 12
Joined: Feb 2008

Hi Darlene,
I feel the same way, the doctors are not telling me much at all, we went to an ear nose and throat person last week because my husband's vocal cord on one side is paralyzed, and now he wants a CT done on his neck, but he says it's a precaution, now I'm freaking out about that because I feel like maybe the other dr's missed something. I don't know. And I don't know why there is such a variation with treatment, they gave my husband 10 radiation treatments to the brain and said that would probably be enough..well, we go friday to the radiation oncologist, I am ready to drill him with a million questions, there is so much information out there and I just get so confused. They may have your mom wait to start chemo just to be sure she is strong enough after the radiation, they were going to wait with myhusband but he insisted they start because he felt fine. But this second treatment has been a bit harder on him than the first. I hope he can get thru the 6 total treatments. I guess the more the better, in the long run. Please let me know how things are going with you, and I will say a prayer for your mom, it really is nice to speak with other people in this situation and be positive..we'll get thru this! Oh--I didn't answer your question, my husband is 51. One dr said his goal would be to shrink the tumor enough to remove it surgically, but the other drs haven't said much about that. I think it takes about a month for them to know if the radiation worked or not, that's why we are going on Friday to the radiation oncologist. That may be why they haven't done another CT yet either. It just seems everyone is different-patient and doctor! But, the medical oncologist said she saw a slight improvement and that was the day after he finished radiation. So one can only hope for the best..too much from all different directions!!

kimbil
Posts: 12
Joined: Jan 2008

Lisa,

My mother had 20 radiation to the brain and is having 30 to the lung. The tumor was pushing against her vena cava vein about two weeks ago and she swelled up like a balloon. Since they started the radiation to the lung all the swelling has disappeared. Every Tuesday we meet with the radiation doctor, he said that the radiation is responding to the cancer and that is why the swelling went away. We meet with her oncologist Friday to find out when she plans on starting the chemo. I hear bad things about chemo. I guess all I can do is wait and see. Everyone responds differently to the treatments as you stated. I have met some very nice people at the hospital in similar situations as my mother. I feel so bad for them. I don't know what to say. I guess I can only give them encouraging words and my prayers.

I was told by the doctors that they will not do anymore tests on my mother until she completes all her treatments (radiation and chemo). Probably, because of the insurance companies, not sure though. Also, they said that her tumor could not be removed. I have heard that people get the tumor removed if they can shrink it enough. Your husband might have become paralyzed from the radiation. I have heard all kinds of things radiation can do to a person.

Good luck with the doctor and let me know what happens. I will keep you updated too.

Darlene

Lisaann63
Posts: 12
Joined: Feb 2008

Hi Darlene,
We saw the medical oncologist today to discuss the results of the cat scan. After 2 chemo treatments and 3 bracheatherapy treatments(radiation in the airway), the tumor has shrunk a little. The dr. was pleased to see that. But she said they probably won't do radiation to the lung. She said they can only do that once, so they have to choose the time carefully. I thought that was rather strange. My husband goes for an MRI for the brain tomorrow, he received 10 focal point radiation treatments to that tumor back in Dec and early January. Then we'll see the radiation oncologist next week to discuss those results...So much..
In the meantime, today was chemo treatment 3-my husband has been doing well..she wants to do a total of 6 and then give him a break..
How is your mom doing? Has she started chemo yet? Please let me know how things are going and how you are doing.
Take care
Lisa

kimbil
Posts: 12
Joined: Jan 2008

Hi Lisa,

My mother is doing okay with radiation. She has 7 left and done finally. She was supposed to start chemo tomorrow (2/27) but the doctor cancelled it until she completes the radiation. I have not been online because my beloved husband passed away on 2/16/08. He was laid to rest last Friday. He suffered a heart attack in his sleep. Our 11 year old daughter found him in bed not breathing. I am heartbroken and feel so alone right now. My husband and I were talking the week before his death about what we were going to do if anything happened to my mother. Never in a million years did I expect this to happen to him. He was only 56 and too young to die. I have to find the strength to go on for our daughter. I will keep you posted on my Mom's progress.

