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Lung Cancer Stage 3B

boffst
Posts: 3
Joined: Jan 2008

My father was recently diagnosed with stage 3 b lung cancer that is inoperable. He started chemo yesterday (Cisplatin/Etoposide chemo). He is so weak and in a lot of pain and won't eat anything. I am so scared. Is there anyone who has had stage 3b and bounced back where there has been a quality of life. I just don't see a light at the end of the tunnel.

cebligh
Posts: 1
Joined: Apr 2010

Hi I live in Nebraska but went to MD Anderson last week for a second opinion. They have a whole different appoach to treatment. I am thinking about going to MD Anderson for treatment thinking that they have a lot more experience with the radiation than my current cancer center has. Would you recommend going to MD Anderson. Did you think they made a difference?
Thank you.
Carol

gailjames
Posts: 1
Joined: Dec 2009

Hello and best wishes to all on this board,

My mother (68yrs) was diagnosed in June 09 with Stage 3B, non-small cell lung cancer. She had an inoperable tumor 8 cm size in her upper left lobe. She was a smoker of 50 years. After a long summer of IMRT radiation treatments (10 minutes/day 5 days/week for 3 months and one Chemo treatment per week) we are happy to say her tumor has shrunk over 50% and has not spread. We are doing this through MGH in Boston—an amazing group there.
She still needs 2 more chemo treatments which will be 4 hrs each coming up next week.

There were times when i thought she might not muster up the strength to get through the last week of radiation but amazingly she got through it then she got worse. We put her on oxygen for a month which made a huge difference. You need the oxygen to help speed up the healing process.

At the time I am writing this I am thrilled to say my mom is doing great! You'd never know what she went through. She looks better than ever. So hang in there and fight the fight.

love and light to all.

Laura88
Posts: 47
Joined: Oct 2009

Hi -- I am stage 3B, inoperable. I had 6 cycles of Cisplatin/Alimta chemo and eight weeks of radiation. Scans last week revealed a much, much smaller tumor and lymph nodes having a great response. I am once again going to meet with the surgeon as they think I may be a surgical candidate. As far as weight, I was between 90 and 95 lbs. all during treatment. My last chemo was 10/5 and today I weighed 106 lbs. I am feeling better than I ever have (honest!!) and I am so very hopeful for the future. I feel as if I've learned all my lessons as far as what is important and what just is not (like my thinning hair -- I worried so much about it and now I realize it is nothing worth even thinking about). I am happy, healthy and looking so forward to wonderful holidays with my family and friends.

I think one of the most important things you can do for your dad is just be there for him. I believe being a caretaker is almost harder than being the patient -- I admire your strength, and your dad is very lucky to have you. I can tell you I would not have done so well were it not for my family.

Please check in and let us know how he is doing, and you also. We are here for you to lean on. Laura

indydorsey13
Posts: 38
Joined: Sep 2009

Thanks for your encouragement ! My husband started treatment this week for Stage III-b inoperable Lung cancer....Surgery could be an option if treatment shrink the tumor !!
Has your treament been rough for you ??? Made you tired & sick ? He had 2nd chemo & rad. today....Chemo 3 x per wk. and radiation 5 x per wk.

Thanks
Dorsey

Laura88
Posts: 47
Joined: Oct 2009

I'm not sure what I said already so please excuse me if I'm repeating myself -- I had six rounds of cisplatin/alimta, once a week every three weeks. I was pretty tired the week after chemo. However, I worked full time (with the exception of the week after chemo) all through treatment. I also had radiation along with chemo, which makes you a bit more tired. Toward the fifth and sixth chemo treatment it took me perhaps a week and a half to get back to baseline instead of a week. I had some neuropathy in my hands and feet, but nothing that could not easily be handled. I did experience some vomiting and chest pain in my last week of radiation. I was unable to tolerate any spicy foods or acidic foods due to radiation and was put on a bland diet. On the upside, my last chemo was 10/9 and my last radiation was 10/23. Today, not very long after treatment, I am feeling as good as I ever have. I am eating anything I want and so happy about that I gained 6 much needed pounds.

Whatever higher power you believe in -- that power I think gives us the ability to look at things in hindsight and say "that really wasn't too bad", no matter how bad it was while actually going through it. This is the power that allows us to continue. Your husband, while going through this will definitely have his good and bad days. He is lucky to have you during both those good and bad times. And on days that power does not work for you guys -- log on here and we will be here to carry you through as best we can. I know I have been so scared and confused during treatment and I have found many good answers and wonderful responses on this website -- and it is so helpful to be able to converse with people who truly know what we are going through.

