Nov 11, 2007 - 2:46 pm
My finace' was diagnosed with metatisized rcc in September. This was discovered when he broke his right femur in a fall. In addition to the kidney tumor,tumors found in his right and left femur and a small one in his arm. The tumors in both legs were removed and the bones repaired and rods put in. He had embolizations to the tumors in his leg bones. He is doing 3 weeks of radiation and then will be on sutent. No one will give a prognosis, but from what I read on the net this is very very bad. The thing is, he is reacting very well to everything and we both have the oddest feeling that he is going to surprise everyone and survive a longer period of time. We may be in denial, I suppose, but my late husband died from non-Hodgkins lymphoma 5 years ago so I am not a newbie to all of this. Has anyone know anyone that survived more than one or two years with metastisized RCC? I understand the doctors don't want to create a "self fufilling prophecy" by giving a time frame, but we would like to know what we read on the net is not carved in stone. Thanks!