Darlene

KHTM
Posts: 6
Joined: Jun 2007

Darlene- I am so sorry to hear of your loss. You and your family are in my thoughts and prayers. KHTM

kimbil
Posts: 12
Joined: Jan 2008

Thank you for your thoughts and prayers KHTM. I hope you are doing well with your treatments. My mother starts chemo on 3/19 and radiation finally ends next week. My heart goes out to you, my mother, and everyone else who is facing this battle with cancer. My friend from work called me this morning and her husband had to go to the emergency room. He had a set back from his treatments. He was diagnosed 4 years ago with colon cancer and it spread to his liver and lungs. I have met some very nice people at the cancer center. I am astonished at how many young people have cancer. Anyone I guess can get it. My nephew has lymphoma and was diagnosed at 8 and has been living with it for 6 years also. I have to go on for my daughter now that my husband is no longer here to help and support me.

Thanks for listening,
Darlene

Lisaann63
Posts: 12
Joined: Feb 2008

Darlene,
I am so so very sorry to hear of your loss.. My prayers are with you and your family. I wanted to share some good news, my husband had an MRI to the brain and the tumor has shrunk by 80%-he had 10 focal point radiation treatments in late Dec/early January. The doctor wants to do some stereotactic radiosurgery on it to be sure he can kill it completely. He seems to be very confident that he can get rid of that, so we'll see.
In the meantime, I will pray for you and for your mother and hope that she does as well with her treatments as my husband has done with his. I am just amazed at what medical technology can do.
You take care and please continue to let me know how you and your daughter and your mom are doing.
God Bless
Lisa

kimbil
Posts: 12
Joined: Jan 2008

Lisa,

Thank you for your thoughts and prayers. I can use many right now. I am happy to hear that your husband's progress is positive. What is stereostatic radiosurgury? My mother has tumors in her brain also. She had about 15 radiation treatments to the brain prior to the lung ones. She starts chemo on 3/11 for 4 hours and again on 3/21 for two hours finally. I don't know why the doctors are waiting so long. They have been postponing the chemo now for 2 or 3 weeks. They never tell us anything either. They have not done any scans/MRIs to even see if the radiation is working. I will let you know how she makes out with the chemo.

My daughter and I are doing as well as expected with the loss of our beloved husband/father.

God Bless you and your family also.

Darlene

Lisaann63
Posts: 12
Joined: Feb 2008

The stereotactic radiosurgery is when they take the radiation and they hit the tumor with it and only the tumor. It is a really fine laser and I think they do it under a CT Scan and they watch the tumor as they do this because the tumor moves and they can position the radiation to hit only the tumor, so not any of the good tissue will get touched and then he can keep having the radiation..the dr is so confident that he will get rid of this tumor, he makes me nervous because he makes it sound so simple, but he said he's done it enough times to see the outcome he said my husband is on course just as he expected..so we'll see.
Sometimes they wait to do chemo to make sure the patient is feeling strong enough.
I hope that you and your daughter are doing well, this month will be one year since I lost my dad..he went in the hospital for heart surgery and never came home...it was a long horrible death for him. Sometimes I look at my kids and could cry, because they may grow up without their dad...but I try not to think about that.
Have you been to any support groups? It may help you and your daughter to be with other people who have suffered the same loss...it's comforting to know there are others in your shoes..
Please let me know how your mom makes out with the chemo...tell her to drink plenty of fluid..the ensure has been a lifesaver for my husband, he's always been a terrible eater to begin with..so at least this is giving him some nutrition and calories.
Hang in there, take care of yourself and I'm here if you need to talk!!
Lisa

kimbil
Posts: 12
Joined: Jan 2008

Sorry to hear about the loss of your Dad last year. My husband and I were discussing the week before his passing about what we were going to do about my mother's care. I never in a million years thought that he would pass before her. I have been out of work for three weeks trying to take care of my daughter, mother, and personal matters. I am going back to work this week to keep my mind occupied. I signed my daughter up for softball to keep her busy which starts soon. I will let you know this week how my mother makes out with chemo. She lost about five pounds and the doctor wants her to start eating ice cream, ensure, and drink lots of fluid. Her throat has been bothering her since completing radiation yesterday. I have not joined any support groups but I might soon. I hope you, your husband, and children are doing well too. Take care also. I will definitely keep in touch.

pherbolario
Posts: 3
Joined: Nov 2008

Hi,Im new with this. My dad was diagnosed stage 3b with lung cancer early october. Since operation is not an option, the dr adviced for chemo. He had his first last week. Today, we were asked to go back for a check-up. Since I was not around, my mom went with my dad. A new treatment was administered...which was not explained to them. Do you know how the normal procedure is?

