Jan 29, 2008 - 2:19 pm
I finished my 6 Chemo, 36 radiation treatments for Neck Cancer 10 months ago. They could not find the Primary in my neck so they did the whole neck area both sides. the last 12 Radiation treatments where twice a day.
I'm still stuck on the Feeder overnight from 8 pm - 6 am and now forcing myself to drink one Ensure during the day.
My problem is Four fold:
Taste: I still have very little taste, and when I can taste something, it tastes different, not good.
Dry mouth: Food sticks to my mouth, my tongue looks like something from a horror movie from sticking to my teeth, I asked all of my specialist at Lahey and not one could give me medicine for this, it's hard to believe in this day and age. The over the counter Dry mouth items, just don't work for me.
Difficulty swallowing: Things do get caught when i try to swallow, it's such a kick in the Butt to get it out, I have cleared all my Food Modification Labs except for Pills.
Mental: I had a specialist tell me my Throat is now healed, he thought i was reluctant to get off of the feeder, that got me going, I need to nip this and get past the fear. he did state he never had items caught somewhere down his throat and doesn't know what it's like but I have to move on.
I guess it feels easier to just lie down and be fed overnight.
I wish someone wrote a book named "Learning how to eat again for Dummies" and it would state Do this first for one day/week, then do this second etc. It would have all the easy recipes etc.
I miss Big Mac's (Just One), Super Steakbombs, Outback Shrimp on the Barbie, Veal Pica etc. The Social part of eating out with your friends and family, having a beer etc.
I miss my old life and need/want to move forward.
Any ideas would be greatly appreciated