Sep 29, 2007 - 3:13 pm
Hello, I am a newbie just looking for some support. There are lots of great posts and some good advice here! Anyway, I was diagnosed with left tonsillar cancer in April '07. Stage 2 with 2 lymph nodes involved. I did not have surgery to remove anything because the docs felt they could get rid of it with 35 consecutive treatments of IMRT radiation along with 7 weeks of chemo. I finished my treatments in June '07 and am now three months post treatments. The exams show the tonsil CA is gone, but I am having a very difficult time with this very slow recover phase. I am still on the peg tube (it was put in on April 4, '07, the day of my biopsy and diagnosis, and I thank God and my docs for having it). It is your lifeline through all of this! However, I've already had to have 3 dilations to my esophagus because the radiation shrunk the opening down to 6mm from the standard adult size of 18mm! The dilations have torn my esophagus because radiated tissue is so sensitive. The tearing is still healing and causes pain upon swallowing. My saliva is still not back to normal yet but it seems to be heading that way. I am luckily able to drink clear liquids and eat Campbell's bean with bacon soup. Sometimes I have to chase the beans down with broth or water. My biggest problem is depression and patience with the recovery and wanting so badly to get back to my normal self. Any tips or encouragement is very much welcome.