blondie1
Posts: 4
Joined: Oct 2008

Hi. I was diagnosed with stage 4 metastic lung cancer (lymph node involvement) in June of 2006. Mine was also inoperable. When treated with chemo I went in every three weeks for an IV treatment, with blood work done before each treatment. This went on for 8 months. It's possible the treatment left his blood in a bad way and he was given treatments to counter the effects of the chemo. It's possible he was treated with radiation therapy. You and your Mom need to be very proactive by asking many questions and getting as much information as possible about treatments and side effects. Take a pad of paper with you and write down the answers. They should have given you a bunch of brochures describing treatments and side effects. If not I would certainly speak up and possibly look for another doctor. They should be explaining everything they do. Also ask about his being treated with Avastin. This drug actually attaches to the cancer cells and starves the cells by not letting them get any blood. They shrivel up and die. I wish your Dad much luck. Two and a half years later they find no sign of cancer in my body. There is always the possibility that one little cell is hiding and will pop up later, but for now all is good. The treatment is like hell, and sometimes he may wish he were already dead. But there can be a rainbow at the end of the storm. And I guess that's what it's all about!!

123red
Posts: 3
Joined: Oct 2009

hi my wife of 45 years, the LOVE of my life started chemo yesterday 10/16/09 for stage 4 metastic cancer.she is getting taxol/carboplatin. all of this started in july . she had an accident and in the ER they found a high white count. this lead to tests that showed three enlarged lymph nodes. they are saying that it is probily 90 % lung cancer 10 % overian. no matter questions I ask ,I still dont understand this. my wife was a very healthy 65 never on meds works hard and always has a great outlook. Im just plain scared.
thanks for your ear - - - RED

amweamwe
Posts: 1
Joined: Nov 2010

Hi Blondie1

My boyfreind has stage IV lung cancer with no mets to the brain on scans in the beginning. It was isolated to the lung. He is being treated with a three combination of Caboplatin, Alimta and Avastin. He has had three treatments so far and it has surely taken it's toll on him. Had PET scan last week and Dr. is going to discuss results this week coming up. I am so greatful I read your reply to newbie because honestly I am freaking out right now. I know that treatment is so more advanced than it use to be and they are making great strides. Thanks again for your encouraging words to all of us.

callozhome
Posts: 3
Joined: Jan 2012

Dear amweanwe:
My husband was diagnosed with Stage IV NSCL in August 2011 and has nearly completed his second round of chemo. The first was Carboplatin & Alimta and the CT scan showed some improvement. The current treatment is the same as your boyfriend so I hope his scan has an optimistic outcome. Please post when you find out.
Fatigue and lack of appetite are the most obvious symptoms, now that the pain is under control. Pain symptoms first presented in January 2011 and the MD originally had him diagnosed with pancreatitis, then pancreatic cancer, finally pathology narrowed it down to lung cancer. Surgery is not an option and radiation has not been suggested either.
Good luck with the results.

ellengoo
Posts: 1
Joined: Oct 2008

hi Lisa my husband was diagnosed with lung and Brain cancer in June of 08. We did 11 treatments of radiation to the brain and just finished 4 treatments of chemo with carboplatin and taxol. We are also using an alternative doctor in Manhattan who is with sloan. We did an Mri and pet scan 2 weeks ago. The doctors were pleased that nothing had spread. He didn't have any shrinkage. Your husbands results are wonderful. I will talk to my doctor about the sterotatic radioation surgery. Its really is nice to have people to chat with. this is my first time using a chat room. Thanks for the information. If any one wants to chat with me I would love to here from you ellen

kim89
Posts: 2
Joined: Mar 2010

My boyfriend is only 21 n he has stage 4 lung cancer..idk wat to do.. we were supposed to get married and have kids n grow old together..wat do I do :(

