i am a 39 year survivor of Wilms tumor. i am now 44 years old and although very thankful to be alive, i am wondering if there are others like me who are suffering from medical finding no doctor seems to understand.
even oncologist aren't really concerned unless you have cancer now.
anyway, i've had to have a hysterectomy that landed up lasting 5 hours because my gynecologist said he has never seen a mess of adhesion and scar tissue and charred areas of tissue he assumes is from radiation now i have chronic back problems with portions of my spine chipping off which no one knows what to do about because there are not many like me out there to compare to.
there are other problem, but just wondering.....is there any one out there who understands!