Please let me know how things are going. I hope you have a wonderful and peaceful holiday. Take care -- laura

Laura88
Posts: 47
Joined: Oct 2009

I'm not sure what I said already so please excuse me if I'm repeating myself -- I had six rounds of cisplatin/alimta, once a week every three weeks. I was pretty tired the week after chemo. However, I worked full time (with the exception of the week after chemo) all through treatment. I also had radiation along with chemo, which makes you a bit more tired. Toward the fifth and sixth chemo treatment it took me perhaps a week and a half to get back to baseline instead of a week. I had some neuropathy in my hands and feet, but nothing that could not easily be handled. I did experience some vomiting and chest pain in my last week of radiation. I was unable to tolerate any spicy foods or acidic foods due to radiation and was put on a bland diet. On the upside, my last chemo was 10/9 and my last radiation was 10/23. Today, not very long after treatment, I am feeling as good as I ever have. I am eating anything I want and so happy about that I gained 6 much needed pounds.

Whatever higher power you believe in -- that power I think gives us the ability to look at things in hindsight and say "that really wasn't too bad", no matter how bad it was while actually going through it. This is the power that allows us to continue. Your husband, while going through this will definitely have his good and bad days. He is lucky to have you during both those good and bad times. And on days that power does not work for you guys -- log on here and we will be here to carry you through as best we can. I know I have been so scared and confused during treatment and I have found many good answers and wonderful responses on this website -- and it is so helpful to be able to converse with people who truly know what we are going through.

Please let me know how things are going. I hope you have a wonderful and peaceful holiday. Take care -- laura

Laura88
Posts: 47
Joined: Oct 2009

I'm not sure what I said already so please excuse me if I'm repeating myself -- I had six rounds of cisplatin/alimta, once a week every three weeks. I was pretty tired the week after chemo. However, I worked full time (with the exception of the week after chemo) all through treatment. I also had radiation along with chemo, which makes you a bit more tired. Toward the fifth and sixth chemo treatment it took me perhaps a week and a half to get back to baseline instead of a week. I had some neuropathy in my hands and feet, but nothing that could not easily be handled. I did experience some vomiting and chest pain in my last week of radiation. I was unable to tolerate any spicy foods or acidic foods due to radiation and was put on a bland diet. On the upside, my last chemo was 10/9 and my last radiation was 10/23. Today, not very long after treatment, I am feeling as good as I ever have. I am eating anything I want and so happy about that I gained 6 much needed pounds.

Whatever higher power you believe in -- that power I think gives us the ability to look at things in hindsight and say "that really wasn't too bad", no matter how bad it was while actually going through it. This is the power that allows us to continue. Your husband, while going through this will definitely have his good and bad days. He is lucky to have you during both those good and bad times. And on days that power does not work for you guys -- log on here and we will be here to carry you through as best we can. I know I have been so scared and confused during treatment and I have found many good answers and wonderful responses on this website -- and it is so helpful to be able to converse with people who truly know what we are going through.

Please let me know how things are going. I hope you have a wonderful and peaceful holiday. Take care -- laura

Laura88
Posts: 47
Joined: Oct 2009

Hello -- I haven't heard from you and was wondering how your husband is tolerating treatment? Hope you had nice holidays and will have a happy new year. Please do let us know how you are both doing. Laura

Jim Pantelas
Posts: 4
Joined: Jan 2010

I don't know if my story will help your father at all, but I'm a 4.5 year stage 3b (with stage 4 lymph node involvement) adenocarcinoma survivor. Okay, I hate the word survivor, and my six month check is coming up in 3 more weeks, and this is generally my lowest point in the cycle, but I can assure you that the past 4 years have been the best of my life. I was diagnosed on Sept. 1, 2005. My wife was 6 months pregnant (our first child), and lung cancer is what had ended my father's life. I don't know how my wife got through the diagnosis, but we had so much left to do before the baby arrived, and I had so much I wanted the baby to know that my days got filled with doing all those things you do when you think you're going to die. I bought Birthday cards, Valentine's Day cards, Christmas cards, I wrote cards and letters to a child whose gender I didn't know because I wanted it to know who I had been. It's a very long story, and so much has happened since, but what I can offer will either make you think I'm crazy, or will tell you a lot about my wife - but we now have our 4 year old daughter (Stella), and she now has two baby sisters, Grace, 21 months, and Leda, almost 3 months. And I'm not writing them cards or letters - I'm still here!

Does it suck getting this diagnosis? You bet! Is it hell going through the chemo, radiation, and, in my case, the resection? (Yup, the did the resection before finding out how far it had spread, so the follow on had to include chemo and radiation.) You know it does. You ache with what seems like every breath, and you never get warm, your stomach never seems to settle down, and people tell you stupid things like "it's all about your attitude", but there is another side, and there is an end to it, and there is life at that other end. As Stella, Grace and Leda's daddy I can tell you, there is life - and a glorious, happy, wonderful life - at the other end!