KHTM
Posts: 6
Joined: Jun 2007

Hi Lisa- I too was diagnosed with stage 4 nsclc (adenocarcinoma). I was diagnosed Feb 2007, actually Saturday is my 1 year anniversary.I went in to have what we thought was scar tissue removed and found out I had cancer. I had also had two prior thorocentesis done but they weren't ever tested for cancer b/c "I was too young". I am 30 now but was 29 at the time. I had 1/2 of my lung removed, and a pericardial window put in b/c I had fluid build up around my heart.I had 6 treatments of carbo/taxol and avastin. I just seemed to feel bad about the 3rd or 4th day after treatment. Tell your husband to drink plenty of liquids before, during , and after treatments. That really helped me. I didn't really have a lot of problems other than a little fatigue and some achiness. I showed great improvement while on that combo. I was able to go a few months without any treament before I had slight progression. I am now on Tarceva with stable results. I actually have scans done on the 19th :( I'm always a nervous reck a couple weeks before a scan. I have not had to have radiation so far so I can not be helpful there. I will keep you and your husband in my prayers. One thing I've been told all along is that a positive attitude is very important. It's hard to have when you are going through something like this but it certainly helps. KHTM

Lisaann63
Posts: 12
Joined: Feb 2008

Hi--wow--you do seem way to young to be going thru this!! I feel for you and keep you in my prayers. You sound like a very positive person(exactly what I need!!) and I'm glad to hear things are going well. We had a CT scan today of the chest area to see if the chemo is working, havent' heard anything yet and then next week we have an MRI. Is cancer in your family? Were you a smoker? My husband seems to be doing OK with the chemo--thanks for the advice about the liquids, I think that definitely does help. He's had 2 cycles, and goes for the 3rd one next week. I am just as anxious as you are about the scans...
My husband did well with the radiation, they only focused on the tumor, didn't touch any good cells, so he had no side effects.
I want to wish you all the best and please keep me posted on how you are doing!! Thank you for writing!! Lisa

KHTM
Posts: 6
Joined: Jun 2007

Hello- Glad to hear your husband is doing well with his treatments. I know sometimes they can be tough. I am still mentally trying to prepare myself for my scans on Tuesday:( if thats even possible. To answer your questions...Yes cancer does run in my family. My grandfather passed 4 years ago from lung cancer, but he had a totally different type. His was small cell, and very aggressive. Mine is non-small cell, a somewhat slow growing. I was never a smoker. My age and the fact that I never smoked I think had a lot to do with why I was dx so late. My surgeon said this was just bad luck, and I would say that it is. At first you ask yourself "why me" but then after feeling sorry for yourself you can think "why NOT me". It can happen to anyone no matter how old, healthy, etc,you are. I certainly have good and bad days, I just try to enjoy them the best that I can. I have 2 children (11&8)that give me the strength everyday to keep fighting. I also have a wonderful husband,family,and friends that refuse for me to give up. This website has been very helpful as well. Did you know about onctalk.com? That website is very helpful too. Dr.West is wonderful at answering any questions you may have, as well as other peoples stories.

I pray for great results for your husband! Tell him to hang in there, I wish you all the best! KHTM

Lisaann63
Posts: 12
Joined: Feb 2008

Hi KHTM--
How are you? I believe you mentioned that you had some scans scheduled last week. How did they go? I can only hope that all is well...I can't imagine how difficult it is to wonder what the results will be.
My husband's cat scan came back with some good news, the tumor in his lung shrunk a little, the dr seemed to be pleased with that since he's only had 2 chemo treatments. He had treatment number 3 today, he's still doing OK with that.
I guess people just assume that the only people who would get lung cancer are people who smoke. A woman that I work with found out a couple of weeks ago that a friend of hers was diagnosed with lung cancer, was never a smoker. I guess it's the same as any other cancer, it will hit anyone at anytime.
Please let me know how your scans are.. I hope they all came out well and you are doing well!! I think my husband looks at our kids too and they are the ones that keep him fighting..they are 14 and 11.
Anyway, look forward to hearing from you soon!
Best,
Lisa

KHTM
Posts: 6
Joined: Jun 2007

Hi Lisa- Glad to hear that your husbands scans went well. My scans were also good. I got the results yesterday and I can relax again for the next 3 months until the next scans. I had 3 spots in my liver, which were completely gone!! The other spots in my left lung had gotten somewhat smaller. I'm okay with stable for sure. My head and bone scan were still clear.:) How is your husband doing with treament? Tell him to hang in there. I didn't have great response after my first 3 treatments, but had tremendous response after 6 so, it's worth it. Have you talked to his Dr. about Tarceva?
Anyway, Thank you for checking on me. Keep us all updated as well.We are certainly praying for you. KHTM

