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daughter w/myxoid liposarcoma

mondy
Posts: 1
Joined: Dec 2007

You all have probably heard these stories a million times. I am, basically, the momma trying to cope. In this instance. My 12 year old daughter was finally diagnosed and had surgery on Oct. 1st of this year. It took them 2 months to decide it was this type of cancer. This is all very new to me. I am scared, worried and all the info is even scary-er. They have said my daughter was an oddity. Her tumor was between her bladder and pelvic wall and was 13mm round with a 1mm skin. They said it was fully self-contained and there is almost no change that it will reoccur or that there is any left. Alot of what I have read on the internet talks about adults having this type of cancer and most all having radiation treatment. These doctors just want to see her back in 3 months! I feel like every day is a blessing, and each day a gift. While I am having a difficult time dealing with this - my daughter and husband are just fine and are excited she is being "written up" since her situation was so rare (supposed to have none on record for her age, location, size of tumor). I really don't care about the write up. I care that is was malignant and about her treatment. I don't trust the HMO's to provide her with all the care she will need. I would like to know about any resources I can read or go to that will explain in plain english how to proceed and what this stuff really is. thanks for listening, mondy

AuthorUnknown
Posts: 1564
Joined: May 2006

Hello,

You may want to contact the American Cancer Society's National Cancer Information Center for more information on your daughter's diagnosis. Cancer Information Specialists are available 24 hours a day at 1-800-227-2345.

I wish your daughter the best on her treatment.

Take care,

Dana
CSN Dana

friscov2
Posts: 4
Joined: Jan 2009

Hello.

I have recently registered on this network due to an occurance/cancer diagnosis within the family this past year. I have been required to be a quick study. I am wondering if you would mind sharing how things are working out with your family as your posting is more than a year old. There seems to be very little information being shared about this particular cancer. Thank you.

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