Good luck to you both.

Laura88
Posts: 47
Joined: Oct 2009

Jim -- what an amazing story you have. And attitude. Unfortunately things did not work out well for me. The surgeon ordered a PET scan and found mets to the pelvis and brain. I am undergoing whole brain radiation and radiation to the pelvis. I will rest a week or two and then begin chemo again. I am working very, very hard to find the strength you have and I will say posts like yours are what keep me going. I have raised my children, but I raised them alone and worked day and night and missed all the fun things. I now have to beautiful grandchildren and had so very many plans for them -- it's hard to not feel bad for myself for sure -- but I try so hard not to. I try to find a way to do everything I was going to do -- still planning on Disney in a few years, still planning little trips, sometimes just taking the two year old out for icecream is really so much more fun and means so much more than what it used to. I think that is what you were saying? Anyway -- thanks so much, Jim. You are an inspiration to me for sure and I hope to hear from you again. Laura

pam lewis
Posts: 6
Joined: Oct 2011

you need to believe he well be alright. i have stage 3a i am not sure what the different is. when i had treatment i would drink carnation instant breakfast with some ice cream mixed in and it was better than the ensure and boost. i last only a few pound. so far i have lost 45 pounds in 4 months but with breakfast drink only help . god bless an my prayers r with you all.

Byron3
Posts: 1
Joined: Jan 2012

Hi, my mum was diagnosed in April 2011 with stage 3a lung cancer. A tumor in her right lobe and a tumor in her lymph node in chest well on the left side. We were told that mum needed the most strongest treatment of chemo and radiation at the same time for 5 weeks. Radiation daily and chemo once a week. We were told this will shrink tumor and by my Mum a few years but chances of cancer going were extremely slim. We were very scared.

Amazingly my mum who really didn't have any symptoms of lung cancer and is 69 and slim and generally in good health went thru the treatment rather good. Yes she was tired and for a 2 weeks found it extremely didfficult to swallow and was in pain. She did not loose all her hair and about 5 weeks after treatment ended up with radiation phemiontis - a cough, shortness of breath and low fever, steroids improved this condition quickly.

Mum managed to go on a holiday 3 months after treatment. She feeling a little weak and off balance and so doctor is weaning mum off steroid.
2 scans show that the cancer has GONE!. Which is rather remarkable.

My advice to loved ones and your dad is to be patient and go easy on yourself, listen to your body and stay positive.

All the best for a positive recovery.

I'm from Australia and my mum was on taxol and cisplatin and strongest radiation

reply2stevejohn
Posts: 2
Joined: Aug 2013

Amazing forum ..giving Hopes to deal with Lung Cancer...

My Dad is diagonised with LC -Stage 3B only 3 days back with size of 5.2 cm X6.2 cm on left lower lobe of lung and we did seek second opinion and doc opinioned that it was Inoperable case and we could start Chemo & Radiation.

The Current Doc has proposed only Chemo and my Dad's firsct Chemo was done with Gemcite to-day. After going through this forum , where combinaton of Radiation and Chemo has done wonders in shrinking the tumor. Doctor advised us that Radiation we can do later after 3 cycles of chemo in 21 day cycle followed by PET scan as my Dad is not experiencing any pain atm and Radiation is given only to subdue any pain.

I'm not sure How far I'm in right direction in treatment of my Dad-Stage 3B Lung cancer..Please Advice.

 

 

 

 

 

reply2stevejohn
Posts: 2
Joined: Aug 2013

Amazing forum ..giving Hopes to deal with Lung Cancer...

My Dad is diagonised with LC -Stage 3B only 3 days back with size of 5.2 cm X6.2 cm on left lower lobe of lung and we did seek second opinion and doc opinioned that it was Inoperable case and we could start Chemo & Radiation.

The Current Doc has proposed only Chemo and my Dad's firsct Chemo was done with Gemcite to-day. After going through this forum , where combinaton of Radiation and Chemo has done wonders in shrinking the tumor. Doctor advised us that Radiation we can do later after 3 cycles of chemo in 21 day cycle followed by PET scan as my Dad is not experiencing any pain atm and Radiation is given only to subdue any pain.

I'm not sure How far I'm in right direction in treatment of my Dad-Stage 3B Lung cancer..Please Advice.

 

 

 

 

 

z's picture
z
Posts: 1302
Joined: May 2009

Please also post this information at the Inspire web site.  Lots of stage III and IV survivors with many treatment experiences.  I was a stage 1a and had surgery to remove the lower right lobe on 9-23-10, and so far so good.  I hope that the chemo will shrink the tumor where the lower left lobe could be removed.  I wish you and your dad well. Lori

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