Lisaann63
Posts: 12
Joined: Feb 2008

Hi KHTM--
We saw the radiation oncologist today-the radiation that was done to his brain gave great results, the tumor in his brain has shrunk by 80%-dr wants to do more(sterotactic radiosurgery) to make sure he has completely killed the tumor.
Glad to hear all is well with you!! You sound very upbeat and I know that's important. You are in our thoughts and prayers.
What is Tarceva? No one has mentioned that at all. He had his 3rd chemo and then he'll have another ct scan after the 4th treatment. He is doing a good job of hangin' in there!
Let me know how you are doing!
Lisa

KHTM
Posts: 6
Joined: Jun 2007

Hi Lisa-

Sorry, to just get back with you. I haven't been on in awhile. I am soooo happy to hear about the great news for your husband! I'm sure it's the first of many more good reports. :)

Tarceva is a fairly new Rx for nsclc. It is usually used after your first line of treatment has failed. In which my case it did. I take it everday and I feel it has been a miracle in a bottle. The only bad side effects that I have experienced is a rash on my face, neck, and scalp. I've also had very dry skin, but nothing like the carbo/taxol I was on before. I have been on it since August with stable results, and hope to be on it for a long time. You can google Tarceva, and read a little more about it, but it sounds like your husband is doing great with his current treatment.:)I'm so happy for you and will continue to pray for you!!

marybear's picture
marybear
Posts: 66
Joined: Jul 2008

hi khtm i am mary a cargiver to husband diagnosed in june 08 stage 4 no surgery nsclc his tumor in right lung spread to lymph nodes and left lung now did cat scan on sept 23, started tarceva on sept 20 he is now getting a red nose with litle pimples on it dont know if that is ar rash or not will see oncologist on friday dont know if i should renew prescription very costly $4500.00 per 30 days in donut whole know asked oncologist if you dont get rash is it working she said different studies proved differnt results he is terminal getting weaker glad the tarceva worked for you how long you been on it from august last year good for you he did carbo/taxol one treatment on august 18 one week later ended up in hospital with 103 fever and low white count of 0.44 almost died they gave him 4 shots in 4 days of nuevesta to bring his white count up but now he cant walk i think he got neurapthy from the chemo that is permanent cant walk no more his legs and feet feel really heavy he is 75 yrs old will try tarceva for one more month hoping to do catscan in end of nov to see if it helped if not will stop it thank you for you posts please keep in touch Mary

MadelynJoe's picture
MadelynJoe
Posts: 96
Joined: Sep 2003

Dear Mary Bear:

Regarding the cost of Tarceva for your husband, many drug companies will supply chemo drugs to patients who cannot afford the cost of drugs. Check with your husband's oncologist or the social worker in the oncologist's office for help in finding out about these programs.

Best regards,

Madelyn

junes daughter
Posts: 2
Joined: Oct 2008

Hi Lisa-
My mother has has Stage IV Colon Cancer that has spread to her lungs. She is currently finishing up her 2nd round of chemotherapy, and is thinking about radiosurgery to eliminate the masses in her lungs (that although decreased in size from chemo, are still present).

Can you tell me a little more about where the radiosurgery was performed? We have contacts at Sloan Kettering, MD Anderson and the Methodist Hospital (Houston), however as we have learned moving through this process, it is better to hear from real people and their experiences with their doctors and hospital staff.

Much Thanks.

teetimegranny
Posts: 1
Joined: Jun 2008

Hi Lisaann63
I currently have stage 4 non small cell lung cancer. My orig. treatment was Carboplatin and Taxol combo but after the 5th treatment they had to stop , it caused too many side effects. The worse were the sores. But all went away after they stopped. for awhile. Then the drs tried a couple more chemos but the cancer has not responded to those. In January 2010 I was put back on Taxol. It's rough but I seem to be doing fine on it. I still get the sores, especially in my nose and I am sick for a couple days but appear to be doing ok. At last CT scan my tumors were not growing anymore. I will be having another ct scan mid May to see whats going on again. I am hopeful for a remission . I am a 2x breast cancer survivor and in April 2008 they discovered lung cancer. 3 different primary tumors in my life time, who would have thought. I have survived with cancer most of my life
. My first Dx.came in 1979, then 1999 and then in 2008. I am still here, kicking up my heels, loving my family, esp. my hubby who is my "rock". This year we want to buy a 5th wheel and see a little of the USA. You hang in there, be strong, live life to the fullest with your Husband . The support I have from my family and friends is the most wonderful gift of all. I can't do the relays for life anymore but my Sister and Niece continue the effort. I will keep you and your husband in my prayers. God Bless

jpg2010
Posts: 1
Joined: May 2010

HI Teetimegranny,I too have just been diagnosed in April with stage four nsclc.Iit has masticized to the brain,right leg ,spine and several lymph nodes.I am to have 10 treatments of radiation starting this wednesday.Praying all goes well.I have read such encouraging stories here.The waiting to get approvals from the insurance companies is the worst.Since it was fisrt discovered from a yearly exam and very little symptoms they were slow to approve tests.WE are keeping a positive attitude although hard.We have a supportive family,friends and church family.So anything you can tell us would be so appreciated.Blessings to you

Lisaann63
Posts: 12
Joined: Feb 2008

Hi Darlene,
We had a cat scan done today for the chest but don't have results back yet. And we have an MRI scan scheduled for next week. HOw is your mom doing with the radiation? Do you know when she will be starting chemo and do you know what kind?
HOpe alll is well! Lisa

kimbil
Posts: 12
Joined: Jan 2008

Hi Lisa,

I hope you had a nice Valentine's Day. My mother is doing fine with the radiation. She has about two more weeks. She starts chemo on the 20th. I believe she is getting Taxol and Carboplatin. The doctor is starting her on a low dose for three weeks. Then she will go every three weeks thereafter for six treatments. I can't wait until radiation is over because I will only have to go to the hospital every three weeks, instead of everyday.
Let me know how your husband makes out with his scans.

Darlene

kimbil
Posts: 12
Joined: Jan 2008

Hi Lisa,

My mother started chemo Tuesday. Believe it or not but she has not been nauseous or had any bad side effects yet, just some bone pain. She is scheduled for her second round on April 8th. The doctors still have not done any scans though to see if it is working. I will let you know the results. How is your husband doing? Let me know.

Have a nice Easter!
Darlene

Plymouthean's picture
Plymouthean
Posts: 264
Joined: Jan 2004

Hi Lisa.
I'm a seven year survivor of NSCLC, 3B. My personal web page is found here, under "Grateful Survivor".
My tumor was approximately 3.5 cm x 4.5 cm x 7 cm, and located in the upper lobe of my right lung. I was diagnosed in May of '01, at age 67, as incurable/inoperable. I received three 3-day chemo treatments of Cisplatin and Etopiside, at three week intervals. At the same time, I received 55 consecutive daily radiation treatments, five days a week, with weekends off.
By October, '01, my tumor had been shrunk by 75%, and it was removed surgically. Post-op, I received ten more radiation treatments, and twelve weekly chemo treatments of Carboplatin and Taxol.
By April, '02 I was able to travel to Las Vegas (I live in MA) for some well-earned partying!
I've been cancer free since. My whole experience lasted ten months. At the time, it seemed like a hundred years! My point is that cancer can be beaten,- not easily, but it's possible.
The pre-op chemo treatments were very aggressive, and were harder to take as time passed. The radiation did some (mostly) temporary damage, but I'm here today, - alive and kicking!
You and your husband must keep a positive attitude, and do what it takes.
As a caregiver, you must take care of yourself, also. Try to arrange for someone to give you a break, now and then.
If I can be of help, e-mail me through this website.
My prayers and best wishes to you and your husband.
Ernie

kimbil
Posts: 12
Joined: Jan 2008

Hi Ernie,

I am glad to hear that you are cancer free. My mother has a tumor in her upper right lobe about the same size as you had. The doctors told her that it was incurable/inoperable too. She will be starting chemo (Carboplatin and Taxol) soon. Her cancer has spread to the brain and adrenal glands. She has had 20 radiation treatments on her brain and 30 will be on her lung which she has completed about 12 right now. She is 69 and was healthy up until her diagnosis. She seems to be responding well to the radiation with no side effects, except loss of hair. I am keeping a positive attitude and hope and pray that she can beat it too. My thoughts and prayers are with you too.

Thanks,
Darlene

P.S. I live in MA too!

chloes
Posts: 1
Joined: Oct 2009

hi my dad has hust been dianoised with nsclc stage 3b and my whole world was shattered untill i read your story , im new to this and havnt got a clue what to say or do i was just wondering if you could tell me a little about chemo treatment has is starting a clinical trial next week with carboplatine and gemcitabin and he is so worried and has been very tearfull and i want to share your thoughts and storie to him to give him some hope , kind regards michelle

dscott
Posts: 35
Joined: Feb 2008

Hi, My boyfriend has stage 4 lung. He was diagnosed in August due to fluid in his heart. He also has it thru the bone. He just had his 6th chemo. He also had 10 radiation treatments on his neck. This has weakened him greatly due to the throat burning. He goes for scans next week but I have great faith that things will work out. Good Luck with your husband and keep up with the updates...Debbie

cmw74
Posts: 1
Joined: Mar 2008

hi my husband also has stage 4 non small cell lung cancer he just had his first round of chemo. he takes carboplatin, and vinblastine we get the carb thru iv bag and the vin through a push. he is doing well tired but he still has his hair lol it is in his lung, chest neck and stomach lymp. the chemo seemed to shrink the one in his neck it stuck out pretty big, now it is a lot smaller thats good, we go to the dr on wed the 19 to find out about the next round of chemo.

Diane03
Posts: 42
Joined: Jun 2008

I was diagnosied with stage 4 this past May. I just completed 2 weeks of radiation and my first chemo. The radiation had to be done to try and give me some relief because the breathing was difficult. The tumor is wrapped around my pulmonary artery. I now have some relief and will continue on the same course of chemo as your husband. Doing both in conjunction with eachother really knocks you out. My esophogus is burned so it's difficult to swallow which makes it more difficult to keep eating nutrients.
I'm glad the radiation is over for now. I'm pulling for your husband and hope he bounces back from the chemo before his next bout!

marybear's picture
marybear
Posts: 66
Joined: Jul 2008

we have prescpiton coverage for this drug cost me $25.oo per month last month cost me $400.oo now it is covered we will start the 3 month on november 21 will due cat scan of chest hopefully end of month just did cat scan of brain nothing there thank god but he is having trouble breathing so i suspect the lunds are getting worse thank you for your response please keep in contact god bless Mary

real
Posts: 1
Joined: Mar 2009

Hello Lisaann 63
My husband was diagnosed with stage 4 small cell cancer in May of 08. I saw you post and wanted to know how your husband is doing? I too would like to know what to expect. He is doing well now. He had radiation on his brain and it showed it was all gone, but then last month another spot showed up on his last MRI. He had chemo and on his last visit in Feb. the doctor said it had not grown or gone away. We are waiting 2 months and do another MRI and CT Scan. He doesn't look sick just tired.
Any words you can give me will be greatly appreciated.

Thanks,
REAL

1976hdn
Posts: 4
Joined: Sep 2010

Hello, my father was diagnosed with stage 4 small cell lung cancer, he is 62. He has not smoked for 6 years. Surgery is not an option, he has a large tumor on his lungs with spots all over his chest and a small spot on his brain. He starts chemo on Monday to hopefully shrink that rotton stuff! Anyone out there been through anything similar to this that has any kind words or advice to share???

Thanks :)

noodle97
Posts: 2
Joined: Apr 2010

Diki, i am sorry to hear about your husband, i too was told in dec 09 that i had stage 4 lung cancer adencarcinoma, was always cosidered as a fairly healthy person. though im only 41 years old my doctor is being aggressive in my treatment, im only doing chemo but so far its working. im taking alimta, carboplatin, and just added avastin. i hope and pray that your husbands stage is not a 4. my thoughts and prayers are with you and your husband.

grandpa
Posts: 1
Joined: Mar 2010

I really don't know why that I came onto to this site. After researching lung cancer treatments and the effects of those treatments to my body, I have elected to not take any treatments. I did consult with 4 different doctors (no onocoligists) about the benefits of taking radiation and or chemo. None wanted to tell me to not take treatments at first. I then asked them what they would advise if it were a loved one, they're consensus was that the quality of remaining life would be most important. It is not easy to make a decision to let a cancer take its own course with your body. I struggle every day to be as positive as I can be. I am very fortunate to have the support of my daughter and son-in-law. I am not trying to influence any one to not take treatments, but I would like to hear from anyone else who may have chosen the same path that I have chosen.

I need all of your prayers

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